Season 2 Episode 38  |  November 14, 2026

When You Don’t Look Sick: The Invisible Weight of ITP

Diagnosed with ITP while raising two young children, Jen Grimes knows the fear and uncertainty of living with a condition others can’t always see. In this episode, the pediatric nurse and patient advocate shares the emotional toll behind the platelet counts, a moment in the ER when she had to speak up for herself, and how finding community helped her feel less alone. Hear what inspired Jen to turn her experience into advocacy and why she’s hopeful about the future of ITP care.

Lifestyle Tip:
Could a simple shift in how you move through your day help you avoid bumps and bruises? Barbara shares her approach.

Download  |  Transcript


PDSA Resources:

Advocacy

Find a Doctor

Treating ITP

ITP Conference

New Guideline on Emergency Care

Medical Emergency Card

PDSA Membership


← Back to Episodes