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Prednisone

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13 years 3 months ago #25896 by dawn1979
Prednisone was created by dawn1979
Hi everyone
Brianna was put on prednisone on Monday. So we go back tomorrow to see if her counts have gone up any. Brianna is on 21 5 mg pills a day does this seem like a lot to anyone else. I'm sure she has most of the side affects and she is some moody
Dawn
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13 years 3 months ago #25927 by Dean
Replied by Dean on topic Re: Prednisone
Do you mean 21.5mg (I have not heard of that dose) or 5mg pills, 21 times a day!! If so, that is way to much!! 60-80-mg a day is the most I have heard of and that is only for a few days.
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13 years 3 months ago #25931 by dawn1979
Replied by dawn1979 on topic Re: Prednisone
She takes 7, 5mg pills tree time a day. So that works out to 105 mg a day
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13 years 3 months ago #25933 by Dean
Replied by Dean on topic Re: Prednisone
Thank You for the clairification. I think that is excessive for anyone, especially for a child!! How long has she or supposed to be taking this amount?
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 3 months ago #25944 by Sandi
Replied by Sandi on topic Re: Prednisone
Wow - how old is she?
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13 years 3 months ago - 13 years 3 months ago #25948 by nb9094
Replied by nb9094 on topic Re: Prednisone
They started me out at 100mg a day untill she found it wasn't doing anything but making me bigger, like i need that. Im 42 so maybe that why they gave me so much.
They also started me on 10 pills of Dexamethasone today. Don't know the mg.
Neil
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13 years 3 months ago #25954 by Ann
Replied by Ann on topic Re: Prednisone
Dex is 5 times stronger than Pred so good luck with that! I presume it's only for 4 days so hopefully not too bad. Maybe Brianna's is the pred equivalent of a dex pulse. Seems reasonable if so.
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13 years 3 months ago #25956 by dawn1979
Replied by dawn1979 on topic Re: Prednisone
Brianna is 10. Had her back today to get bloodwork done her counts are up to 116000 the doctor was very pleased and cut her back to 65mg a day. We have to go back on Wednesday to see if she is going to change it again before we leave to go away.
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13 years 3 months ago #25958 by Ann
Replied by Ann on topic Re: Prednisone
Oh well, as not a pulse your doctor is being an aggressive treater. All doctors are different so here's hoping it has the effect they desire.
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13 years 3 months ago #25965 by Dean
Replied by Dean on topic Re: Prednisone
Over aggressive for a 10yr old in my opinion. Hope her counts stabilize!!!
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13 years 3 months ago #25989 by ddinap@aol.com
Replied by ddinap@aol.com on topic Re: Prednisone
that is high for a 10 yaer old! i am 34 and about 115 pounds and was on 60mg for 4 weeks and was miserable. i was crying all the time, had a major attitude with everyone, only sleeping 2 hours a ngiht because i was up with heart palpatations, and my resting heart rate was over 100! i can't imagine that or a higher dose in a child!
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13 years 3 months ago #25994 by dawn1979
Replied by dawn1979 on topic Re: Prednisone
Her doctor is usually not aggressive at all she usually likes the wait and see approach. But Brianna is leaving to go to Alberta on Friday for 3 weeks. Her doctor was letting her go till we found a doctor in Alberta to keep an eye on her counts. She has changed her dose yesterday to 60mg a day and we have to go back on Wednesday. So her counts have gone up to 116000. Now with the lower amount lets see if we are going to get any sleep
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13 years 3 months ago #25996 by Ann
Replied by Ann on topic Re: Prednisone
The usual dosing for children and adults is 1 or 2 mg per kg of body weight so your doctor has simply gone for the higher option in order to get a fast response. Sixty mgs is still a huge amount, it's the highest I've ever taken so don't hold your breath with getting any sleep! Hope for high counts continuing.
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13 years 3 months ago #26138 by dawn1979
Replied by dawn1979 on topic Re: Prednisone
:) had Brianna back for blood work and her counts are up to 325000 this is highest she has been in years, so they cut her dosage back to 20 mg twice a day
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13 years 3 months ago #26152 by Dean
Replied by Dean on topic Re: Prednisone
:) :) :) Great!!!
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