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13 years 2 weeks ago #31801 by CindyL
Good thoughts was created by CindyL
Please send your thoughts and prayers to my mother who had a massive stroke early Saturday morning. She is in the hospital and is likely to be there for a while. Her speech is severely affected as is her left arm. Of course, it being the Easter weekend, none of the folks who do the assessments were working, so nothing will be done until tomorrow.

Glad everyone had a great Easter!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 weeks ago #31802 by Sandi
Replied by Sandi on topic Good thoughts
SO sorry to hear that, Cindy. How are you holding up?

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13 years 2 weeks ago #31808 by CindyL
Replied by CindyL on topic Good thoughts
Thanks, Sandi, I have good moments (and bad) and just was sitting here thinking about some of our conversations and realized that may all change. Having a bad moment right now. I am so used to calling her at night and it felt really weird not to last night.

We had my parents here for dinner on Friday and there was no indication that there was anything wrong. The good thing is, there was no bleeding on the brain when they did the CT. She is getting blood thinners as far as I know. My Dad is a little hard of hearing and doesn't get what people are saying a lot of time at the best of times. If mum's speech doesn't get better, he's going to have a hard time understanding her.

Still can't believe it happened. She is a big woman and in some ways this shouldn't be that much of a surprise.

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13 years 2 weeks ago #31809 by jeffrey71
Replied by jeffrey71 on topic Good thoughts
Hi Cindy!

I hope all is going better for your Mother and for you! You hang in there! Keep us posted on all fronts. don't forget to take care of yourself!

Jeffrey

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 weeks ago #31815 by Sandi
Replied by Sandi on topic Good thoughts
Keep hoping, Cindy. They can do amazing things these days with quick treatment action. How old is she?

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13 years 2 weeks ago #31819 by Christine
Replied by Christine on topic Good thoughts
Thinking of you Cindy along with all good wishes. Please take care of yourself as it may be a long haul for you also. Hugs Christine XXX

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13 years 2 weeks ago #31824 by CindyL
Replied by CindyL on topic Good thoughts
Had a nice visit with Mum last night. Her mind still seems to be sharp and she can answer questions. As long as the answers aren't too long, her speech isn't bad. We should find out more today once she gets assessed. She'll be 83 in July. She's already told the doctor she wants to go home! But then, she's been saying that since Sunday! :laugh:

It's just really hard to see her lying in that bed not being able to move without help. Going back up with my Dad this afternoon and then Steven will pick me up when he gets off work. Had a great sleep last night for the first time since Saturday.

Thanks for all the good thoughts. They are much appreciated!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 weeks ago #31834 by Sandi
Replied by Sandi on topic Good thoughts
Hang in there. There is a good chance she will improve with time and PT. I hope the assessment goes well....that should tell a lot!

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  • Melinda
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13 years 2 weeks ago #31840 by Melinda
Replied by Melinda on topic Good thoughts
Cindy I'm sorry to hear Mom had a massive stroke - I hope for good news and a quick recovery for her! Keeping you all in my thoughts.

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13 years 1 week ago #31963 by CindyL
Replied by CindyL on topic Good thoughts
What a difference a week and two days can make. Mom is doing a lot better. She can sort of stand up (with help) oh her feet. She is still very weak on the left side, and her arm still won't work. She has a wheelchair now, too. Hoping we can get her out and about the hospital in it. Still on pureed food, which she hates, but at least she is eating.

I am feeling a lot better for seeing her improve and so glad to have her still with us!

Thanks for all the good thoughts, and please keep them coming!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 1 week ago #31972 by Sandi
Replied by Sandi on topic Good thoughts
That's good news, Cindy! I hope she continues to improve. Rehab can make a difference too.

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13 years 1 week ago #31981 by CindyL
Replied by CindyL on topic Good thoughts
Thanks, Sandi! Yeah, it's great news! We're so happy. I'm still seeing some damages from the stroke, but at least she is still with us. We know it's still going to be a long slow process, but we're ready.

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  • Melinda
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13 years 1 week ago #31982 by Melinda
Replied by Melinda on topic Good thoughts
Cindy you put a smile on my face - happy to hear Mom is doing so well! As you said it will be a slow process, but she is making strides all ready!

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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13 years 1 week ago #31991 by dru
Replied by dru on topic Good thoughts
Cindy, that is great news. Some therapy will help her with some of those issues. Glad she is much better!
The following user(s) said Thank You: CindyL

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13 years 2 days ago #32063 by CindyL
Replied by CindyL on topic Good thoughts
Well, got some good news and some not so good news yesterday. Mum is off the pureed food and on to minced food, like real mashed potatoes and can have regular drinks.

