We have received your submission and will be in contact with you shortly.

If you have any questions or comments, please feel free to contact us by email at pdsa@pdsa.org or by calling 1-877-528-3538.

Thank you, The PDSA Staff

Eligibility

Campaign open to anyone individual living with immune thrombocytopenia (ITP), or a parent caregiver of a child/teen with ITP. Applicants must be age 18 or older by May 1, 2016. Teens and children younger than age 18, required to obtain consent from a parent or legal guardian.

Contest Timeline

Submissions can be made from now through June 21, 2016, at 5pm EST.  Selected videos will be announced by the end of June, 2016.

Rules

No purchase necessary to enter or be chosen. Void where prohibited or restricted by law.

All entrants must complete this entry form and upload video by close of submissions. By submitting an entry for the Be the Voice for ITP^SM Patient Video Campaign, submitters agree to the following legal considerations:

• Entrants agree to irrevocably allow Platelet Disorder Support Association (PDSA) to post campaign-related materials free of charge on its website, partner websites, social media channels or other venues where campaign material shall be promoted, royalty-free. Entrants acknowledge they are the legal owner of all materials submitted for consideration.
• Materials submitted may be published in the public domain, royalty-free, by Platelet Disorder Support Association (PDSA), in conjunction with promotions of this campaign. All efforts on the part of Platelet Disorder Support Association (PDSA) will be in good faith to maintain correct acknowledgment of the submitter.
• Platelet Disorder Support Association (PDSA) reserves the right to accept or decline any materials submitted.
• Entrants agree that Submission Materials shall not contain, include or involve any obscenity, crude, vulgar or offensive images, or any other content deemed inappropriate by Platelet Disorder Support Association.

As part of PDSA’s ongoing commitment to patient advocacy and raising ITP awareness, ITP Conference 2016 will feature videos before each conference session with a question specific to that topic of discussion.  All of the videos will be from people who could not attend the conference in-person.  Here’s how you can Be the voice for ITP^SM:

Create a 30-90 second video on your smartphone, tablet, computer or video camera

1. Tell us your name and how long you’ve had ITP (or how long you have been affected by ITP).
2. Ask your question for the experts on one of the following topics:
   • The ABC’s of ITP: How Much Do You Really Know about this Autoimmune Bleeding Disorder?
   • Children with ITP: Treatments, School & Sports
   • For Teens Only
   • Treating ITP: Balancing Risks vs. Benefits
     • Corticosteroids
     • Rituximab
     • Romiplostim
     • Chemotherapy
     • Eltrombopag
     • IVIg
     • Immunosuppressants
     • Splenectomy
     • Watchful Waiting
   • Top Concerns for ITP Patients: From Fatigue to Vaccines
   • For Women and Girls Only: Bleeding Disorders & Reproductive Issues
   • Care for the Caregiver
   • Communicating With Your Doctor: What Every ITP Patient Wants Their Doctor to Know
   • ITP in Adults: Q & A
   • ITP in Children: Q & A
   • Can We Cure ITP? Research that Considers Patients' Needs
   • Living with ITP: Patients share their stories
3. State one thing you want people to know about living life with ITP.
4. Submit your video online by clicking the button below.
5. Like & Share this page to make the world #ITPaware.

 
In appreciation for helping us make the World of ITP a more manageable place to be, originators of videos selected for each topic will receive a complimentary jump drive with videos from ITP Conference 2016 sessions.
 * This program was partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award. 

Submit Your Video

Review campaign eligibility and rules here

PDSA will present the 16th annual update on immune thrombocytopenia (ITP) for patients, caregivers, and the medical community July 8-10 at the beautiful Hilton Orlando Bonnet Creek in Orlando, Florida. Our three-day program is not only an important update on information about immune thrombocytopenia (ITP), but it is also a chance to meet others affected by ITP. You will also have the opportunity to ask your questions to PDSA's medical advisors, some of the most experienced ITP doctors in the world. You don’t want to miss out on this tremendous opportunity to hear and talk with these world-renowned experts.

Each year the conference provides opportunities to hear the latest information about ITP, meet others who are coping with ITP, and receive answers to your questions. A highlight to this weekend will be a patient mixer on Friday evening and a special family-oriented party Saturday evening. PDSA realizes how important it is to offer patients and families a respite from dealing with a chronic illness while bringing a little joy and laughter into their lives. In addition to the educational programs and social events, we will have programs for children at our Kid’s Kamp for all children ages 5 and up. New this year is a separate track for teens and young adults.