Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

how long?

More
13 years 9 months ago #23647 by mushi7284
how long? was created by mushi7284
My son was diagnosed with ITP on December 6th. Since then he has gotten ivig and winrho and neither have brought up his platlets longer than 2 days.. he has gotten all the way down to a level of 5. Now he has been on steroids for 3 months and whenever they try to taper them off his levels drop again .... I'm just sick of nothing working.. and being in constant fear that his levels are too low....

Please Log in or Create an account to join the conversation.

More
13 years 9 months ago #23653 by crystal lee
Replied by crystal lee on topic Re: how long?
I am so sorry, I share your frustration and fear!! Just believe it will get better and try to stay positive! Good luck!!

Please Log in or Create an account to join the conversation.

Moderators: jaycharness

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.