The Westin Seattle
1900 5th Avenue
Seattle, WA 98101
The Westin Seattle is located approximately 13 miles from the Seattle-Tacoma International Airport (SEA). The hotel does not offer shuttle service but there are the following forms of transportation available:
Off-site parking is $9/hour while on-site parking (self) is $50/day. Valet parking is $60/day.
Self/valet parking are offered in adjacent garage with hourly/daily rates. Overnight rates include in/out privileges.
More than 160 attendees, from 10 countries and 25 states, traveled to Seattle, Washington for the invaluable opportunity to, once again, gather as a community, reconnect with and learn from one another, and reap the natural benefits of this shared experience. A robust agenda of both large and small group sessions featured PDSA’s Medical Advisors and other medical professionals and offered our attendees a wealth of information.
Check out our gallery of photos from ITP Conference 2022!
On-Demand Content Available to PDSA Members
PDSA is pleased to offer its members exclusive access to select recorded content from ITP Conference 2022 (held in Seattle, Washington, this past July) and a special Virtual Q & A Webinar featuring ITP Specialists from the United States and United Kingdom (held in partnership with the ITP Support Association at the conclusion of ITP Awareness Month and Global ITP Awareness Week.)
The on-demand content will be available to PDSA Members on our ITP Conference platform through October 31, 2022.
David George Brooke - That Gratitude Guy, has been a speaker, coach, and best-selling author for over 25 years. He is a former Nordstrom store manager and has managed in the corporate world for over 30 years. His published works include “That Gratitude Guy’s Daily Gratitude Journal”, “Monday Morning Minutes: 100 Messages of Gratitude”, “Six-Word Lessons to Embrace Gratitude” and a number of other books on gratitude. As a result of his passion for gratitude he has presented over 750 speeches & workshops in the past 8 years, including over 100 Zoom presentations in the last 18 months. He travels nationally and internationally to deliver this important message. He has over 1500 gratitude videos on YouTube, and over 1500 subscribers. Thousands have seen his message, and he is now considered a leading authority on how living a life of gratitude can enhance and improve your life both personally and professionally. He resides in Seattle, Washington.
Dr. James Bussel is Professor of Pediatrics, Medicine, and Obstetrics at the Weill Medical College of Cornell University in New York City. His training was initiated at Yale, continued at Columbia College of Physicians and Surgeons, then he completed a Pediatric Residency at Cincinnati Children's Hospital, and a Fellowship in Pediatric Hematology/Oncology at the combined Cornell/Memorial Sloan Kettering program. The great majority of Dr. Bussel's publications are centered around diagnosis and especially management of patients with ITP, including children with ITP, adults with ITP, pregnant women with ITP, HIV infected patients with thrombocytopenia, and fetuses affected by autoimmune and alloimmune thrombocytopenia. He has worked with IVIg, IV anti-D, rituximab, and most recently the thrombopoietic agents. Dr. Bussel also serves on the PDSA Board of Medical Advisors.
Dr. Terry Gernsheimer is Professor of Medicine at the University of Washington School of Medicine, Medical Director of the Platelet Antibody Laboratory at the Puget Sound Blood Center, and Director of Transfusion Services for the University of Washington Medical Center and the Seattle Cancer Care Alliance. Dr. Gernsheimer's research focuses on the pathophysiology and treatment of immune platelet disorders and pathologic immune responses associated with transfusion. She has clinical research interest in transfusion management of the hematopoietic stem cell transplant patient and surgical bleeding in patients undergoing solid organ transplant and cardiovascular procedures. She has made significant contributions toward understanding the pathophysiology and management of auto-immune thrombocytopenic purpura (ITP). Dr. Gernsheimer serves on the PDSA Board of Medical Advisors.
Dr. Easter Ho is the owner of Think Functional Medicine, an integrative and functional oncology clinic in Seattle, WA. She brings together a functional medicine approach and palliative cancer care. Her goal is to see her patients comfortable, nourished, and happy while going through chemotherapy. She is the designated integrative oncology physician at Lifespring Cancer Treatment Center located in Seattle, WA and Seattle Integrative Cancer Center in Renton, WA. In addition to her passion for integrative oncology, Dr. Ho's mission is to deliver preventative and wellness medicine throughout the world.
