My profile keeps getting deleted...

My username and password have been deleted twice now. This is Timothy's mom. Its very irritating:angry:
Anyway, so an update on Tim-he has been on 1mc per kilogram for months now (each week). He has skipped a week here and there with seeminly no effect. We are moving to another state, and since he's been so stable on such a small dose the hemonc is going to try to wean him off before we go...to see how he responds. Funny thing is, though he's been in the 200k's for a few months on this dose, the day we decide to wean...he's at 76k, haha. We are still gonna give it a try. Interesting.

I sure would like to use my old profile, but though it says my username does not exist, it says my email is being used. What the...:blink:

Post your problem in the Social Section under "Jeff please read". That is where the web guy looks for problems people are having.

Hi Donna,

Long time, no speak! Its great to hear that Tim has been doing good with the platelets - its strange that missing doses doesn't seem to make that much difference. I hope that he manages to get off the n-plate successfully anyway.

Are you moving anywhere nice?

Ali

Hi Ali,
This is Donna again, with my old profile. It keeps changing the pasword, but I was able to get a new one. I hope he gets off too, though as the hemonc said, he goes through periods where he's fine then it gets worse. He thinks he might be in a partial remission. I've been thinking this for a few months.

We are moving the Kansas City MO on May 1! I'm sooooooooooooooooooooo ready. Half my kids are ready, the other half want to stay here. I can't live here any longer. Not sure what I'll find in KC, but I'm sure I don't want to be here.

How are your boys?