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reoccurance rates

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14 years 11 months ago #12892 by trina143
reoccurance rates was created by trina143
My daughter developed ITP at age 6. It took one year for her dangerously low levels to rebound. This was after repeated ear infections treated with penicillin. I was told that I had a low normal blood count and that she could have started with low normal. The infections caused the ITP. I read a case studies book from this group. It looked like a lot of the studies showed that kids can get ITP back in puberty. What are the chances of this happening? I am being called an overprotective mother, but would really like to know. I have not been able to find any hard and fast numbers on this.
Thanks
Trina

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 11 months ago #12898 by Sandi
Replied by Sandi on topic Re: reoccurance rates
Trina:

All I can tell you is that statistics quote that childhood ITP is acute 80% of the time. There are many children who never have a recurrence. Using that statistic, there would be a 20% chance that your daughter could relapse. Not having a crystal ball, no one knows which percentage she will be in. Knowing the numbers will not predict what will happen with your daughter.

My advice would be to forget about ITP and move on. If ITP recurs, cross that bridge when you come to it. There isn't anything you can do to prevent it.

If this helps, my sister had a similar situation. She had ITP for a year with low counts, went into remission after a year, and has never had a recurrence. It's been 29 years.
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