FRIDAY, JULY 25, 2025

3:00 — 3:10 PMWelcome (Ballroom)
3:10 — 4:15 PM Parents and Teens Session
with Rachael Grace, MD, MMSc, and Michele Lambert, MD, MSTR
(Mt. Vernon meeting room – lobby level)
4:15 — 5:00 PMBreak
5:00 — 6:00 PMSobi-sponsored Educational Dinner Program and PDSA Trivia (Ballroom)
6:00 — 6:15 PMBreak
6:15 — 7:30 PMInquire & Inspire: Teen gathering
with Michael Tarantino, MD & staff
(Montpelier meeting room – lower level)


SATURDAY, JULY 26, 2025

8:00 — 9:00 AMBreakfast together (Stenton meeting room – lobby level)
9:00 — 9:15 AMGroup Picture; Photo booth
9:15 — 10:15 AMTeens and Advocacy: How you can make a difference
with Jim Romano, Care and Cure Partners
(Montpelier meeting room – lower level)
10:15 — 10:30 AMBreak
10:30 — 11:30 AMInquire & Inspire (breakout rooms – lobby level)
11:30 — 11:45 AMBreak
11:45 AM — 1:00 PMGroup Project (Montpelier meeting room – lower level)
1:00 — 2:00 PMLunch (Stenton meeting room – lobby level)
2:00 — 3:00 PMScavenger Hunt (Montpelier meeting room – lower level)
3:00 — 3:15 PMBreak
3:15 — 5:30 PMFree time (pool, courtyard, etc.)
5:30 — 6:30 PMBreak
6:30 — 7:30 PMSanofi-Sponsored Educational Dinner Program
Know What Counts: An Open Conversation about ITP
(Ballroom)
8:00 — 10:00 PMSaturday Evening Fun Event


SUNDAY, JULY 27, 2025

9:00 — 10:30 AMBreakfast together (Stenton meeting room – lobby level)
10:30 — 11:30 AMKeynote Speaker – Meeting the Challenge of Rare Disease on the Family: 25 Years of lessons learned (Ballroom)
11:30 AM — 12:45 PMLiving with ITP: Patients share their stories (Ballroom)
12:45 — 1:00 PMClosing Remarks (Ballroom)

*Agenda and speakers subject to change
**Breakout group session assignments will be listed on the back of name badges

View the full agenda here