Cathy's Journey

Itʼs been a long time since my diagnosis in 2006.*

As I reflect on my journey, I know it hasn't been easy...the beginning was definitely a whirlwind of emotions and lifestyle adjustments. At the 10 year mark, I hit a low point...I was tired of dealing with my diseases. But, after I got over the “why me?!” moment again, I decided it was time to make changes. After discussions with my doctors, I was able to go off all medications for my ITP and Lupus for a short time. I am currently back on meds for my Lupus, and my platelet count remains low but manageable. This journey has been difficult, stressful, and tiring, but also, interesting, inspiring and amazing. I know that my journey is not over, so the meantime, Iʼll keep my spirits up and clear my mind with travel adventures and foodie quests!

*"I had been feeling exhausted for months, and knew it had to be more than just being a mom to my four busy children. I had always been very healthy, so I was shocked to be diagnosed with SLE (lupus) and ITP, not just one, but two, autoimmune diseases. My days became filled with doctors appointments, labs, a bone marrow biopsy, treatments, infusion centers, and research. I've been hospitalized twice, and have had many different treatments...Rituxan, IVIg, Imuran, Cellcept, Dapsone, Prednisone, Myfortic. Despite my low platelet counts, I remain hopeful in finding the right treatment for me."

Discovering PDSA, and attending my first conference in 2010, had such an impact on me. My husband, family, and friends were all so supportive, but here, I finally felt that I wasn't alone dealing with ITP. It was an incredible experience to be surrounded by others who understood, and were personally experiencing similar issues. I am so grateful to the amazing PDSA staff and medical advisors for their wealth of knowledge and involvement in this organization. I have now attended 11 conferences across the country (9 in-person and 2 virtual), and serve as an ambassador for first-time attendees, as well as fundraising and co-facilitating PDSA support group. PDSA continues to support our efforts to raise awareness year after year, and I truly appreciate your continued support too.