Dr. Sioban Keel is board certified hematologist at Seattle Cancer Care Alliance and an associate professor of Hematology and Medicine at University of Washington. Dr. Keel believes that excellent medical care requires a combination of up-to-date knowledge and compassionate, individualized patient care. She recognizes that excellent care requires physicians who communicate effectively with and educate each patient so that they understand their condition and can be a partner in determining the best treatment plan. Dr. Keel earned her M.D. at the University of Minnesota. Her clinical and research interests include benign red blood cell disorders, iron metabolism, acquired plastic anemia, congenital marrow failure syndromes, neurovisceral porphyrias, hemostasis and thrombosis disorders.
Dr. Craig Kessler is professor of Medicine and Pathology and Section Chief of Hematology. He is also Director of the Coagulation Laboratory at Georgetown. A graduate of Tulane School of Medicine, Dr. Kessler received his specialty training in hematology and oncology at The Johns Hopkins Hospital. An international expert in the area of disorders of coagulation, Dr. Kessler has a particular interest in hemophilia. He also has expertise in the treatment of hematologic malignancies. Dr. Kessler also serves on the PDSA Board of Medical Advisors.
Dr. David Kuter is Chief of Hematology, Massachusetts General Hospital, Boston, Massachusetts. He earned a research doctorate (DPhil) at Magdalen College of Oxford University and a medical degree at Harvard Medical School. Dr. Kuter is Professor of Medicine at Harvard Medical School and Chief of Hematology at the Massachusetts General Hospital. In addition, Dr. Kuter sits on numerous national and international ITP committees and is board certified in Internal Medicine, Hematology, and Medical Oncology. He has dedicated years of effort to researching coagulopathies, anticoagulation, and platelet disorders. In recent years, Dr. Kuter has conducted groundbreaking research into the development of effective thrombopoietic agents. Dr. Kuter also serves on the PDSA Board of Medical Advisors.
Dr. Lambert is an Assistant Professor of Clinical Pediatrics at the Children’s Hospital of Philadelphia and Medical Director of the Special Coagulation Laboratory at CHOP. She graduated from UMDNJ-New Jersey Medical School (now Rutgers) and completed her pediatric residency at St. Christopher’s Hospital for Children followed by a year as Chief Resident. She then moved the Children’s Hospital of Philadelphia were she completed her fellowship in pediatric hematology/oncology. She received her Masters in Translational Medicine in 2001. Her research efforts have focused on understanding the control of platelet production by megakaryocytes (the cells that make platelets) and the ways in which genetics influence platelet function and number in various clinical scenarios including ITP and inherited platelet disorders. Dr. Lambert serves on the PDSA Board of Medical Advisors.
Dr. Howard Liebman is Professor of Medicine and Pathology at the University of Southern California (USC) Keck School of Medicine, Los Angeles, CA. He serves as Medical Director of the Special Hemostasis Laboratory at the USC NorrisComprehensiveCancerCenter and is Director of the fellowship program in hematology. Dr. Liebman received his medical degree from USC and completed his postgraduate training including a residency in internal medicine and fellowships in medical oncology and hematology at Los AngelesCounty - University of Southern California Medical Center. Dr. Liebman completed a research fellowship at TuftsUniversity - New EnglandMedicalCenter, Boston, MA, and held faculty positions at TuftsUniversity and BostonUniversity, before returning to USC. Dr. Liebman's research interests include clinical management and characterization of haemostatic and thrombotic disorders, management of autoimmune blood disorders, and clinical therapy of HIV and AIDS. He has authored or co-authored 85 peer-reviewed publications and 26 reviews and chapters. Dr. Liebman also serves on the PDSA Board of Medical Advisors.
Ishac Nazy, PhDDr. Ishac Nazy is an associate professor of Medicine, Hematology & Thromboembolism at McMaster University. His research interests include the specific interactions between antibodies and their target antigens on platelets, leading to thrombocytopenia and/or thrombosis. Heparin induced thrombocytopenia and immune thrombocytopenia are great models for identifying key factors involved in the pathogenesis of the immune responses leading to low platelet counts. Dr. Nazy's research focuses on the cellular and humoral immunity and the downstream effects on platelet physiology.
Diane J. Nugent, MDDr. Diane Nugent is a Clinical Professor, Department of Pediatrics, University of California, Irvine School of Medicine. She currently serves as Chair, Hematology, CHOC Children's Hospital of North Orange County, Orange, CA; Medical Director, Hematology and Blood and Donor Services CHOC Children's; and Division Chief, Hematology, CHOC Children's Specialists. Dr. Nugent is a nationally-recognized expert in pediatric hematology who specializes in blood disorders, bone marrow failure, bleeding and clotting disorders, anemias, and immune deficiencies. She is involved in clinical trials for rare blood disorders and is a principal investigator for regional hemophilia programs. Dr. Nugent has coauthored more than 100 journal articles and book chapters. She chairs review subcommittees at the National Heart Lung and Blood Institute (NHLB) at NIH in hematology. Dr. Nugent also participates in the Pediatric ITP Consortium of North America (ICON), a group of pediatric hematologists dedicated to improving the understanding, treatment, and quality of life (QOL) of pediatric ITP patients.
