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tim's counts today

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14 years 6 months ago #13716 by lucidawn
tim's counts today was created by lucidawn
Two weeks ago at 75k. We think it was because he had been sick about three or four weeks ago. For him, his counts go up at first, then they go down after a few weeks (with an illness). Today he's back up to 175, two weeks after his last NPlate. Not sure how he'll wean him off if he does...we leave the area (moving) in one month. So, not much time to get this done.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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14 years 6 months ago #14006 by tacmom
Replied by tacmom on topic Re: tim's counts today
Wow, that's awesome news! I hope his counts continue to stay up there for a long time to come! Do you think this will be Tim's drug of choice if he has to go back on treatment? Caitlin is starting to get tired of getting the shots every week, so I always have to say..."do you want to do this, or skip cheer for a week?" It's getting to be a pain to have to threaten her every week. Caitlin really believes she doesn't need the shot anymore because her counts have been over 100 for a long time now and she thinks her body is doing it all on her own. (We only give her .08 of the drug out of the syringe.)
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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