All donations are in US Dollars.
4th Annual Pump It Up For Platelets!
Peyton received a diagnosis of ITP at the age of 3. We never imagined that 9 years later, we would still be on this ITP journey with our daughter. She is now diagnosed as having chronic/refractory ITP, which means that she will more than likely battle this disease for the rest of her life and that she has not successfully responded to any treatments thus far that increase her platelet count. A diagnosis of ITP means you are at a higher risk of bleeding and bruising due to a low platelet count. Peyton’s platelet count is severely critical, remaining around 2,000. Anything below 10,000 puts you at a high risk of bleeding internally/externally.
She has experienced numerous hospital stays (two due to internal bleeding), an uncountable number of needle pokes/IVs/infusions, ER visits, bone marrow biopsy, ambulance rides, and side effects from treatments. She has been through more than a kid should ever have to go through, not only physically but mentally and emotionally as well. She has remained strong, positive, and full of life through it all.
We are still hopeful that someday a cure will be found or a treatment will be successful so she can live her life to the fullest. We know there are other kids out there who are hoping and praying for the same miracle. Every cent donated goes to PDSA/ICON to support pediatric research for ITP. Your support means the world to us and all of these kids. You are truly making a difference in their lives.
Is there a registration fee?
Yes, a paid registration fee is required to participate. The cost is $20 for adults and $10 for children.
Can I form a team?
Yes! We encourage everyone who registers to form a team and invite your friends and family to participate with you.
Is everyone on my team required to register?
Team members can either register prior to the event or on the day of the event. Team members who cannot participate in the event can also make a donation to your team.
Do I get a walk t-shirt if I register?
Yes! The first 100 registrants for each event will get a Pump It Up For Platelets! walk t-shirt.
Can participants register on the day of the event?
Yes! PDSA does allow on-site registration but please note that t-shirts are limited so you may not get a shirt if you register on-site.
Can my child participate in the event?
Yes! Pump It Up For Platelets! events are for all ages.
Are pets allowed to participate in the event?
Each Pump It Up For Platelets! location is different so please check with the event organizer to see if pets are allowed.
How are walk registrations and donations used to help the ITP community?
Every dollar makes a difference! Your contribution helps fund PDSA research and programs for the entire ITP community.
Who should I make a check out to?
Checks can be made out to: Platelet Disorder Support Association. Please make sure to indicate which location you are supporting in the memo section. Once your gift has been received by PDSA, a tax receipt will be mailed or emailed to you. Please send your email address if you would like to receive your receipt this way.
What do I do if a check is made out to me personally?
If a contribution check has been written out to you personally, please deposit this check into your account and issue a check from your account to PDSA. Please include details on the donor so they can receive the proper credit and receipt.
Where do I mail donation checks?
Donations can be mailed to:
Platelet Disorder Support Association
Attn: Pump It Up For Platelets!
8751 Brecksville Road, Suite 150
Cleveland, OH 44141
What if I have a cash donation?
We don’t advise putting cash in the mail. We suggest you deposit any cash donations you receive into your checking account and send a personal check to PDSA. Please include details on the donor so they can receive the proper credit and receipt. Please do not send cash donations, if possible.
Are donations tax-deductible?
Yes! All monetary donations are tax-deductible to the extent allowed by law.
A donor is requesting a Tax ID number; what is that and how do I get that?
A Tax ID number identifies PDSA as a 501 (c)3 non-profit organization. Many donors will request this number to validate their donation as tax-deductible. The Platelet Disorder Support Association’s Tax ID number is 22-3611011.
Will checks and cash donations be added to my individual donation page?
Yes! Once checks or cash donations are received to the PDSA office, they will be added to the proper donation page(s).
How can my company match my donation?
Every company has its own requirements for matching gifts. Check with your company and ask for information on matching gifts. All matching gift paperwork can be submitted to:
Platelet Disorder Support Association
Attn: Pump It Up For Platelets!
8751 Brecksville Road, Suite 150
Cleveland, OH 44141
Please make sure to include the donor information and the team that should receive credit for the donation.
What happens in inclement weather?
Pump It Up For Platelets! events happen rain or shine. Contact the individual walk organizer to see about event details in the event of inclement weather.
What if I cannot physically participate in the event?
We offer an option of participating in an event virtually, from your own location at your own time. We also understand not everyone can physically walk the event course so we encourage those participants to remain at the start or finish location during the event.
Pump It Up For Platelets! events are non-competitive and we want everyone to have a good time.
Can I volunteer at an event?
Absolutely! Volunteers are always welcome.
Please contact either the event organizer or the PDSA office to get more details. We would love to have you join us!
Please contact PDSA’s Director of Program and Events, Jody Shy at jshy@pdsa.org or (440) 746-9003 with any questions you have about the Pump It Up For Platelets! program.
440-746-9003
8751 Brecksville Road
Suite 150
Cleveland, Ohio 44141
If you would like to receive our free monthly e-newsletter with the latest information on ITP news & research, please visit pdsa.org and register.