Dr. John Semple received his PhD in Immunology from Queen's University in 1986 and trained as a Post-Doctoral Fellow in the Banting and Best Department of Medical Research of the C.H. Best Institute, University of Toronto from 1986-1990. He joined St. Michael’s Hospital in 1990 and was a Senior Staff Scientist and Head of the Toronto Platelet Immunobiology Group at the Keenan Research Centre for Biomedical Sciences. He was also a Professor in the Departments of Pharmacology, Medicine and Laboratory Medicine and Pathobiology at the University of Toronto and an Adjunct Scientist with Canadian Blood Services. He joined Lund University in 2016 as a Professor of Transfusion Medicine of St. Michael’s Hospital. Dr. Semple has published over 120 papers on platelet immunology. His research activities include several areas including anti-platelet T cell responses in patients with acute and chronic ITP, the analysis of how platelet antigens are recognized by the immune system, and how platelets may act as immune-like cells that are responsible for initiating and perpetuating their own autoimmune demise. Dr. Semple also serves on the PDSA Board of Medical Advisors.
Dr. Michael Tarantino is a Professor of Pediatrics and Medicine at the University of Illinois College of Medicine-Peoria and Medical Director of the Bleeding & Clotting Disorders Institute. He received a doctoral degree in medicine from the University of Wisconsin School of Medicine in 1987. He completed an internship and residency at the University of Arizona Health Sciences Center and a Fellowship in Pediatric Hematology/Oncology at the University of Wisconsin School of Medicine. Dr. Tarantino first became interested in ITP during his residency in 1988. Since that time he has designed and/or participated in numerous clinical investigations related to ITP and other platelet disorders. He has authored numerous publications relevant to the diagnosis and management of ITP, especially as it occurs in children. He is also active in hemophilia and other bleeding disorders research, and founded The Bleeding and Clotting Disorders Institute in 2010. Dr. Tarantino serves on the PDSA Board of Medical Advisors.
Introduced in 2016, this program welcomes first-time attendees to the premier patient event. ITP Conference Ambassadors guide new guests through a weekend filled with in-depth disease information, treatment options, the latest research reports, access to world renowned specialists, and life-altering resources. Together they forge meaningful connections that eliminate the mystery and empower patients and caregivers to take control of ITP.
Cathy (ITP Warrior) and Raul (ITP Spouse) AldamaHometown: Laguna Niguel, CA
ITP Warrior & ITP Spouse since: 2006
Daily Inspiration:
Cathy: My family; and new travel adventures.
Raul: Today will be a great day if I let it be.
ITP Survival Tip:
Cathy: Seek out as much information as you can so you can be your best advocate.
Raul: Understand that you can control ITP more than it can control you.
Favorite thing about ITP Conference:
Cathy: hard to pick just one...so, all the great people...seeing old friends, and making new ones!...and, of course, the wealth of information!
Raul: It’s very encouraging to hear how optimistic the panel of experts are. The information and education and hope they provide is very encouraging.
Kim & Jim EverettHometown: Manitowoc, Wisconsin
ITP Warrior since: Primary ITP diagnosis 1983 – Lupus diagnosis 1993. Currently in remission since 2008, after 25 years refractory to treatment ITP.
Daily inspiration: Family, friends, and inspiration from others, who have worse challenges in life.
ITP Survival tip: Get out and live life, enjoy company of others and keep learning.
Favorite thing about ITP Conference: Meeting others, learning, and enjoying the location PDSA chooses for conferences.
Tammy FassettHometown: Seattle, WA
ITP Warrior since: 2006
Daily inspiration: Happiness is a choice.
ITP Survival tip: Ask as many questions as you need to, you are your best advocate.
Favorite thing about ITP Conference: Meeting all the people, hearing the stories, and knowing you are not alone.
Melissa HilsabeckHometown: Orange County, CA
ITP Warrior since: 2010
Daily Inspiration: Making people laugh and smile! You never know what someone else is going through so I believe a little smile can go a long way and laughter is the cure for everything.
