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Tim's roller coaster ride

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13 years 6 months ago #25992 by lucidawn
Tim's roller coaster ride was created by lucidawn
Well after about a year of very low counts that have not responded to any treatment, it seems his last course of IVIg has made some seemingly lasting effects (lasting for him). His count came up to the 500k mark, but then the next week he was down to 70k, then to 12k...but this past week he was at 64k...so he may be responding a little better now to the Nplate. I told him that last batch of IVIg was a good batch, lol. I have heard that sometimes a change in the blood/donor pool can help with response, so maybe it was a new batch? Whatever the case...he's enjoying his little pseudo remission.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.