At PDSA, we’re dedicated to enhancing the lives of patients with immune thrombocytopenia (ITP) and other platelet disorders. Donations from thousands of individuals and numerous organizations, corporations and foundations have allowed us to serve the ITP community, promote their needs and unite them globally. But, without charitable gifts we can’t make progress.
Help us ensure ITP patients are empowered through education, awareness, research and support. Together we can make the world of ITP a more manageable place to be!
This website is owned and operated by or on behalf of the Platelet Disorder Support Association (PDSA). We recognize that visitors to our site may be concerned about the information they provide to us, and how we treat that information. The Platelet Disorder Support Association values its relationship with patients, families, supporters, and medical professionals. We are careful to protect that relationship by respecting your privacy and the information you share with us.
If you have questions about our Privacy Policy, please contact us:
Email: pdsa@pdsa.org
Phone: 440-746-9003
Mail: Platelet Disorder Support Association
8751 Brecksville Road, Suite 150
Cleveland, OH 44141
This privacy policy discloses the privacy practices for the Platelet Disorder Support Association’s websites. The “Site” encompasses the websites pdsa.org, itpconference.org and other sites owned and controlled by PDSA, and all associated PDSA web pages, including without limitation all content, materials, information, policies, modifications, updates, enhancements, revisions, new features, and or new web properties of such pages, along with all Site services (including Partner Services) provided through such websites and web pages. The purpose of the Site is to help address the unique needs of the platelet disorder community and to enable individuals within this community to connect with their peers and receive relevant information on managing their disease.
Information Collection, Use, and Sharing
We are the sole owners of the information collected on this site. We only have access to/collect information that you voluntarily give us via website, email or other direct contact from you. We will not sell or rent this information to anyone. We will use your information to respond to you, regarding the reason you contacted us, or send you PDSA updates and news. We will not share your information with any third party outside of our organization, other than as necessary to fulfill your request, e.g. to ship an order, or if you have agreed to participate in a research study, survey, or the ITP Registry. By providing such personal information, you agree to such uses.
Your Access to and Control Over Information
You may opt out of any future contacts from us at any time. You can do the following at any time by contacting us via the email address or phone number given on our website:
• See what data we have about you, if any.
• Change/correct any data we have about you.
• Have us delete any data we have about you.
• Express any concern you have about our use of your data.
Security
We take precautions to protect your information. When you submit sensitive information via the website, your information is protected both online and offline. Wherever we collect sensitive information (such as credit card data), that information is encrypted and transmitted to us in a secure way. You can verify this by looking for a closed lock icon at the bottom of your web browser, or looking for "https" at the beginning of the address of the web page. While we use encryption to protect sensitive information transmitted online, we also protect your information offline. Only employees who need the information to perform a specific job (for example, billing or customer service) are granted access to personally identifiable information. The computers/servers in which we store personally identifiable information are kept in a secure environment.
Other Information
Consent to Receive Notices Via the Site. By submitting any personally identifiable information to the Site, you are agreeing that PDSA may deliver all privacy and opt out notices to you electronically, including via email to the most recent email address you have provided to PDSA. By using the Site, you are agreeing that PDSA may deliver all privacy and opt out notices to you via posting on the Site.
Links. The Site may contain links to third party sites at which your personally identifiable information is collected and used. Your visit to any third party website is governed by the privacy and other policies applicable to that site. PDSA cannot control nor is it responsible for any such third party collection or use of your personally identifiable information or the content or policies of such sites, and PDSA expressly disclaims any liability related to such sites.
Web Logs and Other Forums. The Site may offer web logs, web postings, bulletin boards, chat rooms, newsgroups or other forums which permit users to interact online. Any information you transmit or post online in such forums will be made public and PDSA cannot control nor is it responsible for the use any third party may make of such information.
Terms of Use
Please read the following terms and conditions carefully. By using and accessing the Site, YOU ACKNOWLEDGE THAT YOU HAVE READ THIS AGREEMENT AND THAT YOU ACCEPT, WITHOUT MODIFICATION, THE TERMS AND CONDITIONS THEREOF. If you do not agree to the terms and conditions of this Agreement, or you do not meet any eligibility requirements established by PDSA for use of and access to the Site, you may not access, view, obtain goods or services from, or otherwise use the Site. You acknowledge that you are 13 years of age or older, and, if under the age of 18, are using this Web site under the supervision of a parent, legal guardian, or other responsible adult. Children under the age of 13 are not allowed to visit or otherwise use the Site. You agree that you are a patient with a platelet disorder or a parent, partner, caregiver or family member of a patient. You agree to the terms and conditions of the PDSA Privacy Policy, which details the ways in which we and other parties might use personal information that belongs to you.
