PDSA’s next annual ITP Conference will take place in Salt Lake City, Utah, on July 24–26, 2026. Stay tuned for more details!
Join us on the evening of July 26th for this year’s Saturday Fun Event with Philadelphia Sightseeing Tours. Hop aboard an open-top, double-decker bus for a 90-minute guided journey through America’s rich history. See nearly 30 iconic landmarks, including Independence Hall, the Liberty Bell, and Ben Franklin’s Grave.
Liberty Bell Center
526 Market Street, Philadelphia
Independence Hall
520 Chestnut Street, Philadelphia
Independence National Historic Park
101 S. Independence Mall West, Philadelphia
Congress Hall
Chestnut Street at 6th Street, Philadelphia
Old City Hall
Chestnut Street at 5th Street, Philadelphia
Rocky Statue and Rocky Steps
2600 Benjamin Franklin Parkway, Philadelphia
LOVE Sculpture
15th & Arch Streets, Philadelphia
Valley Forge National Historical Park
1400 N. Outer Line Drive, King of Prussia
Betsy Ross House (including Once Upon a Nation Storytelling Benches)
239 Arch Street, Philadelphia
The President’s House
600 Market Street, Philadelphia
Weitzman National Museum of American Jewish History
101 S. Independence Mall East, Philadelphia
Fireman’s Hall Museum
147 N. 2nd Street, Philadelphia
Edgar Allan Poe National Historic Site
532 N. 7th Street, Philadelphia
United States Mint
151 N. Independence Mall East, Philadelphia
Science History Institute
315 Chestnut Street, Philadelphia
Ryerss Museum and Library
7370 Central Avenue, Philadelphia
Founder’s Hall Museum at Girard College
2101 South College Avenue, Philadelphia
Wagner Free Institute of Science
1700 W. Montgomery Avenue, Philadelphia
Institute of Contemporary Art
118 S. 36th Street, Philadelphia
Franklin Square
200 N. 6th Street, Philadelphia
Bartram’s Garden
5400 Lindbergh Blvd, Philadelphia
Please Touch Museum
4321 Avenue of the Republic, Philadelphia
The Franklin Institute
222 N. 20th Street, Philadelphia
Philadelphia Zoo
3400 W. Girard Avenue, Philadelphia
Academy of Natural Sciences of Drexel University
1900 Benjamin Franklin Parkway, Philadelphia
Morris Arboretum & Gardens
100 E. Northwestern Avenue, Philadelphia
The African American Museum of Philadelphia
701 Arch Street, Philadelphia
Independence Seaport Museum
211 S. Columbus Blvd, Philadelphia
Museum of the American Revolution
101 S. 3rd Street, Philadelphia
National Constitution Center
525 Arch Street, Philadelphia
Philadelphia Museum of Art
2600 Benjamin Franklin Parkway, Philadelphia
Eastern State Penitentiary
2027 Fairmount Avenue, Philadelphia
Rodin Museum
2151 Benjamin Franklin Parkway, Philadelphia
Penn Museum
3260 South Street, Philadelphia
National Liberty Museum
321 Chestnut Street, Philadelphia
Sesame Place
100 Sesame Road, Langhorne, PA
LEGOLAND Discovery Center
500 W. Germantown Pike, Plymouth Meeting, PA
The Bucks County Children’s Museum
500 Union Square Drive, New Hope, PA
Adventure Aquarium
1 Riverside Drive, Camden, NJ
Reading Terminal Market
1136 Arch Street, #400, Philadelphia, PA
South 9th Street Italian Market
9th Street between Fitzwater and Wharton Streets
If you are interested in applying for a partial conference scholarship which is applied toward conference registration for two and your hotel room for three nights (Thursday, Friday, and Saturday), please follow these instructions:
The deadline for scholarship applications is June 7, 2025.
Please note: Travel costs are NOT included in the partial scholarship. Due to the limited number of scholarships available, they will be awarded on a first come, first served basis and preference will be given to first-time attendees.
You MUST be a paid PDSA member to be eligible for a conference scholarship.
If you are not a patient or caregiver of a patient, please use this link to register:
| 1:00 — 5:00 PM | Registration/Exhibits Open |
| 3:00 — 3:10 PM | Welcome |
| 3:10 — 4:15 PM |
Concurrent Sessions: • The Phases of ITP (overview to include 1st, 2nd, 3rd line treatments) • Navigating the Patient Journey: From newly diagnosed to chronic ITP • ITP in Teens: a medical overview (for teens and their parents) |
| 4:15 — 5:00 PM | Break |
| 5:00 — 6:00 PM | Sobi-sponsored Educational Dinner Program and PDSA Trivia |
| 6:00 — 6:15 PM | Break |
| 6:15 — 7:30 PM | Concurrent Sessions: Inquire & Inspire: patients ask the experts and share personal journeys (small group sessions) • Canadian Patients & Caregivers • For Teens Only • Other groups based on geographic location |
| 8:00 — 9:00 AM | Registration/Exhibits Open Continental Breakfast |
| 9:00 — 10:15 AM |
• The Pathophysiology of ITP: What we have learned these past 25 years • When to Involve an Immunologist in Your ITP Journey: A professional and patient perspective • When It’s Not ITP: Testing and genetics |
| 10:15 — 10:30 AM | Break |
| 10:30 — 11:30 AM | Concurrent Sessions: Inquire & Inspire: patients ask the experts and share personal journeys (small group sessions) • General ITP Questions • ITP in Children • For Women and Girls Only: Rare bleeding disorders during adolescence and pregnancy • ITP and Aging: Addressing the unique challenges |
| 11:30 — 11:45 AM | Break |
| 11:45 AM — 1:00 PM | Quality of Life in ITP: Fatigue, bleeding, oral health, cognitive impairment |
| 1:00 — 2:00 PM | Lunch Break with PDSA Medical Advisors |
| 2:00 — 3:00 PM | ITP: New targets, new agents, and new possibilities |
| 3:00 — 3:15 PM | Break |
| 3:15 — 4:15 PM | Concurrent Sessions: • ITP in Adults Q&A • ITP in Children Q&A • Challenges for Women with ITP Later in Life |
| 4:15 — 4:30 PM | Break |
| 4:30 — 5:15 PM | Access to Care: Navigating the maze of ITP treatments |
| 5:15 — 5:30 PM | Announcements |
| 5:30 — 6:30 PM | Break |
| 6:30 — 7:30 PM | Sanofi-sponsored Educational Dinner Program “Know What Counts: An Open Conversation about ITP” |
| 8:00 — 10:00 PM | Saturday Evening Fun Event |
| 9:00 — 10:30 AM | Continental Breakfast Support Group Facilitators’ Breakfast (pre-registration requested) |
| 10:30 — 11:30 AM | Keynote Presentation: Meeting the Challenge of Rare Disease in the Family: 25 Years of Lessons Learned |
| 11:30 AM — 12:45 PM | Living with ITP: Patients share their stories |
| 12:45 — 1:00 PM | Closing Remarks |
*Agenda and speakers subject to change
**
Meeting room details will be provided in-person at Registration.