ITP Survival Tip: Maintain an open communication relationship with your doctor so you feel just as involved in your treatment decision making process. Don't rush into anything you are uncomfortable with and research treatments before saying yes so you know they are right for you. Bonus Tip: PDSA has done all the research for you and they are available 24/7!
Favorite thing about ITP Conference: Seeing people from previous years continuing to stay involved in PDSA and sharing their experiences back in their hometowns. Having a meeting or putting on an event at least once a year really goes a long way. Hearing about them at the conference is very inspirational and serves as motivation to continually stay involved.
Susan and Dale PaynterHometown: Cambridge, ON, Canada
ITP Spouse & ITP Warrior since: 2010
Daily Inspiration:
Susan: Every day is a gift. Be kind. Be patient. Be positive. Tell your family you love them.
Dale: Having friends that are family from so many different parts of my life, and being able to add to those great times.
ITP Survival Tip:
Susan: Although Dale’s numbers are low, it does not slow him down. As a caregiver, try to be as supportive as possible. I have met Dale’s hematologist and of course, Dr. Arnold. Make sure appointments are kept. We assess if events/trips may affect him and/or how to do the event. Stay positive and realize that you are not alone. PDSA is always there to help.
Dale: This is just a small part of who you are. Don’t let ITP stop you from doing and being so many things. I’ve had positive experiences I couldn’t have possibly imagined a decade ago. Welcome to a group that you didn’t expect to be part of, but can’t imagine being without.
Favorite thing about ITP Conference:
Susan: Reuniting with our awesome PDSA family! Yes, we do consider you our family. The doctors are so approachable and always have time for you. Also, everyone has learned a lot over the past few years – even the doctors! Staff is SOOO helpful.
Dale: Sharing and learning about other people’s experiences on this journey. My first conference was in 2011 eight months after being diagnosed. There was nothing more reassuring about this new journey than being in a room of hundreds of other people who were going through the same thing as you – I wasn’t alone.
Dawn (ITP Mom) and John (ITP Warrior) Phillips Hometown: Sacramento, CA area
ITP Mom & ITP Warrior since: March 2014 when John was diagnosed and we have been raising awareness ever since.
Daily Inspiration:
Dawn: My daily inspiration is seeing the support and care offered on the PDSA Facebook page in real time for those with pressing concerns and questions at any time of day or night. I was once that person and am happy to help others now that I have the knowledge and experience. Being a voice and an extra set of ears was so important for my son as he traveled on his ITP journey. However, it was important for me to also care for myself while I cared for my son.
John: My daily inspiration is remembering all the times I have helped others who struggle with this frustrating disease and seeing a smile emerge as they feel a sense of relief and realize that they are not alone.
ITP Survival Tip:
Dawn: Keep calm and know that other people understand what you are going through and are there to answer your questions.
John: I advise others to take care of themselves and ask for help when needed.
Favorite thing about ITP Conference:
Dawn: The conferences have been such a blessing to me as I immediately found others who have been in my shoes and the staff have had warm smiles and endless resources for us, year after year. The conference is a fun, informative, therapeutic, and heartwarming experience that I highly recommend.
John: My favorite thing about the conference is being an ambassador to new participants and reuniting with the regular attendees as well.
Barbara PruittGreetings and welcome to your first PDSA conference! I guarantee you will not be disappointed and I hope I can help you navigate this busy weekend. I remember going to my first conference about 20 years ago. It was the first time I had met anyone with ITP. It was amazing! To meet other people that have “walked in my shoes”, that understood my fears and frustrations. The connections are immediate, and I hope you will make some of those connections this weekend.
I live in Coral Gables, Florida and was diagnosed with ITP at the age of 4. I have been through so many treatments it is hard to remember them all. But I am still here! I try to enjoy every day. There is so much to love about life. I don’t let ITP define me. I don’t fret over the things that I can’t do (due to the ITP), I look forward to what I can do! A positive outlook always helps!
You will learn a lot this weekend. I always learn something, and I get to see old friends and make new ones. And that is why I keep coming back every year.
I look forward to meeting you too!
Gentle hugs, Barbara Pruitt
Click on any of the thumbnail images below to view the photos in a slideshow.
You haven’t seen Washington until you’ve seen it at night! Please join us for this year’s Saturday Family Fun event on the evening of July 27th when Old Town Trolley Tours of Washington will take us on a Monuments by Moonlight tour of Washington, D.C. The approximately two-hour driving tour will take you right to some of the city’s most popular monuments and along the way you will be regaled with historical tales and anecdotes. A stop at the Lincoln Memorial will provide the opportunity to stretch your legs and briefly explore the area on foot.
