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ITP Tracker App for iPod

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 4 months ago - 12 years 4 months ago #32390 by Sandi
ITP Tracker App for iPod was created by Sandi
This was posted on the PDSA FB page. I thought I'd post it here.

itunes.apple.com/us/app/itp-tracker/id478745686?ls=1&mt=8
The following user(s) said Thank You: Tanya
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12 years 4 months ago #32399 by ania
Replied by ania on topic ITP Tracker App for iPod
Thanks Sandi, I will give it a try!
Ania
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12 years 4 months ago #32401 by alisonp
Replied by alisonp on topic ITP Tracker App for iPod
This is probably quite a good resource, but I think its out of date because it defines severity based on counts and not symptoms. Also (for me anyway) anything that makes me focus on counts is a bad thing, and I can't remember a person here yet who managed to recognise a useful pattern to them! :P
The following user(s) said Thank You: virginia@branscomgreen.com
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 4 months ago #32406 by Sandi
Replied by Sandi on topic ITP Tracker App for iPod

alisonp wrote: This is probably quite a good resource, but I think its out of date because it defines severity based on counts and not symptoms. Also (for me anyway) anything that makes me focus on counts is a bad thing, and I can't remember a person here yet who managed to recognise a useful pattern to them! :P


I agree, but some people are gung-ho to find a pattern no matter what. They have a need to keep track and chart, maybe so they feel some control. I suppose it is helpful to track counts during and after treatments.
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12 years 4 months ago #32423 by Vdeutsch85
Replied by Vdeutsch85 on topic ITP Tracker App for iPod
Unfortunately, I am one of those people that likes to track everything, but this goes along with being a type a personality ( complete control freak!) I love charts, graphs and other graphic organizers so I think I will love the app!
  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 4 months ago #32424 by dru
Replied by dru on topic ITP Tracker App for iPod
I like to track it all too even though it doesn't really make any sense. I'm type A too, need some sense of control. I will try the app too, thanks Sandi for posting about it.
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12 years 4 months ago #32589 by Winnifred
Replied by Winnifred on topic ITP Tracker App for iPod
Might be worth it just so you can have a record of your last few counts. Everyone either has an iPod or an Iphone saves you trying to remember anything!
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12 years 4 months ago #32680 by llbitty
Replied by llbitty on topic ITP Tracker App for iPod
I have been using this app for a while now & love the graph showing counts. When my number dropped low, my doctor showed me his graph on his computer, but mine was much better on the app & I just had to show him mine! You can also put appointments on the calendar & track treatments as well as symptoms & exercise.
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12 years 4 months ago #32691 by Vdeutsch85
Replied by Vdeutsch85 on topic ITP Tracker App for iPod
Since I am a statistical freak, I've been loving this app! I used to have my counts in papers but now just enter them in and voila a handy dandy graph appears! Since I've been switching meds and doseages it's been helpful to track how that effects my counts!
12 years 4 months ago #32706 by
Replied by on topic ITP Tracker App for iPod

alisonp: I think its out of date because it defines severity based on counts and not symptoms. (snip)
I can't remember a person here yet who managed to recognize a useful pattern to them!

sandi: I agree, but some people are gung-ho to find a pattern no matter what. They have a need to keep track and chart, maybe so they feel some control.


+1 on both of these statements. I stopped being overly concerned with counts awhile back.
I do keep track of counts/treatments in a digital log, but only to have a record over the years for reference.
However, it is symptoms that I look at for daily life.
No matter; If I wanted a graph, I'd use Excel. I'm not hipster enough to buy an Apple product. :)
.
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12 years 4 months ago #32825 by KayL
Replied by KayL on topic ITP Tracker App for iPod
Check to see if your doctor's office or clinic uses MyChart or another online application that gives you (limited) access to your medical chart.

I love MyChart because it directly posts all of my test results within a few days of having them done. Every once and awhile, for giggles, I look at the line graph of my platelet results. It tells me nothing, I haven't been able to decipher a pattern but it's fun to look at!
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12 years 4 months ago #32835 by Vdeutsch85
Replied by Vdeutsch85 on topic ITP Tracker App for iPod
Ha ha! I do behavior analysis with my students and there usually are patterns that you see within the graphs. However, my itp graph is all over the place! The only thing I see that is my counts were best during weeks with both cyclosporine and nplate
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11 years 10 months ago #38058 by yogesh
Replied by yogesh on topic ITP Tracker App for iPod
I believe this is a good idea to keep track of all your medical reports e.g count, medicines, diet. It will definitely help to check if there is any specific time interval when things go better or worse or if there is any specific diet or medicine that make any positive/negative feffect for future referenc.
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