Site Use
Restrictions on Use – You agree to use the Site only to post, send and receive messages, information and materials that are proper and related to the particular Site project database, forum, community, or other Site service you are using. You will not:
Disclaimers
No Reliance or Medical Advice – The information contained on the Site is intended to provide broad consumer understanding of platelet disorders. The information should not be considered complete and should not be used in place of a visit or consultation, or of otherwise securing the advice of your physician or other health care provider. You acknowledge that neither PDSA nor any Site users, while such users are participating in, accessing or otherwise using the Site, are engaged in rendering legal, medical, counseling, or other professional services or advice. We encourage you to seek appropriate professional advice from your physician or other health care professional promptly for any situation or problem that you may have. You should never disregard medical advice or delay seeking it because of something you have read on the Site.
Third Parties
Linked Sites Disclaimer – The Site may contain links to third party web sites, including without limitation other web sites providing articles or RSS feeds (“Linked Sites”). The Linked Sites are not under the control of PDSA and PDSA is not responsible for the contents of any Linked Site, including without limitation any link contained in a Linked Site, or any changes or updates to a Linked Site. Such links by the Site to sites maintained by third parties do not constitute an endorsement, guaranty, or warranty by PDSA, or any of its affiliates, of any third party or their content, nor the existence of a partnership, joint venture, agency, or other relationship between PDSA, or any of its affiliates, and any linked third party or their content. PDSA is not responsible for webcasting or any other form of transmission received from any Linked Site. PDSA is providing these links to you only as a convenience, and the inclusion of any link does not imply any association with its operators. You enter any Linked Site at your own risk, and should carefully review their terms of use, privacy statements and other conditions of use for such sites prior to using such sites.
Third Party Offer Disclaimer – By offering a number of third party products and services, including advertisements, on the Site, PDSA makes no warranties or representations of any kind as to the content or suitability of the subject matter of any web site, product or service from any such third party business or individual. PDSA expressly disclaims liability for direct, consequential, or incidental damages arising from the products, services, advertisements, actions, or web site content of these and any other third parties, and you waive any claims against PDSA for damages arising from such transactions or your reliance upon statements contained therein. You will not consider PDSA, nor will PDSA be construed as, a party to such transactions, whether or not we may have received some form of revenue or other remuneration in connection with the transaction. The merchants or other third parties operating such third party sites are responsible for all aspects of order processing, fulfillment, billing, and customer service. You agree that use of such merchants is AT YOUR SOLE RISK AND IS WITHOUT WARRANTIES OF ANY KIND BY US, EXPRESSED, IMPLIED, OR OTHERWISE INCLUDING WARRANTIES OF TITLE, FITNESS FOR PURPOSE, MERCHANTABILITY, AND/OR NONINFRINGEMENT. UNDER NO CIRCUMSTANCES IS PDSA LIABLE FOR ANY DAMAGES ARISING FROM THE TRANSACTIONS BETWEEN YOU AND MERCHANTS FOUND ON THE PDSA SITE OR FOR ANY INFORMATION APPEARING ON MERCHANT SITES OR ANY OTHER SITE LINKED FROM OR TO OUR SITE.
Indemnification
You will indemnify, defend (or settle) and hold harmless the PDSA Entities from all claims, actions, proceedings, losses, settlements, judgments, liabilities, suits, damages, disputes or demands, including without limitation any proceeding, investigation or claim by a self-regulatory organization, state or federal securities agency or commission, and including reasonable attorneys fees and all other costs, fees, and expenses (collectively, “Claims”) against any of the PDSA Entities to the fullest extent permitted by law arising out of or in connection with (1) your use of the Site or any Posted Materials, including without limitation your use of any Partner Services, or the use by any third party of such materials through you, (2) any Posted Materials provided or made available by you, and (3) any breach by you of your obligations under this Agreement, including without limitation any breach of your representations and warranties herein or within any applicable Partner Terms. In connection with any Claims that may give rise to your indemnification obligations as set forth above, the PDSA Entities shall have the exclusive right, at their option, to defend, compromise and/or settle the suit, action or proceeding, and you shall be bound by the determination of any suit, action or proceeding so defended or any compromise or settlement so effected. The remedies provided in this Section are not exclusive of and do not limit any other remedies that may be available to the PDSA Entities pursuant to this Section.
