Platelet Disorder Support Association

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!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

OH Sandi!

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9 years 10 months ago #52063 by ananta
OH Sandi! was created by ananta
We will miss you so much when you stop being Moderator!

Who will calm our fears and wipe our tears?
Who will stop our squabbles and admire our baubles?
Where will we get advice?
Who will we ask, who is up to the task?

I am sorry you are leaving, but I understand it is probably quite a strain for you. I hope you will have time to focus on your own health issues. And I hope we get some one who is competent and compassionate. The moderator can make or break the discussion group. I was a member of a different group, but the moderator was so down and demeaning of anyone asking a question, that everyone was afraid to post anything. If you asked a simple question he would say, "Didn't you read the intro pages? Why do I have to answer you when it is on the first page?" I left the group.

I feel like we are losing a friend. :(
9 years 10 months ago #52064 by
Replied by on topic OH Sandi!
I just hope you check in more often than "from time to time"!
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9 years 10 months ago #52065 by meredithjane
Replied by meredithjane on topic OH Sandi!
Thank you, Sandi, for 'being there' for me over the past 11 years.
Your wisdom, compassion, support, encouragement & humour literally got me through the Itp journey!
I have often wondered how you cope, so am pleased you are now relieving yourself of a huge undertaking. Many blessings in the next 'chapter'. You may even get 'down under' - cruises are very popular!!
Big hug,
Meredith.
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9 years 10 months ago #52066 by CindyL
Replied by CindyL on topic OH Sandi!
Yes, it won't be the same around here without our Sandi! Like the others have said, do take care of yourself but check in more than "now and again".
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9 years 10 months ago #52067 by tamar
Replied by tamar on topic OH Sandi!
Sandi, you have done an amazing job at moderating this group for many years. I can imagine that it'll be a relief to be able to step away from talking and thinking about ITP so much. You will be missed, but I'm glad you've made the decision to focus on yourself!

You've touched so many people by responding, discussing, and sharing, and that's got to feel good. Well done, and hope "retirement" treats you well.

Tamar
The following user(s) said Thank You: mrsb04
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9 years 10 months ago #52068 by TerriC14
Replied by TerriC14 on topic OH Sandi!
I also would like to add my thanks, you were such a calming and knowledgeable voice for me. I can imagine being moderator was a full time plus commitment.

I am really glad that you were here when we started our journey.

Terri
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9 years 10 months ago #52069 by Christine
Replied by Christine on topic OH Sandi!
What more can I add to what has been said; THANK YOU for all the work you have done and please check in periodically Hugs XXX :)
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9 years 10 months ago #52071 by Rob16
Replied by Rob16 on topic OH Sandi!
Dear Sandi,

You have been an exceptionally fine moderator, and will always be our moderator emeritus.

We will miss your knowledge, of course, but more than that we will miss your wisdom. Many of us you have talked down from full panic, and many others you have coaxed to overcome denial and get something checked out. You have taught us to know enough to participate in our own medical decisions, and when necessary to stand up to doctors.

More than anything, we will miss your kindness, and your ability to always find just the right kind words when we needed them. You have many friends here, Sandi, and I hope you will remain among us as a friend.

Rob
The following user(s) said Thank You: DeeDee Marie, CindyAnn
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 10 months ago #52075 by Sandi
Replied by Sandi on topic OH Sandi!
You're all making me cry. Thanks for the kind words. All of you have made me laugh, made me cry, caused me to be happy, caused me to lose sleep....many emotions over many years. I've made so many friends (and probably some enemies) along the way. I was always here because I wanted to be, not because I had to.

I think this place could use a fresh face with fresh ideas. You'll all be just fine.
The following user(s) said Thank You: DeeDee Marie, mrsb04, Catk96
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9 years 10 months ago #52092 by Aoi
Replied by Aoi on topic OH Sandi!
You really did a great job here. I've been on a lot of forums in a lot of places online for a very long time, and I'm still telling people about how exceptional the PDSA is, and much of that comes down to you, Sandi. I get that you need to go, but you will be missed.
The following user(s) said Thank You: Sandi, mrsb04
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9 years 10 months ago #52096 by johncarp25
Replied by johncarp25 on topic OH Sandi!
Sandi,

I think you answered all my posts, and I valued all your advice. Because of you I am sure I still have my spleen, I have a different specialist at a different hospital, I feel more at ease with this condition and if it wasn't for this forum and your advice and support I am sure my experience of all this would have been very different.

I am truly grateful and I wish you well.
The following user(s) said Thank You: Sandi
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9 years 10 months ago #52102 by Fervenz
Replied by Fervenz on topic OH Sandi!
Hi Sandi,

This forum is amazing and, like everyone else, I found your presence, wisdom, knowledge and kindness a blessing.
You are unique!
Thank you for the generosity of your time,
Good luck with next steps and may all go well

Ferv
The following user(s) said Thank You: Sandi
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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9 years 10 months ago #52104 by mrsb04
Replied by mrsb04 on topic OH Sandi!
I echo Fervenz's comments. x
The following user(s) said Thank You: Sandi
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9 years 10 months ago #52105 by mac
Replied by mac on topic OH Sandi!
Sandi,
Thank you so much for helping me during my sister's diagnosis and treatments. You taught me to be vocal and not just accept what a doctor says to do but to trust yourself as well. Please know how much your wisdom and kindness will be missed.
The following user(s) said Thank You: Sandi
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9 years 10 months ago #52146 by Winnifred
Replied by Winnifred on topic OH Sandi!
Sandi Thank you!
The following user(s) said Thank You: Sandi
  • CindyAnn
  • Offline
  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
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9 years 10 months ago #52150 by CindyAnn
Replied by CindyAnn on topic OH Sandi!
Sandi,

Your knowledge and compassion will be greatly missed - I am glad to have received so much good advise from you.

