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Occult blood

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13 years 7 months ago #22748 by lucidawn
Occult blood was created by lucidawn
Tim's been having some stomach pain today so I took him in to the hemonc (the office anyway). They did a cbc and he was 17k so up a little but not really much. As they always tell us when they drop by a few thousand, its not enough to mean anything. But they were happy about it. They found occult blood in his stool, and mentioned pancreatitus and sent him home until his appointment tuesday...no scans. This is not the best place for him, though everyone seems to think it is. His doctor never even sees him. Its like getting distance treatment over the computer.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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13 years 7 months ago #22756 by Tad Moody
Replied by Tad Moody on topic Re: Occult blood
I had acute pancreatitis and is NOT fun - It started out feeling like mild indigestion, but then it got worse and turned into a severe burning/aching pain, spreading from my abdomen up to my neck. I had sone internal bleeding, too. It was long ago, and I don't remember how it's diagnosed, but it put me in the hospital and took forever to get the inflamation down.
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13 years 7 months ago #22772 by alisonp
Replied by alisonp on topic Re: Occult blood
OK, I had to google that one - I initially thought that maybe Tim was involved in some bizarre witchcraft ritual or something!

You must be very worried, given his counts at the moment. I really hope that they get him sorted out and quick.

Ali
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13 years 7 months ago #22779 by lucidawn
Replied by lucidawn on topic Re: Occult blood
You're funny Ali. Occult simply means hidden, lol. It took me a minute to figure out what you were talking about haha. I'm not horribly worried, but starting to wonder what the future is going to be like if we can't get his counts up.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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13 years 7 months ago #22780 by alisonp
Replied by alisonp on topic Re: Occult blood
Maybe its a cultural thing - in the UK, occult generally refers to witchcraft etc. Or maybe I am just ignorant..... I saw the title, and thought of goblets of sacrificial blood or something! :P

I really feel for Tim, because it must feel like a step backwards. Dougie is going through the same thing but on a much smaller scale - he normally ignores ITP, but he has a lot of bruising the last few weeks, so he can't and its really knocked him again.

Good luck in getting it sorted out anyway

Ali
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13 years 7 months ago #22782 by eklein
Replied by eklein on topic Re: Occult blood
In the US, the most common meaning of occult is the witchcraft one, and most people would think that too, but the second meaning is like lucidawn said, hidden, and is usually used in medical contexts.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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13 years 7 months ago #22784 by Ann
Replied by Ann on topic Re: Occult blood

alisonp wrote: Maybe its a cultural thing - in the UK, occult generally refers to witchcraft etc.

As Donna says it's a medical term. It's used that way in the UK too.
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13 years 7 months ago #22785 by alisonp
Replied by alisonp on topic Re: Occult blood
LOL :laugh: I am clearly just medically ignorant then - I've learnt my new thing for the day though!
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13 years 7 months ago #22786 by lucidawn
Replied by lucidawn on topic Re: Occult blood
Ali, I'd like to meet the person who comes up with a test for "goblets of sacrifical blood" in a person's stool! We could have the salem witch trials all over again! Oh, wait, those were bad huh...never mind.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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13 years 7 months ago #22787 by alisonp
Replied by alisonp on topic Re: Occult blood
LOL, as well as being medically ignorant, I have an overactive imagination......:silly:
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13 years 7 months ago #22851 by lucidawn
Replied by lucidawn on topic Re: Occult blood
Being around chronic, life threatening health problems day in and day out, we all get a little paranoid (medically). My 17 year old was convinced last night that he had rye's syndrome. It was very hard not to laugh as he was trying to convince me to take him to the ER because within minutes of taking pepto bismol, he got an ear ache. He read the label, and well, now the paranoia, lol.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
More
13 years 7 months ago #22942 by cpo5
Replied by cpo5 on topic Re: Occult blood
Poop to ITP. When I also read the title, I kept thinking, "yep, this blood disorder is some type of cult." HA! I'm such a dodo.

I hope your guy gets feeling better and his ear and everything else gets back to "normal" soon.
This is the stuff that drives me crazy
This is the stuff that's getting to me lately
In the middle of my littleness
I forget how big I am blessed
This is the stuff that gets under my skin
But I gotta trust You know exactly what you're doing
It might not be what I would choose
But this is the stuff...
Moderators: jaycharness
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