:pinch: We are in the office today. The Heomonc made a big deal about changing the day to Monday so we could get in on the ITP clinic. I thought, great we'll finally see a doctor, be in a room, or at least be in a room with other ITP patients. Not. We got here, were sent back to the infusion room again. We got back there and were told to sit down somewhere. There was NOwhere to sit down-not a single seat. The room was full of cancer patients (not a big deal). I stood there and a nurse walked by and I said, "There's nowhere to sit. She said, "Sometimes it gets kind of full" and walked on. I was like, "right, just walk on." as I stood there and tim sat at the coloring table in a preschool chair (he's six feet tall). I thought no way am I just standing here for two hours. The rooms out in the hall had nobody in them! Finally they came to draw his blood and I said, "is there any reason we can't be in a room since there is nowhere to sit? She went to check and said, "We're lucky there is one room available." The rooms are empty every week. She drew his blood and the nurse practitioner is going to get back with us. We have been here two months and he's seen the doctor once. This is ridiculous...I'm getting pretty tired of this place. Will update with counts. Expect them to be pretty normal.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).
Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