Posted Materials
License in Posted Materials – PDSA does not claim ownership of any of the Posted Materials. However, by posting, transmitting, uploading, inputting, providing or submitting any Posted Materials, you are granting PDSA, its affiliated companies and sublicensees a non-exclusive, royalty-free, perpetual, worldwide, irrevocable and fully sublicenseable license in and to such Posted Materials. For example, we have the right to: copy, distribute, transmit, display, perform, edit, translate, reformat and otherwise use Posted Materials, with or without attribution, and allow other Site users to do so as well, in all media known or hereafter developed. Where feasible, we will generally strive to include attribution provided by the poster in the event we post or use Posted Materials provided by such poster. You hereby waive all rights to any claim against PDSA for any alleged or actual infringements of any proprietary rights, rights of privacy and publicity, moral rights, and rights of attribution in connection with such Posted Materials.
Feedback – If you provide PDSA with Posted Materials such as comments, bug reports, feedback or modifications proposed by you to PDSA, the Site, or the goods and/or services provided through the Site (collectively, “Feedback”), then in addition to the license granted in all Posted Materials, PDSA will have the right to use such Feedback at PDSA’s discretion, including but not limited to incorporating such Feedback into the Site and the right to assign, license or otherwise use such Feedback. You hereby give PDSA a perpetual, irrevocable, non-exclusive license under all rights necessary to incorporate such Feedback and use such Feedback for any purpose.
No Compensation – No compensation will be paid with respect to the use of your Posted Materials, as provided herein. PDSA is under no obligation to post or use any Posted Materials you may provide and may remove any Posted Materials at any time and for any reason (or no reason) in PDSA’s sole discretion.
User Representations and Warranties – By posting, uploading, inputting, providing or submitting your Posted Materials, you (1) acknowledge that the Site is open to the public and therefore PDSA cannot control who will access Posted Materials, or the use that any third party will make of any such materials, (2) represent and warrant that you own or otherwise control all of the rights to your Posted Materials necessary to grant the licenses granted in this Section (Posted Materials), including, without limitation, all the rights necessary for you to provide, post, upload, input or submit the Posted Materials, whether such right is established through direct ownership, express authorization of the copyright owner of the Posted Materials, or otherwise under law, (3) represent and warrant that your posting of the Posted Materials does not and will not violate or infringe any third party right, including but not limited to any third party intellectual property right, right of publicity or privacy, or contractual right, (4) agree that PDSA shall not be liable to you or any third party for not accepting your Posted Materials for inclusion on the Site or for removing your Posted Materials, in whole or in part, from the Site, (5) agree that PDSA shall not be liable to you or any third party for any consequence, including but not limited to any harm or damage, that may arise from the inclusion of your Posted Materials on the Site, including but not limited to any harm or damage that may result from the use by any third party of your Posted Materials in any manner, and (6) represent and warrant that you agree to be bound by and follow any Partner Terms applicable to any Partner Services that you use, and that you will only use such Partner Services if you comply with any eligibility requirements for use of such Partner Services that may be established by PDSA or its respective Partners.
Your Responsibility for Posted Materials and PDSA’s Monitoring Rights – You will be responsible for your own Posted Materials and the consequences of posting or otherwise transmitting those Posted Materials. PDSA does not represent or guarantee the truthfulness, accuracy, privacy, security, or reliability of any Posted Materials posted or otherwise transmitted by Site users or endorse any opinions expressed by such users. PDSA has no obligation to monitor you or any other user’s use of the Site. PDSA reserves the right to review and monitor your use of the Site, including without limitation your use of any user ID and/or password in accessing the Site and any materials posted to or revised on the Site, and to remove any materials in its sole discretion. PDSA reserves the right to restrict or terminate your access to the Site, including, without limitation, your access to any or all of the services provided thereunder or your ability to use any Site user ID and/or password, at any time without notice if we believe you have violated this Agreement or are likely to violate this Agreement. Your sole remedy against PDSA in the event of a dispute arising out of this Agreement, the Site or your use thereof, is to terminate this Agreement by ceasing your use of the Site. In the event of termination of this Agreement, PDSA may delete and/or store, in its discretion, data associated with your use of the Site. PDSA may also change, suspend, or discontinue any aspect of the Site at any time, including the availability of any Site feature, database, or content.
