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Tim BMA BMB, 6k

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13 years 9 months ago #23616 by lucidawn
Tim BMA BMB, 6k was created by lucidawn
Tim's platets are 6k today, down from 9k last week.. They gave him 4 mcs again, and I was steaming. I asked to speak with someone and they at first said that it wouldn't do any good. I insisted, so finally they went to the nurse practitioner who called the homeonc. He came in to talk to us. He decided to do a BMA and BMB this Friday (Tim's first). He also said he'd send for another mcg of nplate to make it 5mcg (finally). The antibody test apparently is not available commercially, so we can't do that. He mentioned splenectomy again, and I reminded him that there are two failed splenectomies in the family already. Well, that's what happens when the doc never sees him...they don't remember the case.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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13 years 9 months ago #23688 by crystal lee
Replied by crystal lee on topic Re: Tim BMA BMB, 6k
Just wanted to wish you --him good luck!!
The following user(s) said Thank You: lucidawn

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13 years 9 months ago - 13 years 9 months ago #23690 by lucidawn
Replied by lucidawn on topic Re: Tim BMA BMB, 6k
His procedure went smoothly. I stayed in the room while they did it. His platelets are at 7k today. We'll hear the results on Monday. Tim handled it well and only remembers the beginning (yay for versed!).
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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13 years 9 months ago #23810 by jkfrye1982
Replied by jkfrye1982 on topic Re: Tim BMA BMB, 6k
Donna, first off...I'm happy to hear the BMB and BMA went well, but why did they do it? What are they looking for? They wanted to do a BMA on my daughter and when they wouldn't tell me why, I refused and the Hema seemed fine with it.

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