Pickup and drop off will be at the conference hotel. Preregistrations and a $20 fee to offset the cost of the tour is required.
The annual update on immune thrombocytopenia (ITP) is for patients, caregivers, clinicians, researchers and industry.
The 19th annual ITP Conference will take place in Washington, D.C. from July 26-28, 2019 at the Fairmont Washington, D.C., Georgetown. The three-day conference begins with registration on Friday, July 26 at 9am, sessions start at 11am and the day will end at 5pm. Saturday, July 27 will begin with breakfast at 8am and sessions beginning at 9am and running until 5:30pm. A family fun event will take place on Saturday evening from 8pm to 10pm. Sunday’s session will begin with breakfast at 9am and wrapping up the day by 1pm.
There are various registration levels based on membership, age, days attending, etc. Anyone planning to attend sessions and/or meals needs to be registered for the conference. All registration rates can be found here.
While not required, it does make it convenient to stay at the conference hotel. If you plan to stay at the Fairmont Washington, D.C., Georgetown, please reserve your room as soon as possible to receive our special conference rate of $149.00 a night (king or queen/queen), plus tax. This rate is for 2 adults or a family of 4 with children under age 18. Triple and quad occupancy rate is $179.00 per night. This special PDSA rate is also available for conference attendees three days before and three days after the conference. This special rate applies to reservations that are made by July 3, 2019, as long as rooms at the hotel are available. We encourage you to make your hotel reservation early to ensure room availability. Reservations can be made online here, or by calling 800-441-1414 and referencing the group code Platelet Disorder Support Association.
Yes! Partial scholarships cover conference registration for two people and your hotel room for 2 nights (Friday and Saturday). The registration form (hyperlink to paper form) must be completed along with a letter describing your diagnosis, your financial need and the benefit you hope to derive from attending the conference. All materials are returned to Brenda Foster by email at bfoster@pdsa.org or via mail to PDSA, 8751 Brecksville Road, Suite 150, Cleveland, OH 44141. The deadline to apply for a partial scholarship is June 28, 2019. Please note that travel costs are not included in the partial scholarship. Due to the limited number of scholarships available, they will be awarded on a first come, first serve basis and preference is given to first-time attendees. You MUST be a PDSA member to be eligible for a scholarship. Scholarships are only awarded for full, 3-day conference registrations.
Upon registration at the conference, all attendees will receive a personalized name badge. These name badges must be worn at all times during the conference sessions and conference meals. Admission to these activities is restricted to badge holders only.
All sessions are casual attire and will be held in the hotel meeting rooms which are air-conditioned. However, please remember, everyone has their own personal preferences for temperature and it is often difficult to control temperatures in a hotel setting. It is recommended to bring along a light jacket or sweater to the session rooms. Dress for the Saturday evening family fun event is casual.
Details about the program can be found here.
A full list of all the speakers can be found here.
On the first day of the conference, Friday, July 26, PDSA is organizing an externally-led patient-focused drug development meeting (EL-PFDD). As North America’s leading organization dedicated to empowering ITP patients, PDSA has been approved by the U.S. Food and Drug Administration (FDA) to lead this workshop to enhance the understanding of ITP and the patient experience by regulators, researchers, clinicians and industry. More details about this important meeting can be found here.
A complementary one-hour dinner program will take place on Saturday evening at 7pm, sponsored by Amgen. While this dinner is free for all attendees, a separate registration is required to attend the dinner. You will receive an email with information on how to register for the dinner prior to the start of the conference. On-site registration for the dinner may be available on a very limited basis.
We encourage all attendees and their families to join us on Saturday evening from 8pm to 10pm as we have a relaxed, fun event in the conference space. There will be a cash bar available to adult attendees.
PDSA offers Kids Kamp for all registered conference attendees ages 5-12. Kamp will take place during all sessions of the conference on Friday, Saturday and Sunday. Children will go to meals and breaks with families. Healthy snacks and water will be provided during Kamp as well. If you have a child interested in attending Kamp, you will need to fill out a waiver prior to them participating.
Yes! We have a special teen track on Friday and Saturday, which is facilitated by our Medical Advisor and Pediatric Hematologist, Dr. Michael Tarantino and staff from his office. Any teen and young adult registered for the conference is welcome to participate in this track.
