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apantoj1 wrote: Thank you! How I wish that was done in my case. Prolly we could have prevented my platelet to go down. Today my platelet is 44 after 2nd dose of IVIG. I'm being Discharge and follow up lab Monday.
My hema suggested splenectomy due to my platelet is not responding to promacta. I'm on observation for the next few weeks. I'm crossing my fingers I really chicken when it comes to surgery.
apantoj1 wrote: Thank you so much for your input. This is something I could talk to my hema. I know he is willing to listen. He admitted that he wished he could have just reduce the promacta dose instead of totally hold it which prolly caused this platelet crash.
My Hema also said he will try this route and prolly another Retuxan? If it's still not happy with response will go for Surgery route.
Can Retuxan be combined with promacta? Anyone with this experience?
After Retuxan treatment with no positive result platelet was 24. My Hema decided time to switch to Promacta
1. promacta Monday Apri 3, 2017 was my 1st dose @25mg
2. Day 5 of promacta- platelet 34
3. Day 15 of promacta- platelet 27
4. Day 27 of promacta- platelet 127
5. Day 41 of promacta- platelet 104
6. Week 9 of promacta- platelet 64
7. Week 11 of promacta- platelet 54 ( dose increased to50 mg)
8. Week 3 of promacta 50 mg- platelet 83
9. Week 5 of promacta 50 mg - platelet 94
Then had colitis flare up. Was given Rx flagyl/cipro and medrol pack. Week after platelet was 293 obviously from the steroid. CT of abdomen was and confirmed that colitis had resolved.
10. Week 9 of promacta 50 mg - platelet 193
11. Sept 5,2017 woke up with blood blister in mouth and petechia on lower extremities. platelet was 7. Given solumedrol IV. Platelet the next day 4. This is when I was admitted to get IVIG & solumedrol. Promacta continued @75 mg.
12. Sept 18,2017 Platelet 493. This is when promacta was put on hold x 3 days then platelet to 19. Promacta restarted back @75 mg.
13. This past Sunday woke up with blood blister in mouth again. Decided to go to ER. Platelet was 10 & admitted for ivig
14. Platelet today is 44 and no more signs of bleeding. Discharge from hospital, continue with promacta @75 mg and platelet lab on Monday.
apantoj1 wrote: 4. Day 27 of promacta- platelet 127
5. Day 41 of promacta- platelet 104
6. Week 9 of promacta- platelet 64
7. Week 11 of promacta- platelet 54 ( dose increased to50 mg)
8. Week 3 of promacta 50 mg- platelet 83
9. Week 5 of promacta 50 mg - platelet 94
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