Your Account
Confidentiality of Account and Password – You are responsible for maintaining the confidentiality of your account and password, if any, and for restricting access to your computer. You accept full responsibility and liability for all activities that occur under your account or password. PDSA reserves the right to refuse service, terminate accounts, or remove content in its sole discretion. For certain services made available by PDSA through this Site (“PDSA Services”), you may be required to register; as part of the registration process, you must select a user name, and in some cases you maybe required to agree to specific additional terms and conditions associated with the PDSA Services you wish to access. The information that you supply during any registration process must be accurate and complete and you agree to not (1) register under the name of another person, (2) choose a user name that PDSA deems offensive, or (3) choose a user name for the purposes of deceiving or misleading forums members and/or staff as to your true identity. You agree to not impersonate any other person, including any other PDSA forum member, any PDSA forum host or any PDSA staff.
Notification of Unauthorized Use/Ceasing Access – You shall notify PDSA immediately of any unauthorized use or threat of unauthorized use of your account or the Site or of any other breach or potential breach of security known to you with respect to your account or the Site, including without limitation any loss or compromise of any password, and will cooperate with PDSA in every reasonable way to help PDSA prevent the further unauthorized use, threat of unauthorized use, disclosure or threat of disclosure regarding the Site, your account and/or your password. You agree that immediately upon termination of your right to use the Site, or upon any earlier demand by PDSA at any time, you will cease all access and/or use of the Site, and will not attempt to access and/or use the Site.
Copyright and Other Intellectual Property
Site Ownership -The Site and all content, organization, graphics, design, compilation, magnetic translation, digital conversion, and other matters related to the Site are protected under applicable copyrights, trademarks, and other proprietary (including but not limited to intellectual property) rights pursuant to international conventions and U.S. and other copyright laws. The Site and all Site content is the property of PDSA and/or third party licensors, including users posting Posted Materials, and all right, title and interest in and to the Site and Site content will remain with PDSA or such third party licensors. Other product and company names mentioned herein may be the trademarks of their respective owners. The Site, including all Site content, is only for your personal, non-commercial use. You do not acquire ownership rights to any content, document, or other materials viewed through or posted on the Site. The posting of information or materials on the Site does not constitute a waiver of any right in such information and materials. You will abide by any and all additional copyright notices, information, or restrictions contained in any content on the Site. Any copying, republication, or redistribution of Site content, including by caching, framing, or similar means, is expressly prohibited without the prior written consent of PDSA and/or the respective intellectual property rights holder identified in the subject content.
Copyright Infringement Claims – PDSA respects the intellectual property rights of others and expects our users to do the same. The policy of PDSA is to terminate the accounts of repeat copyright offenders and other users who infringe upon the intellectual property rights of others. If you believe that your work has been copied in a way that constitutes copyright infringement, please provide PDSA with the following information required by the Online Copyright Infringement Liability Limitation Act of the Digital Millennium Copyright Act (“DMCA”), 17 U.S.C. § 512: (1) a physical or electronic signature of a person authorized to act on behalf of the owner of an exclusive right that is allegedly infringed; (2) identification of the copyright work claimed to have been infringed, or, if multiple copyrighted works at a single online site are covered by a single notification, a representative list of such works at that site; (3) identification of the material that is claimed to be infringing or to be the subject of infringing activity and that is to be removed or access to which is to be disabled, and information reasonably sufficient to permit us to locate the material; (4) information reasonably sufficient to permit us to contact the complaining party; (5) a statement that the complaining party has a good-faith belief that use of the material in the manner complained of is not authorized by the copyright owner, its agent, or the law; (6) a statement that the information in the notification is accurate, and under penalty of perjury, that the complaining party is authorized to act on behalf of the owner of an exclusive right that is allegedly infringed; and (7) any other materials or information as may be required by the DMCA as amended from time to time.
User Generated Content Terms of Use
The Platelet Disorder Support Association (PDSA) reaches out to social media users to seek their permission to feature select content on our various sites, social channels, and various promotional materials. You are reading this because PDSA has requested your permission to use your social media content in this way.
If you choose to allow us to use your social media content (“User Content”) by replying with the hashtag #YesPDSA, you agree to these Terms of Use.