As part of your conference registration, lunch on Friday and Saturday, breakfast on Saturday and Sunday, a patient mixer on Friday and the Saturday evening family-fun event are all included in your registration fees.
While we try to offer a variety of food options at each meal, we cannot specifically cater to each dietary need. Please feel free to ask the hotel staff serving the meals for assistance in identifying options that are available for your special needs.
We do make every opportunity available for you to talk with the various experts presenting at the conference, although one-on-one scheduled meetings cannot be accommodated. During session breaks, you are encouraged to talk with the exhibitors in the exhibit hall and with the professionals and presenters, based on availability. There will be 2 small group sessions on Saturday with a hematologist where questions can be addressed as well.
Some of our sponsors will exhibit products and services directly related to ITP. Only vendors who have permission from PDSA will be allowed to distribute materials. You will have time between sessions and on breaks to speak with the exhibitors and industry representatives.
We are happy to answer any questions you might have about the conference. Please contact Jody Shy, Programs and Events Manager, at the PDSA office at 877-528-3538 or via email at jshy@pdsa.org. As always, check our website for the most up-to-date information about ITP Conference 2019.
ITP Conference 2019, which took place on July 26-28 in our Nations’ Capitol, gave patients and caregivers a rare opportunity to have their voices heard. On the first day of the conference, Friday, July 26, PDSA organized an externally-led patient-focused drug development meeting (EL-PFDD). As North America’s leading organization dedicated to empowering ITP patients, PDSA was approved by the U.S. Food and Drug Administration (FDA) to lead this workshop to enhance the understanding of ITP and the patient experience by regulators, researchers, clinicians and industry.
View the Voice of the Patient Report
The purpose of PFDD meetings is to hear directly from patients, their families, caregivers and patient advocates. The FDA has conducted over 25 disease-specific PFDD meetings to more systematically obtain the patient perspective on specific diseases and their treatments. The FDA recognizes that there are many more disease areas that can be addressed beyond the PFDD meetings planned and conducted by FDA, so they are giving patient advocacy organizations the opportunity to host their own PFDD meetings, with input and guidance from FDA. After submitting a letter of intent to FDA, PDSA was honored to be selected to organize and host an EL-PFDD as part of our annual ITP conference.
According to FDA “The patient perspective is critical in helping FDA understand the context in which regulatory decisions are made for new drugs. PFDD meetings give FDA and other key stakeholders, including medical product developers, health care providers, federal partners, an important opportunity to hear directly from patients, their families, caregivers, and patient advocates about the symptoms that matter most to them, the impact the disease has on patients’ daily lives, and patients’ experiences with currently available treatments. This input can inform FDA’s decisions and oversight both during drug development and during our review of a marketing application."
If you have attended any of PDSA’s past conferences, you know we always end the conference on Sunday with a patient panel, where patients share their personal journey with ITP. Always insightful and inspiring, if not often heartbreaking, patients learn a tremendous amount about their disease from other patients and caregivers. Over the years, we have had patients say to us “Why don’t you have these patient panels earlier in the conference so that the doctors can hear what it is like to live with ITP?” Well, think of the EL-PFDD program as a larger patient panel session. We had two patient panels of 4-6 patients/caregivers each who talked about the symptoms and burden of living with ITP and the impact of treatments and their side effects. PFDD meetings are also facilitated large group discussions where all patients and caregivers in the room have a chance to share what it is like to live with their condition; discuss the daily impact of ITP, tell stories to highlight their unmet needs, and describe the shortcomings and advantages of current therapies and treatments. As experts in what it is like to live with their condition, ITP patients and caregivers are uniquely positioned to inform the understanding of the therapeutic context for drug development and evaluation.
The EL-PFDD was a half-day meeting and ran from 11am-4pm on Friday, July 26. Following the EL-PFDD meeting, PDSA hosted a patient mixer from 4-5pm with appetizers and non-alcoholic beverages. With a number of new ITP drugs in the pipeline, this was a rare opportunity to have your voices heard and truly make an impact on the understanding of the unmet medical needs and quality of life issues that matter most to ITP patients.
AirportsThe Fairmont Hotel Washington, D.C., Georgetown is in close proximity to 3 airports in the Washington, D.C. area.
Uber, Lyft and taxi service rates vary depending on airport.
The hotel is just minutes from the Foggy Bottom and Dupont Circle Metro Stations.
The hotel does not have an airport shuttle.
Parking is available at the hotel for $56/day.
Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003 | pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.
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IMPORTANT!
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.