In this issue of the e-news, we want to share with you the preliminary results of a research study that was presented at the 65th American Society of Hematology (ASH) Annual Meeting and Exposition held in San Diego, California, December 9-12, 2023, and involved PDSA staff and many of our medical advisors, in addition to several of PDSA’s patient members representing the voice of the ITP patient. This work was led by Donald Arnold, MD, one of PDSA’s medical advisors and his research associate Emily Sirotich.
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This e-newsletter is a publication of The Platelet Disorder Support Association. The information in this newsletter is for educational purposes only. For advice on your unique medical condition, please consult a health care professional. Contents:
PDSA HAPPENINGSNewsletter: We took our newsletter to the post office and it’s on its way to our members. It’s not too late to receive your copy. We will send the Fall 01 newsletter to our members who join or renew before the end of the year. Our newsletter is sent to everyone who contributes at least $25 per year to PDSA. For more information and to join PDSA go to http://www.pdsa.org/joinus.htm. You can join on-line or send a check or credit card number to PDSA, P.O. Box 61533, Potomac, MD 20859 Survey: We will close the survey at the end of December so we can add the latest answers and analyze the data. Every answer counts. We would like to get as many responses as possible so each category has sufficient data to give us meaningful results. Be sure to complete our survey at: http://www.pdsa.org/survey/ Thank you. ASH Conference: Several of us will be attending the American Society of Hematology conference in Orlando, Florida. The conference is from Dec. 7 – 10. PDSA will have a booth there (1183). We will attend as many of the sessions and read as many of the posters as possible. We will also meet the ITP researchers, pharmaceutical representatives and physicians interested in ITP. Then we will share what we learn with you via our next e-newsletter and our printed news. Stay tuned. SEROTONIN DRUGS AND PLATELETSThe headline in the November 2001 issue of Hem/Onc today reads, “Serotonin drugs may help after heart attack; they inhibit platelet activity” Researchers at Johns Hopkins studied a group of patients who underwent elective coronary artery stenting. They noticed that those who were treated for depression with SSRI’s had less platelet activity than those who did not. SSRI’s are selective serotonin reuptake inhibitors. They ease depression by keeping more of the body’s serotonin circulating in the blood stream. SSRI’s include Prozac, Zoloft, Paxil, Luvox, and Celexa along with sister drug, Serafem. The mechanisms for the SSRI and platelet connection are still unidentified although they don’t appear to inhibit platelet activity in the same way as some other known compounds. For more information on the seratonin/depression/platelet connection see our Summer, 1999 newsletter at http://www.pdsa.org/newsletter.htm. BEATING THE BLUESSeasonal affective disorder, or SAD is a type of depression that may set in as the days become shorter and our relationship with the sun becomes more transient. According to Dr. Andrew Weil, lack of sunlight may also decrease levels of serotonin, the neurotransmitter that influences mood. In Dr. Weil’s newsletter, SAD expert George Brainard of Thomas Jefferson University suggests the following lifestyle changes to help beat the SAD blues.
ANTHRAX AND TTPThe New York Times reported today that Leroy Richmond, a postal worker treated for Anthrax also developed what they suspected was TTP. TTP, like ITP is a low platelet disorder, however, it is much more likely to be fatal if not treated. Although the doctors felt that his low platelet condition was linked to anthrax they couldn’t be sure. The hospital treated Mr. Richmond with a combination of steroids and plasmapheresis and he is doing well. For the New York Times article go to: www.nytimes.com and search on anthrax and TTP. For information on TTP go to http://moon.ouhsc.edu/jgeorge/TTP.html HOLIDAY SUGGESTIONSWant an unusual gift for the holidays? Shop the Platelet Store. We have T-shirts, tote bags, zip duffels, vegetable knives, personalized note cards, platelet buddies, and more. Just go to http://www.itppeople.com/store/. Do you shop at Amazon? If you do, just click to Amazon through our site http://www.pdsa.org, http://www.itppeople.com/, or http://www.itppeople.com/store and PDSA will receive 5-15% of your purchase price. You pay no more and PDSA gets a welcome donation. Here’s our direct link: http://www.amazon.com/exec/obidos/redirect-home/itppeopleplace Shop IGIVE. If you shop the GAP on-line or LLBean, or any one of more than 200 affiliated stores, go to IGIVE first and PDSA will receive 5 – 15% of your purchase price. Links are on the same pages as above or go direct to: http://www.igive.com/PDS ITP HERBAL TREATMENT(advertisement) Get Well International is a company with over 40 years of research in its products by medical doctors and master herbalists. Dr. Ba Hoang’s medical thesis was on ITP. His supplements Blood-Well and Restor-Immune for ITP have been used successfully for many years. A healthy balanced body produces normal platelet counts. Many users of this program report less bruising, more energy, and platelet increase within 2-3 weeks. It is very cost effective and has had almost no side effects like the normal drug therapies. Information and testimonials can be found at http://www.getwellinternational.com or leave a message at 1-888-522-4372. For information on advertising in our e-news letter contact us at pdsa@pdsa.org. This e-newsletter is published by the Platelet Disorder Support Association, P.O. Box 61533, Potomac, MD, 20859, phone/fax: 1-87-Platelet or (301) 294-5967, web: http://www.pdsa.org/, e-mail: pdsa@pdsa.org |
This e-newsletter is a publication of The Platelet Disorder Support Association. The information in this newsletter is for educational purposes only. For advice on your unique medical condition, please consult a health care professional. Contents:
Platelet E-News - November 5, 2001
Subcategories You’re not alone. We have answers! |