I have learned so much and taken control of how I experience ITP because of YOU!!!

Many HUGS,
Cindy Ann
The following user(s) said Thank You: Sandi
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9 years 9 months ago #52156 by eklein
Replied by eklein on topic OH Sandi!
Wow I'm glad I stopped by and saw this. Sandi, you should be so proud of your work here, you've made such a difference for so many people. More than most people can do in a life of work.

Maybe you can write an e-book about how to be a good forum moderator, just a thought in case you get bored :)
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
The following user(s) said Thank You: Sandi
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 9 months ago - 9 years 9 months ago #52157 by Sandi
Replied by Sandi on topic OH Sandi!

eklein wrote: Maybe you can write an e-book about how to be a good forum moderator, just a thought in case you get bored :)Erica


Thank you for the compliment. Not a bad idea. Wouldn't know how to go about getting it published online though!
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9 years 9 months ago #52158 by poseymint
Replied by poseymint on topic OH Sandi!
Thank you, Sandi for all your very helpful information so generously given. The amazing support from you and the community has given me the courage to change doctors, make my own decisions, refuse over-medication, get to know and trust my own body, and not panic when platelets are low. My spleen thanks you too!

Its important to take care of yourself- good for you! Best wishes for your next chapter.
The following user(s) said Thank You: Sandi
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9 years 9 months ago #52241 by Forevertwentyone
Replied by Forevertwentyone on topic OH Sandi!
I have not been on this site long enough to know all the contribution Sandi made last almost 20 years and I cannot imagine how exhausting it could be for Sandi to have the 24/7 365 days a year duty, however, I know how important it was for me to be able to hear her last few months to find the right treatment so fast. Thank you, Sandi, and wish you all the best for your health.
The following user(s) said Thank You: Sandi
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9 years 9 months ago #52244 by Winnifred
Replied by Winnifred on topic OH Sandi!
Sandi if you write that book. Send me a message maybe by than my daughter will have her publishing business up and running! If not you could be her first client! She was looking at publishing E-books so it would be perfect!
The following user(s) said Thank You: Sandi
  • midwest6708
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
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9 years 9 months ago #52350 by midwest6708
Replied by midwest6708 on topic OH Sandi!
Well, call me slow, but I just saw this news. As sad as it is for you to step down, I understand the demands an active board can make on someone's life... Especially a person who is as devoted as you've been for years.

I don't know what to say, really, except that you've made a more positive impact on my life than you can ever imagine. My ITP is a whole different beast from what it was before I found this board and you, Sandi. Take justifiable pride in what you've done here for so many people. I'll miss seeing you daily, but really hope you'll pop in often with bits of advice and wisdom

Best wishes ahead.
Janet
The following user(s) said Thank You: Sandi, mrsb04
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9 years 9 months ago #52523 by Kim081
Replied by Kim081 on topic OH Sandi!
Thanks so much Sandi for everything. Your the best. You will be missed.
The following user(s) said Thank You: Sandi
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9 years 8 months ago #52551 by DeeDee Marie
Replied by DeeDee Marie on topic OH Sandi!
Sandy, I am a bit slow too since I just read all of these posts!! So, I know it has been hard for you to continually monitor everyone!!

I do know from the very beginning with my ITP, you were the one to keep my hopes up and to keep me going. I think that it is now time to spend time on yourself. Please do check in and let us know how you are doing. You will always be on my mind and I will worry about you, too.

Dee Dee
The following user(s) said Thank You: Sandi
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 8 months ago #52614 by Sandi
Replied by Sandi on topic OH Sandi!
They are still working on my replacement. It's taking a bit longer than I thought. So, you're all still stuck with me for now!
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9 years 8 months ago #52622 by CindyL
Replied by CindyL on topic OH Sandi!
Yea! Though I'm sure whoever replaces you will do as good a job!
The following user(s) said Thank You: Sandi
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9 years 8 months ago #52637 by Winnifred
Replied by Winnifred on topic OH Sandi!
Whoohoo Stuck with Sandi for a while longer!



I am sure who ever is replacing you will be an asset to the board. It just won't be the same without you! The forum sure has changed over the years! The names of people have changed yet there was always one constant! Her name was Sandi even my daughter remembers her by name!
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 8 months ago #52641 by Sandi
Replied by Sandi on topic OH Sandi!
Yeah, I've been here for 18 years. Yikes!
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9 years 8 months ago #52642 by DeeDee Marie
Replied by DeeDee Marie on topic OH Sandi!
Sandy,

Now they are seeing how hard it is to replace you!! You have so much knowledge and you have been so dedicated!! Good luck to the PDSA administration!
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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