You hereby grant PDSA license to use your User Content in any manner to be determined by PDSA’s sole discretion, including but not limited to on webpages and social media pages operated by PDSA, publications, and promotional e-mails, and in any and all other marketing, and promotional initiatives, and in any media now or hereafter known. PDSA may use, display, reproduce, distribute, transmit, create derivative works from, combinate with other materials, alter and/or edit your User Content in any manner in their sole discretion, with no obligation to you whatsoever.
Your grant PDSA the right to use your username, image, likeness, descriptions of you, location, or other identifying information in connection with any use of your User Content. PDSA will not use your full name in any usages of your User Content.
Last Updated on April 28,2022
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There are many treatments for ITP. All treatment options have different risks and benefits, and some can be toxic causing serious side effects. It is important to understand both the success rate and potential side effects before beginning a treatment.
The general types of conventional treatments include:
An ITP diagnosis and the low platelet count it causes are sometimes associated with a bacterial infection—and antibiotics used to fight the infection have been shown to raise platelet counts. There has been considerable research on the success of antibiotics used to treat the H. pylori (helicobacter pylori) bacteria infection in those diagnosed with ITP. The treatment and eradication of other infections can also help raise the platelet count.
Anti-RhoD (WinRho®) is an intravenous (IV) drug infusion used to elevate platelet counts temporarily, and can be repeated over a period of time for extended relief. Often used as a “first line” therapy, the shorter infusion time and often lower cost of Anti-RhoD can offer an advantage over intravenous immunoglobulin (IVIG) for some patients.
Select a treatment table to view or download below.
B-cell depletion by a monoclonal antibody (anti-CD20, rituximab [Rituxan®]) is a widely used treatment choice, but has not been approved by the Food and Drug Administration (FDA) to treat ITP. B-cell depletion works by disabling and changing B-cells, a type of white blood cell.
Select a treatment table to view or download below.
Various chemotherapy drugs, including vincristine (Oncovin®) and cyclophosphamide (Cytoxan®) have been used as a second or third-line treatment choice for chronic ITP patients. Each has a slightly different side effect profile. While they have been effective in a small percentage of cases, chemotherapy drugs can be quite toxic and have not been approved by the FDA to treat ITP.
Select a treatment table to view or download below.
Many doctors consider corticosteroids (steroids) for their initial approach for newly diagnosed patients. While corticosteroids (prednisone or dexamethasone) are a commonly used “front line” therapy and have been shown to increase the platelet count while being taken, the FDA has not approved them for the treatment of ITP. The type, dose and duration depend on the patient's particular condition and tolerance.
Select a treatment table to view or download below.
Immunosuppressants, including azathioprine (Imuran®), cyclosporine (Sandimmune®), diphenylsulfone (Dapsone®), Sirolimus (Rapamycin®), and mycophenolate mofetil (Cellcept®), are considered a second or third-line treatment for ITP. This class of drugs is used to treat other autoimmune diseases, including multiple sclerosis (MS) and lupus, but none have gained FDA approval to treat ITP.
Select a treatment table to view or download below.
BTK inhibitor rilzabrutinib (WAYRILZ™) is approved by the Food and Drug Administration (FDA) for adults with persistent or chronic immune thrombocytopenia (ITP) who have received a prior treatment that did not work well enough.
Intravenous immunoglobulin (IVIG) is a type of antibody treatment used as a “front line” therapy to temporarily elevate platelet counts. Although IVIG is not expected to result in a sustained, elevated platelet count, in rare cases this does occur and the drug can be repeated for longer lasting results. IVIG is manufactured by several companies, some of which have received FDA approval for its use in the treatment of ITP.
The synthetic androgen (male sex hormone) danazol (Danocrine®) is sometimes used to treat ITP when other treatments have failed. Danazol is considered a second-line treatment, used after other treatments are considered or fail.
Select a treatment table to view or download below.
A new approach to treating ITP is the use of a spleen tyrosine kinase (SYK) inhibitor. The agent fostamatinib disodium hexahydrate (TAVALISSE™) may slow the destruction of antibody-coated platelets in people with chronic ITP by specifically targeting SYK. Spleen tyrosine kinase (SYK) is part of a network of proteins (found in certain cells of the immune system) that triggers platelet destruction.
