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8 years 2 weeks ago #60719 by alisonp
Update was created by alisonp
I haven't got a lot to say here, which is good! After four or five months of constant heavy nosebleeds, Dougie had his nose cauterised in May and mercifully, that seems to have cured the problem. His last count in late May was in the 30s which is great and he mostly has no symptoms at all. He's off to University next week so I hope it stays that way and he has no problems while he is gone. Oh, and he ran his first marathon in August. All in all, a really positive few months. I hope you are all doing well. Ali
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 2 weeks ago #60722 by Hal9000
Replied by Hal9000 on topic Update
Doesn't Dougie have a pretty strong response to Nplate, with a 70 count after two treatments?
ITP Types and Treatments by HAL
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8 years 2 weeks ago #60724 by alisonp
Replied by alisonp on topic Update
Good memory! Yes, he did seem to get a good result from that.
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 2 weeks ago #60726 by Hal9000
Replied by Hal9000 on topic Update
LOL, I cheat and use the 'search' page for historical info.

Do you recall? When he had IVIG, was that a two day treatment or ?
ITP Types and Treatments by HAL
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8 years 2 weeks ago #60730 by alisonp
Replied by alisonp on topic Update
That was a long time ago!!! No, it was definitely one day.
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8 years 2 weeks ago #60738 by momto3boys
Replied by momto3boys on topic Update

alisonp wrote: I haven't got a lot to say here, which is good! After four or five months of constant heavy nosebleeds, Dougie had his nose cauterised in May and mercifully, that seems to have cured the problem. His last count in late May was in the 30s which is great and he mostly has no symptoms at all. He's off to University next week so I hope it stays that way and he has no problems while he is gone. Oh, and he ran his first marathon in August. All in all, a really positive few months. I hope you are all doing well. Ali


Awesome news! Thanks for popping in with a happy update :)

Hope he has a great experience at University and great job on the marathon!
The following user(s) said Thank You: alisonp
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 2 weeks ago #60741 by Sandi
Replied by Sandi on topic Update
Oh my goodness! He's all grown up! Thanks for checking in, Alison. We miss you around here!
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8 years 2 weeks ago #60743 by alisonp
Replied by alisonp on topic Update
Thanks. I occasionally pop in to read posts but ITP is kind of a non-event in our house since his count went over 20 or so. I feel like a bit of a fraud posting anything!! Yes he is all grown up.....19 at the weekend.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 2 weeks ago - 8 years 2 weeks ago #60747 by Sandi
Replied by Sandi on topic Update
Feel like a fraud? No way! Your input is very valuable. I am always happy to have your calm voice around here for others!

I'm still here and have been in remission since 2005. Experience and knowledge counts!
The following user(s) said Thank You: alisonp
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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