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Timothy this week

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13 years 11 months ago #21996 by lucidawn
Timothy this week was created by lucidawn
He got 2 mc's per kilo this week on Tuesday (he was at 4k). Hemonc is finally believing our story about Tim's instability. Anyway, by Thursday he had wet purpura in his mouth (blood blisters)...about 12 of them and was at 3k. So they admitted him for IVIg to get him into next week. We're hoping he'll get 3 mcs per kilo on Monday. We'll see.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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13 years 11 months ago #22001 by alisonp
Replied by alisonp on topic Re: Timothy this week
Oh dear, that nice stable period seems to have well and truly ended. I hope that they manage to sort him out again soon - even if it means that he gets to have the tattoo!

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Platelet Disorder Support Association

Platelet Disorder Support Association
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