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Timothy update: No Nplate for over a month

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14 years 4 months ago - 14 years 4 months ago #18050 by lucidawn
Timothy update: No Nplate for over a month was created by lucidawn
Today his platelets are 131k and he has not had a drop of Nplate since the end of July! He went away to a camp for a week and came back with a nasty cold that lasted a few weeks. We knew his counts would go up (Tim and I...his hemonc never sees him so how would he know). Anyway, so now over a month later and he's had no Nplate this whole time. I'm really glad we didn't do the Rituxan because we might have thought that was what did it. I'm not sure if it will last, but its possible, we'll see. He has had remissions and partial remissions in the past that last one to two years, so maybe. Its been three years to the month that he's been so low...hope it holds...at least for a while to give him BM a break from the NPlate.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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14 years 4 months ago #18068 by alisonp
Replied by alisonp on topic Re: Timothy update: No Nplate for over a month
hey, thats brilliant news - don't speak too loud though, it might break the spell!

Ali

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14 years 4 months ago #18080 by lucidawn
Replied by lucidawn on topic Re: Timothy update: No Nplate for over a month
Yeah, I was thinking the same. Though this is the longest he's gone without treatment for three years and his counts have climbed.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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14 years 4 months ago #18148 by tacmom
Replied by tacmom on topic Re: Timothy update: No Nplate for over a month
Wow that's awesome! Maybe some positive thinking on maybe he is just growing out of it?? That would be the best news, wouldn't it!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.