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Has it happened to you?

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9 years 7 months ago #55433 by Amelia95
Has it happened to you? was created by Amelia95
Just got home from the GP (non itp related for once!) And have been prescribed some antibiotics...
After a long chat with my doctor and my symptoms he recommended trimethoprim. Steroid card at the ready I stressed about my blood and only just coming off steroids a month or two ago thinking it would be fine.
Went to pick up the tablets no problems what so ever to get home to read the information leaflet to see that anyone with a blood problem/disorder should not take these drugs! This is the second time it's happened to me. Just a pain! Am I the only one this has happened too? What would you do?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 7 months ago #55439 by Sandi
Replied by Sandi on topic Has it happened to you?
Amelia:

What does it say, exactly? Most drugs list bleeding or thrombocytopenia as a side effect, you can't get away from it. ITP treatments even list it.

Some drugs can cause blood thinning though and if that's the case, you wouldn't want to take that one if counts are down.
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9 years 7 months ago #55442 by Amelia95
Replied by Amelia95 on topic Has it happened to you?
Hi Sandi,

All it said was do not take if you have a blood problem/disorder, anything else I wouldn't have questioned as much as you quite rightly said you can't get away from somethings!
But I spoke to the GP today and he has changed it for me advising to stop taking them immediately and to get a test done just in case if I had, luckily I hadn't!
I totally understand people make mistakes just frustrating and expensive!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 7 months ago #55443 by Sandi
Replied by Sandi on topic Has it happened to you?
I know. :( I'm glad he changed it for you. Hopefully you don't have any problems with the new drug.
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9 years 7 months ago #55444 by Rob16
Replied by Rob16 on topic Has it happened to you?
Trimethoprim is one of the ingredients of Bactrim (trimethoprim-sulfamethoxazole). A fair number of forum members suspect that their ITP was triggered by Bactrim, but there is no way to know for sure.

Sandi was referring to drug-induced thrombocytopenia (DIPT), which can happen with a wide variety of medications. The list includes many common medication, including Bactrim. The effect is usually reversible once the offending medication is removed. There is no evidence that having ITP makes one more susceptible to DITP.

In addition, trimethoprim has the potential of interfering with folic acid metabolism, especially in the combination trimethoprim-sulfamethoxazole (Bactrim), causing various hematological problems including thrombocytopenia, but especially macrocytic anemia.
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9 years 7 months ago #55445 by Amelia95
Replied by Amelia95 on topic Has it happened to you?
Thank you very much for your reply, it's good to know!

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.