Will you join me to raise awareness for ITP and help celebrate my 50th birthday year?
$50 for 50 miles.
"Purple Pages for Platelets" on Sport Purple for Platelets Day
9/29/23, 5:00-7:30 pm PST
Organizer will demonstrate how to art journal and benefits for those with ITP diagnosis.
The focus will be on on creating art and the benefit to offset the issues having ITP.
Penn-Chop Blood Center for Patient Care and Discovery
Drs. Patrick Fogarty, Adam Cuker, and Douglass Cines, Penn Health and Children's Hospital of Philadelphia
Platelets on the Web
James N. George, M.D., University of Oklahoma Health Sciences Center
Resources and References for ITP Patients
Initiated by Robert McMillan, M.D.,The Scripps Research Institute
itpkids.org
Ellis Neufeld, M.D., PhD, Children’s Hospital Boston
Dr. Weil's ITP Article
Andrew Weil, M.D.
ITP in 2010: new agents and changing treatment paradigms
Drew Provan, M.D.
Understanding ITP (immune thrombocytopenia)
Terry Gernsheimer, M.D.
Many countries and some states have their own hematology associations. Below are regional organizations.
American Society of Hematology
Below is a list of questions and suggestions to enhance your healthcare provider selection and communication. Pick and choose.
The Agency for Healthcare Quality and Research, a division of the Department of Health and Human Services, published suggestions to help make the most of your trips to the doctor. See: "Quick Tips - When Talking with Your Doctor."
This page contains information for physicians who treat patients with ITP and other platelet disorders.
You can download patient booklets and other materials on our FREE Materials page. Some publications have been translated into languages other than English.
We would be happy to send you a packet that contains a copy of our booklets along with an order form to obtain additional copies.
PDSA maintains links to the latest treatment guidelines including the 2011 updated ASH guidelines and the 2010 International Consensus Report.
Thousands of patients visit PDSA's website every day to obtain quality information and meet other, like-minded patients. PDSA receives NO federal funding. Membership support is essential for us to sustain and grow our services for the ITP community. Become a PDSA member and receive additional benefits, including our 28-page quarterly newsletter, The Platelet News.
Links to Other Websites
PDSA was founded on the premise that informed patients are in a better position to understand their disease, have more meaningful dialogue with their doctors, and potentially have an improved opportunity to heal. Staying true to our mission, our online Resources Section was compiled in an effort to assist patients and their families.
Nineteen ITP patients and caregivers, along with three hematologists, and members of the American Society of Hematology (ASH) spent the day on Capitol Hill, meeting with 20 different congressional staff from 10 different states. We shared our experiences with ITP and asked for increased funding for medical research. Our stories sparked a lot of interest since most of them had not heard about PDSA or ITP prior to the meetings.
Click on the thumbnail images below to view them larger.
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PDSA presented the 15th annual update on immune thrombocytopenia (ITP) for patients, caregivers, and the medical community July 24-26 at the Gaylord Opryland Resort & Convention Center in Nashville, Tennessee.
Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003 | pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.
© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.
IMPORTANT!
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.