Register for e-News
Interested in becoming an official Pump It Up For Platelets! national walk/run sponsor or partner? Contact Jody Shy at jshy@pdsa.org or (440) 746-9003 to learn more about sponsorship opportunities.
PDSA is a 501 (c)3 non-profit organization (EIN 22-3611011)
PDSA events are 100% volunteer driven by people passionate about raising public awareness for immune thrombocytopenia (ITP) and creating better outcomes for people with ITP and other platelet disorders. PDSA volunteers play a vital role in the success of our events and community – they are the heart of our team. We are grateful for the efforts of our Awareness Champions and look forward to welcoming new volunteers to our all-star line-up!
To join our team of champions, contact PDSA’s Director of Programs and Events Jody Shy at jshy@pdsa.org or 440-746-9003.
Thank you for your interest in organizing a Pump It Up For Platelets! event in your community. As an organizer, you join a team of champions in the national movement to raise awareness for ITP, educate the global ITP community and support innovative research. Great strides have been made for ITP, but much work is yet to be done. As an event organizer (in-person or virtual), you are an integral partner in our efforts to improve the lives of people with immune thrombocytopenia.
Our ITP Walk Guide and Virtual Walk Guide will help you get started and PDSA is here to support you in the planning, promotion, and successful execution of your event. Fill out the Organizer Information Form below and email it to PDSA’s Director of Programs and Events Jody Shy at jshy@pdsa.org or call 440-746-9003 to get started today!
Pump It Up For Platelets!
Thousand Oaks, CA
September, 2024
Please consider donating.
6th Annual Pump It Up For Platelets!
September 25th Walk @ HQ
Fundraising Goal for the Company - $3000
4th Annual Pump It Up For Platelets!
Detroit, MI
On Saturday, October 5, 65 participants including 6 ITP warriors, 1 angel warrior, and 1 dog with ITP, gathered outside Detroit, MI for the 4th Annual Pump It Up For Platelets! event. This event raised over $8,000 for PDSA programs and research.
It’s been 8.5 yrs since my life changed with 2 late night phone calls, on consecutive nights) First, by my internist, who referred me to a hematologist the next day. My internist was pretty sure I had ITP. The next night I was told to get to the hospital ASAP where I spent 2 nights trying to raise my platelets to a safe level. Little did I know that this journey would take such an emotional, mental, physical, and financial toll on me. I thought they’d find a treatment and it would be “resolved.”
Treatments during this time have included very high doses of Prednisone, followed by Rituxin infusions, a splenectomy, Promacta, weekly N-plate shots, and finally Tavalisse, which I’ve been on for almost 6 years. All these drugs have come with side effects and alarmingly high costs.
About 6 years ago I discovered the PDSA which I’m incredibly grateful for. I’ve learned how to educate myself and become an advocate in my ITP journey and have connected with other people who have ITP. Through the PDSA, I’ve been inspired to help others navigate their ITP journeys.
I’m blessed to have such a great support team-my family, friends, and doctors. My faith has helped me weather some very difficult moments, and feel mentally strong with the help of a therapist. Meditation and Reiki have also helped to reduce my stress. I’m here to live in a BIG way, embracing life and being grateful.
I’m walking in memory of Lisa Bauer Lewandowski , who fought a very courageous battle with ITP, before passing away in 2021 due to complications. She often cheered me on when I was frustrated with my struggles. She was truly a bright light for those around her.
Thank you all for your continued support, prayers, and positive vibes!
Saanvi, Nandini, Shailen and I (Neelam) invite you to donate to Saanvi’s team to raise funds for the Platelet Disorder Support Association (PDSA).
Please support Saanvi, our family, and the many others who we have met on our journey by donating to support Saanvi's ITP Fundraising Team - SPEAK NOW FOR ITP!!
Your participation and donation will help support patients with Immune Thrombocytopenia (ITP), like Saanvi and raise awareness about this rare autoimmune disorder. Your generosity will help us meet our fundraising goal!
There are many roles that Saanvi pours her heart into as a bright, loyal and loving 10-year-old. This fundraiser celebrates and supports her role as an ITP WARRIOR!! Saanvi encapsulates the true meaning of an ITP WARRIOR through her determination, bravery and ferocity. She is committed to being her best self regardless of challenges that she may face. With the support of PDSA, she found comfort and community when she met other kids who had similar experiences.
Watching her learn, overcome challenges, and grow her understanding of life is truly inspiring. I always love to hear her new philosophies! This past year at the PDSA conference, she chose to attend sessions and share her story.
In coping with her medical circumstances, PDSA has been a pillar in helping Saanvi and all of us through her ITP journey.
The staff at PDSA works tirelessly to support patients AND push research to better understand ITP AND expand treatment options. PDSA brings together ITP patients and leading doctors from across the world who work together to learn more ITP and how patients like Saanvi can improve their lives through knowledge and more treatment options.
Please donate to Saanvi's team! Thank you for your support!
Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003 | pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.
© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.
IMPORTANT!
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.