Second-line ITP treatment approach using platelet growth factors or thrombopoietin (TPO) receptor agonists. These agents, avatrombopag (Doptelet®), eltrombopag (Promacta®/Revolade®), and romiplostim (Nplate®), stimulate the bone marrow to produce more platelets. Once thought to be only a disease of platelet destruction, research advances have shown that many people with ITP also have a platelet production problem which is believed to be caused by the same antibodies and cells that attack the platelets.
Select a treatment table to view or download below.
This is a surgical procedure to remove the spleen. The spleen is a large blood filter, which for many people removes antibody-coated platelets. Theoretically, if the spleen is removed, the platelets will remain in circulation. However, there are other ways the body removes platelets, so this treatment sometimes fails to have a lasting effect.
Select a treatment table to view or download below.
More of a strategy than a treatment, ‘Watchful Waiting’ means choosing to live with you or your child's current platelet counts while carefully monitoring the disease and treatment options.
Select a treatment table to view or download below.
Treatment information does not represent an endorsement by PDSA or its medical advisors. For advice on your unique medical condition, please consult your healthcare provider.
For those with ITP, the primary focus is on feeling better. While numerous conventional treatment options may be recommended for the bleeding disorder—and new medications continue to be developed—many look to complementary medicine approaches to help manage symptoms and enhance their quality of life.
Relied on for thousands of years by those in pursuit of health and well being, complementary therapies are used today by about 40 percent of adults in the United States and they continue to grow in popularity. In fact, many doctors often incorporate an “integrative medicine” approach, combining complementary therapies with mainstream medical treatments for additional relief.
Unfortunately, there is very little scientific research on the use of complementary therapies, specifically for ITP. And, while some people have found these alternative approaches have helped, they also come with their own risks. To help understand complementary therapies, you should ask your doctor the same questions as any other treatment to understand the best approach for your condition.
There are many complementary therapies available and the options constantly change as treatments undergo testing. The National Center for Complementary and Integrative Health (NCCIH) at the National Institutes of Health (NIH) classifications of types of complementary health approaches used to treat a variety of conditions include:
(Information regarding complementary medicine therapies does not represent an endorsement by PDSA or its medical advisors. For advice on your unique medical condition, please consult your healthcare provider.)
There are many agencies in the US government with policies or services that can impact the lives of people with ITP and other platelet disorders. The Centers for Disease Control and Prevention (CDC), a division of the Department of Health and Human Services (HHS) provides information and establishes programs to monitor diseases and help protect our health. Another division of HHS, the Food and Drug Administration (FDA), approves new treatments and monitors the safety of those that are on the market. The National Heart Lung and Blood Institute (NHLBI), a part of the National Institutes of Health (NIH), funds education and research on blood diseases. The National Institute of Environmental Health Sciences (NIEHS), another part of the NIH, examines how the environment influences disease.
PDSA has contact with all of these agencies to promote awareness, advocate for more research, promote the approval of treatments, and monitor aspects of the environment that may cause or worsen ITP.
Present at the NIH - Caroline Kruse, PDSA’s Executive Director, spoke at the annual Public Interest Organization meeting of NHLBI.
Work with the CDC - PDSA staff attended the first ever conference on Blood Disorders in Public Health sponsored by the CDC.
Testify at FDA hearings - Joan Young, PDSA Founder, testified at the FDA hearings dealing with the approvals of the thrombopoietin mimetic treatments.
Communicate with the NIEHS - PDSA staff attended a meeting of the patient groups interested in environmental causes of disease. We also search publications from NIEHS to locate and communicate research findings impacting our group.
ITP is one of almost 100 different autoimmune diseases, conditions where the body attacks seemingly healthy tissue. About one in five people in the US have an autoimmune disease and it is in the top 10 leading causes of death in females younger than 64. Despite this huge public health issue, many policy makers do not fully understand the implications of this group of diseases. PDSA joins with other patient groups in the National Coalition of Autoimmune Patient Groups (NCAPG) and the American Association of Autoimmune Related Diseases to help bring attention and advocate for more research in this important, underserved population.
Sponsor congressional hearings - PDSA was one of the sponsors of the 2012 US Congressional briefing “The Multi-Generational Impact of Autoimmune Disease: America’s Silent Health Crisis.”
Heighten global awareness - PDSA staff attended the Non-Governmental Organization Health Committee meeting of the United Nations to bring global awareness to the financial and personal burdens of autoimmune diseases.
Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003 | pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.
© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.
IMPORTANT!
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.