My dr was not too keen on me weaning of Prednisone, but I had to convince her because of my side effects. I have been gaining alot of weight over the summer (I am now at my highest weight ever!) despite exercise and watching what I eat. (I do the calorie tracker daily and log everything I eat.) My glucose levels have really gone up alot too and I told my dr that I really did not want to end up diabetic and I felt like this would be worse than having kidney problems. My dr finally agreed, but upped my dose of Cellcept (3500 now) and put me on a acid blocker because I have been having pain under my left breast. I don't know how that can translate to acid reflux or heartburn, but she said many people experience it different ways and the pain I described is one of them. I've been on the acid blocker now one week and the pain seems to be getting worse, not better. I just put in a call to my primary dr and they don't seem to be concerned either and I go in for a physical next month so will address it then. As for the Prednisone, I started at 40 mg, then was down to 20 mg every other day (was at that dose since April) and now I am on 10 mg every other day for 2 weeks then I am DONE~three more pills to go!

The strange thing though, is that even though my weight is at my highest, my size in clothes has decreased so maybe the pounds will shed eventually! I can only hope!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)
Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg
Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...