Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Are Any of You Attending the Conference in Calif.?

More
11 years 3 months ago #41872 by DeeDee Marie
Are Any of You Attending the Conference in Calif.? was created by DeeDee Marie
Hi,

Just wanted to know if any of you are attending the conference in California?. Since I live not too far from the conference, I've decided to attend just the two-day event. I can drive from my home. If you are, please post as I would surely like to meet some of you.

I just decided before the deadline and price went up!! I've been dealing with a "frozen" shoulder since having rotator cuff surgery and am finally starting to see some progress. I wouldn't wish this disorder on anyone!! My physical therapist seems to think it could be related to my ITP; it was actually worse than the surgery!!

Dee Dee
More
11 years 3 months ago #41878 by Winnifred
Replied by Winnifred on topic Are Any of You Attending the Conference in Calif.?
I was thinking about it but too much hassle. First I need a passport than I have to book time off of work than request vacation pay. lol Not sure my credit card would take a booking. (i'm a shopaholic!)


That said the doctor that ran the study I was a part of is speaking there! For that reason alone I really do want to attend!
More
11 years 3 months ago #41880 by DeeDee Marie
Replied by DeeDee Marie on topic Are Any of You Attending the Conference in Calif.?
Winnifred,

That would be great if you do decide to come. I attended the one in Colorado a couple of years ago. This one is so close, I figured I might as well go!

Is the doctor from Canada Dr. Donald M. Arnold? I noticed him on the speaker's list. They also have the Canadian patient advocacy meeting on Friday.

If you do attend, let me know and so we can meet up. I will be there by myself.

Dee Dee
More
11 years 3 months ago #41884 by Winnifred
Replied by Winnifred on topic Are Any of You Attending the Conference in Calif.?
Dr. Arnold nice young doctor! Good on the eyes! lol But yes he was the doctor I saw for the Rituximab study I was in.

I found him very easy going and talk too you not at you! The only doctor I have met that was glad I still had my spleen! (you had to have it for the study!)


I still have my official lab rat t-shirt I made when i did the study. He signed it for me. I was supposed to make him one but never did not sure why.


The advocacy meeting would interesting for me not only as a patient but the fact that I am a nurse as well!
More
11 years 3 months ago #41892 by DeeDee Marie
Replied by DeeDee Marie on topic Are Any of You Attending the Conference in Calif.?
I saw Dr. Howard Liebman for a new medication study (similar to Rituximab) about 4 years ago. I was qualified to be in the study--but then my platelets went up on their own to 33,000 and this alone disqualified me!

I wanted to talk to Dr. Liebman when I was in Colorado, but he wasn't as approachable at the conference so I never did find out how the study turned out. I did get to talk to Dr. Brussels at the conference and he gave me some very good advise.

There was another Canadian doctor at the conference who sat at our table during lunch--and I will have to say that he was so very nice!!
More
11 years 3 months ago #41905 by Vdeutsch85
Replied by Vdeutsch85 on topic Are Any of You Attending the Conference in Calif.?
My uncle called today to see if I wanted to stay with him and go to conference. I'm debating since I went last year but will keep you updated. I really enjoyed it last year and gained a lot of knowledge.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use