| 3:00 — 3:10 PM | Welcome (Ballroom) |
| 3:10 — 4:15 PM |
Parents and Teens Session with Rachael Grace, MD, MMSc, and Michele Lambert, MD, MSTR (Mt. Vernon meeting room – lobby level) |
| 4:15 — 5:00 PM | Break |
| 5:00 — 6:00 PM | Sobi-sponsored Educational Dinner Program and PDSA Trivia (Ballroom) |
| 6:00 — 6:15 PM | Break |
| 6:15 — 7:30 PM | Inquire & Inspire: Teen gathering with Michael Tarantino, MD & staff (Montpelier meeting room – lower level) |
| 8:00 — 9:00 AM | Breakfast together (Stenton meeting room – lobby level) |
| 9:00 — 9:15 AM | Group Picture; Photo booth |
| 9:15 — 10:15 AM | Teens and Advocacy: How you can make a difference with Jim Romano, Care and Cure Partners (Montpelier meeting room – lower level) |
| 10:15 — 10:30 AM | Break |
| 10:30 — 11:30 AM | Inquire & Inspire (breakout rooms – lobby level) |
| 11:30 — 11:45 AM | Break |
| 11:45 AM — 1:00 PM | Group Project (Montpelier meeting room – lower level) |
| 1:00 — 2:00 PM | Lunch (Stenton meeting room – lobby level) |
| 2:00 — 3:00 PM | Scavenger Hunt (Montpelier meeting room – lower level) |
| 3:00 — 3:15 PM | Break |
| 3:15 — 5:30 PM | Free time (pool, courtyard, etc.) |
| 5:30 — 6:30 PM | Break |
| 6:30 — 7:30 PM | Sanofi-Sponsored Educational Dinner Program Know What Counts: An Open Conversation about ITP (Ballroom) |
| 8:00 — 10:00 PM | Saturday Evening Fun Event |
| 9:00 — 10:30 AM | Breakfast together (Stenton meeting room – lobby level) |
| 10:30 — 11:30 AM | Keynote Speaker – Meeting the Challenge of Rare Disease on the Family: 25 Years of lessons learned (Ballroom) |
| 11:30 AM — 12:45 PM | Living with ITP: Patients share their stories (Ballroom) |
| 12:45 — 1:00 PM | Closing Remarks (Ballroom) |
*Agenda and speakers subject to change
**Breakout group session assignments will be listed on the back of name badges
In 2025, PDSA hosted its 25th annual update on immune thrombocytopenia (ITP), marking a milestone event for patients, caregivers, and the medical community. Held July 25–27 in the heart of Philadelphia, Pennsylvania, the in-person conference took place at The Logan, Philadelphia, and offered a meaningful weekend of education, connection, and community.
Each year the ITP conference provides opportunities to hear the latest information about ITP, meet others who are coping and living with ITP and receive answers to your medical questions. Attendees also have the opportunity to engage with PDSA’s Medical Advisors, who are among the most experienced ITP doctors in the world. The ITP Conference continues to be a tremendous opportunity to hear and talk with these world-renowned experts.
In addition to the educational program and social events, PDSA’s conference features several small group sessions that give attendees an opportunity to get to know other patients and caregivers in an intimate environment. We also offer Kids Kamp, a fun and engaging program just for kids ages 5-12. Like conferences in the past, this year’s conference provided a separate track for teens and young adults, ensuring that every age group has a space to learn, share, and make meaningful connections.
A narrated double-decker bus tour introduced attendees to the iconic sights, history, and charm of Philadelphia—making it a memorable highlight of the conference.
Couldn’t be with us in Philadelphia? Though the experience of attending PDSA’s ITP Conference in person cannot be replaced, PDSA is pleased to share informational conference highlights for our members virtually in September for ITP Awareness Month, and our quarterly newsletter, The Platelet News.
PDSA’s next annual ITP Conference will take place in Salt Lake City, Utah, on July 24-26, 2026. Stay tuned for more details!
If you have any questions or require assistance, please contact the PDSA office at (440) 746-9003 or via email at pdsa@pdsa.org
Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003 | pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.
© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.
IMPORTANT!
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.