However, the not so great news is, at my doctor's appt, who is also my parents' dr., I asked him how he thought she was doing. He said she is doing good, but doesn't think she'll regain the use of her left arm. I wasn't expecting to hear that. :( He said, the main thing is to get her up and walking more. I agree there! The last two days that I've been there, she hasn't wanted to get out of bed. Hopefully today, she'll be up out of bed!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 days ago #32066 by Sandi
Replied by Sandi on topic Good thoughts
Cindy - your doctor may well be right, but no one can predict the recovery of a stroke patient.

I hope she gets out of bed too! She needs a coach and a cheer leader!

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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13 years 2 days ago #32072 by dru
Replied by dru on topic Good thoughts
I'm an occupational therapist and have worked with people who have had strokes. Even if she does not get full use of her left arm back she should be able to do everything she needs/wants to do. A combination of using adaptive equipment and learning different ways to do things wll help. It is common for people to get down or depressed after a stroke so you can do alot toward keeping her spirits up. Hope you can get her up today!
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12 years 11 months ago #32139 by CindyL
Replied by CindyL on topic Good thoughts
So far, that's one thing I can say about Mum is that she hasn't gotten depressed. She'd like to see us all go out for a nice dinner when she gets out of the hospital.

She was pretty sleepy last night when Steven and I went up to see her; but that's probably because she hadn't been out of bed all day. She didn't want to get up. The rehab guys will have her up today, I bet!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago #32142 by Sandi
Replied by Sandi on topic Good thoughts
Attitude is everything, so if she is looking forward to things, she's a step ahead! Glad she's doing okay so far. Keep the updates coming!

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12 years 11 months ago #32216 by CindyL
Replied by CindyL on topic Good thoughts
More good news; she moved her thumb on the paralyzed hand the other day. She doesn't remember doing it, but the nurse saw it. When the nurse asked her to squeeze her hand, she couldn't. But it's starting to move, that's the main thing!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago #32217 by Sandi
Replied by Sandi on topic Good thoughts
Great! Glad to hear it.

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 11 months ago #32227 by dru
Replied by dru on topic Good thoughts
That is very encouraging news!

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12 years 11 months ago #32229 by CindyL
Replied by CindyL on topic Good thoughts
We're pretty excited, Mum too. She keeps talking to the hand, willing it to do what she wants and cursing at it when it doesn't. :laugh:

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12 years 11 months ago #32250 by CindyL
Replied by CindyL on topic Good thoughts
Mom walked 30m yesterday with a walker and her two rehab guys on either side of her! She said it scared her, but after being in bed for a month, that doesn't surprise me. My only concern with the walker is, how safe it is since her left arm is still useless and she can't hold on to it.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago - 12 years 11 months ago #32251 by Sandi
Replied by Sandi on topic Good thoughts
That's great, Cindy! Hopefully, they don't let her use the walker by herself for a while.

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12 years 11 months ago #32258 by CindyL
Replied by CindyL on topic Good thoughts
Dad says she walked yesterday too and did pretty good.

She finally has been moved to the rehab floor! Not impressed with the nursing staff there. She waited 20 minutes to go pee, and even then I had to go to the desk and remind them she had rung. Then, when they did come in to take her, one of the nurse's said, "I forgot we put her in the wheelchair. hehe" And she couldn't remember putting the seat belt on her! Duh! I hope she has better nurses today! She had a bit of a panic attack when my dad left yesterday. We figure it was just the move to a new floor and new routine. She'll have to go to the dining room for her meals on this floor, but I think that's a good thing.

I hope she gets on regular food soon; doing up her meals for the week was hard. She didn't want much of what was on the menus. There's at least two days that she didn't order any lunch but asked me to make her a ham sandwich. Dad has to make one on the other day. I just have to remember what day that is! I think it's Friday.

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12 years 11 months ago #32263 by Winnifred
Replied by Winnifred on topic Good thoughts
Just reading this post now. Sorry to hear sounds like she is doing pretty good. Recovery can take quite a while. And like someone said on another post attitude is everything.

Sending a big internet hug your way! Don't forget to take time for yourself. People tend to ignore themselves in this type of situation and that is not good! So do for your mom as well as yourself ok!!

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12 years 11 months ago #32278 by CindyL
Replied by CindyL on topic Good thoughts
Thanks, Julia! She is doing very well considering. She got through the Cancer 7 years ago, I'm sure she'll get through this too. It just might take a little longer.

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12 years 11 months ago #32404 by CindyL
Replied by CindyL on topic Good thoughts
Mum continues to do well with her rehab. She is working really hard on her arm which is starting to work again. She is walking with a walker in the gym with assistance. Her speech comes and goes; when she's tired, it's really hard to understand her. A doctor was in her room yesterday when Steven and I got there and he was saying they generally give stroke patients a 6 month recovery time line. It could be longer or it could be shorter. He said not everyone totally recovers and some do. We just take her recovery one day at a time.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago #32421 by Sandi
Replied by Sandi on topic Good thoughts
Cindy - it really sounds good so far....promising! Any improvement at this point just means there's room for lots more.

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