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Bone marrow test before splenectomy?

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14 years 4 months ago #15372 by jlollman
Bone marrow test before splenectomy? was created by jlollman
Curious how many have considered a bone marrow biopsy before moving forward with a splenectomy? Did your hematologist recommend it?

Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3
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14 years 4 months ago #15374 by jaycharness
Replied by jaycharness on topic Re: Bone marrow test before splenectomy?
This is one of those things that if you ask 10 people and Doctors, you may get 10 different opinions. Our personal hematologist's philosophy is that they will not do a splenectomy without a bone marrow. In contrast, they will not just arbitrarily do one any more, but they will before the splenectomy. I do not know the technical reasons, except I was told that it gives a semblance of confirmation that your child does have ITP. Hope it helps.
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14 years 4 months ago #15389 by Sandi
Replied by Sandi on topic Re: Bone marrow test before splenectomy?
I agree. I think a bone marrow biopsy can be an important part of the process prior to splenectomy, just to be sure. Since a splenectomy is such a major, irreversible thing, I'd want to be absolutely sure ITP is in fact the actual problem.
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14 years 4 months ago #15399 by SteveC
Replied by SteveC on topic Re: Bone marrow test before splenectomy?
Mine requested one prior and I think it was reasonably justified to eliminate other causes.

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14 years 4 months ago #15415 by Rhiannon
Replied by Rhiannon on topic Re: Bone marrow test before splenectomy?
I had bone marrow tests done when first developed ITP (1994) They worked by the rule book of that time and didn't have a seperate one before the splenectomy. But I do know my consultant at the time promised me it will never happen again. 18 month later, he ate is own words and has been doing so ever since he retired two year ago. The splenectomy raised my counts from 0 to normal. Which is good. But have periodic drops from time to time. Mine was idiopathic until it was decided everyone is immune because of the antibodies. Perhaps they used the results they had of the bone marrow test because I know when I was in the local hospital the original doctor told me everything the city hospital would do. (Though it was a foreign language at that time as good as). But he was 100% right. Though the city hospital wanted to do it all for themselves..... So yes the bone marrow test will have told them somethings. But don't tell you everything. Having a spleen removed isn't always the answer as with all the medication. Though lots of people do experience full recovery (carefully chosen words) and never have another episode.
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14 years 4 months ago #15450 by jlollman
Replied by jlollman on topic Re: Bone marrow test before splenectomy?
Thanks for the info and replies, so glad I have this forum to come to!!

Julie

Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3
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14 years 4 months ago #15529 by Dean
Replied by Dean on topic Re: Bone marrow test before splenectomy?
I had a bone marrow biopsy done to rule out other possibilities. That is when the Dr came back with ITP as a diagnosis.
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14 years 4 months ago #15602 by Angel85
Replied by Angel85 on topic Re: Bone marrow test before splenectomy?
I agree, I think it is a good idea to have it done before going through with it, so they can rule out for sure anything else.
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14 years 4 months ago #15997 by xray001
Replied by xray001 on topic Re: Bone marrow test before splenectomy?
My daughter Danica had a repeat bone marrow biopsy done before her splenectomy -- just to be sure that there was nothing else going on with the bone marrow. It was the same as the one two years ago -- indicative of ITP

Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
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