FRIDAY, JULY 26 (PATIENT-FOCUSED DRUG DEVELOPMENT MEETING)
9:00 - 11:00 AM: Registration
11:00 - 11:10 AM: Welcome, Introductions & Opening Remarks
11:10 - 11:30 AM: Background on Immune Thrombocytopenia (ITP)
TOPIC 1: Effects of ITP that Matter Most to Patients and Caregivers
11:30 - 12:00 PM: Panel Discussion on Topic 1 where a panel of patients and caregivers will provide comments
12:00 - 1:00 PM: Facilitated Group discussion by patients and patient representatives from the audience will be invited to contribute to the discussion
1:00 - 1:45 PM: Lunch
TOPIC 2: Patient Perspectives on Current Approaches to Treatments
1:45 - 2:15 PM: Panel discussion on Topic 2 where a panel of patients and caregivers will provide comments on Topic 2
2:15 - 3:15 PM: Facilitated Group discussion by patients and patient representatives from the audience will be invited to contribute to the discussion
3:15 - 3:45 PM: Open Public Comments
3:15 - 3:45 PM: Closing Remarks
4:00 - 5:00 PM: Patient Mixer
SATURDAY, JULY 27
8:00 - 9:00 AM: Registration, Continental Breakfast, Exhibits open
9:00 - 10:15 AM: ITP Treatment Guidelines Update
10:15 - 10:30 AM: Break
10:30 - 11:30 AM: Inquire & Inspire: patients ask the experts & share personal journeys (small group sessions)
11:30 - 11:45 AM: Break
11:45 AM - 12:45 PM: Breakout Sessions
- Canadian Patients & Caregivers
- Children with ITP: treatments, school & sports
- ITP in Adults
12:45 - 1:45 PM: Lunch Break with PDSA Medical Advisors
1:45 - 2:45 PM: Clinical Trials: why participate?
2:45 - 3:00 PM: Break
3:00 - 4:00 PM: Breakout Sessions
- Inquire & Inspire: patients ask the experts & share personal journeys (small group sessions)
- Women & Girls: the unique challenges of living with a bleeding disorder
4:00 - 4:15 PM: Break
4:15 - 5:15 PM: PDSA Patient-Centered Research (two recipients of PDSA research awards will present their research)
5:15 - 5:30 PM: Announcements
5:30 - 7:00 PM: Break
7:00 - 8:00 PM: Dinner Program
8:00 - 10:00 PM: Saturday Evening Family Fun Event
SUNDAY, JULY 28
9:00 - 10:30 AM: Continental Breakfast
- Support Group Facilitators’ Breakfast (pre-registration requested)
10:30 - 11:30 AM: Keynote Address: Washington Update: What ITP Patients, Caregivers and Providers Need to Know About the Changing Healthcare Landscape
11:30 - 11:45 AM: Break
11:45AM - 12:45 PM: Communicating with your Doctor
12:45 - 1:00 PM: Closing Remarks
*A separate track for teens and young adults will run Friday & Saturday
**Agenda and speakers subject to change
