Platelet Disorder Support Association

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Timothy 5k

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13 years 9 months ago #21190 by lucidawn
Timothy 5k was created by lucidawn
I talked them into increasing his NPlate to 2mcgs/kilo. He's only at 5k and plans on a trip and a tattoo. We all disagree with this, but hopefully the higher dose will bring it up. We'll see on Monday.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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13 years 9 months ago #21195 by alisonp
Replied by alisonp on topic Re: Timothy 5k
Hi Donna,

Its like back to the old days with Tim's counts, and not in a good way.

I am currently having the tattoo argument with my eldest son. I hate them. We are no closer to agreement on it than we were when we started the discussion a couple of months ago. I suspect that he will just go out and do it one day. I keep telling myself that kids have to make some of their own mistakes, but its not making me feel any better about it.:( And it must be doubly bad with Tim, so you have my every sympathy!!!!

Ali
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13 years 9 months ago #21202 by lucidawn
Replied by lucidawn on topic Re: Timothy 5k
Hi ali,thanks :). I don't mind them so much as long as they are tasteful and not all that death and satanic crap. I wish he wouldn't cause of his platelets, but he will do what he wants. I've learned I hav to let him make his own mistakes. He won't listen to me.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
Moderators: jaycharness
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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