This e-newsletter is a publication of The Platelet Disorder Support Association. The information in this newsletter is for educational purposes only. For advice on your unique medical condition, please consult a health care professional. Contents:
HELP ITP RESEARCH - COMLETE OUR SURVEYThe Platelet Disorder Support Association and Dr. James Bussel, MD of the Weill Medical Center of Cornell University are collaborating on an historic survey entitled "Survey of Non-Traditional Treatments of ITP." While most ITP research articles are based on findings of fewer than 100 patients, we hope to get input from more than 1,000 patients with ITP. This large amount of data will allow us to find patterns in treatments and treatment successes that have not been available to date. The survey results could lead to a follow-up study to gain verification of the most promising treatments. To meet our goals we need your help. Please complete our survey at http://www.pdsa.org/survey/. Your name, address, and e-mail information are optional. No data will be shared with anyone outside of PDSA or those associated with Weill Medical Center. Only aggregate data will be published. NEW NIH RESEARCH INITIATIVE"…National Heart, Lung and Blood Institute (NHLBI) has released a Request for Applications (RFA) on a new Transfusion Medicine/Hemostasis Clinical Research Network available for review at http://grants.nih.gov/grants/guide/rfa-files/RFA-HL-02-001.html. ASH has long advocated for increased federal funding of clinical research initiatives in benign hematology and applauds the NHLBI's decision to support this area of research. The new NHLBI network will support up to sixteen core centers and a data-coordinating center to perform clinical trials to evaluate and compare novel and existing management strategies and products in the treatment of benign hematologic disorders in both children and adults. The total project period will be no longer than 10 years, with an anticipated award date of September 30, 2002…" (American Society of Hematology Press Release, September 25, 2001. http://www.hematology.org/news/press/press_0901.cfm) ITP is one of the hematologic disorders targeted in this research initiative. We applaud the NIH for its increased support and stand ready to do anything we can to assist the ITP researchers who apply for these clinical research funds. PREPARE FOR THE WINTER COLD SEASONMany people with ITP notice a susceptibility to sinus infections. We’ve found an easy way to help prevent them, just rinse your nasal passages daily with a warm salt water solution. The salt rinse helps prevent bacteria from multiplying in the sinus passages. Your sinuses have a mini-immune system and they need to be open for this to function effectively. Although you can rinse the sinuses by a number of methods, the best and most effective way is with a Neti pot, a specially shaped container that allows water to pour freely into the sinus cavities. You can purchase them in many health food stores, or from us in the Platelet Store, http://www.itppeople.com/store. The cost for the our plastic or ceramic versions is $17.95 plus shipping, reduced from $19.95. Join me and hundreds of satisfied and healthier ITP people in using this simple preventative technique. "Of 85 patients with chronic post nasal drip…were 79 cases that were markedly improved (by daily irrigation at home) so that symptoms ceased and further treatment was unnecessary." - Max Unger, MD, from an article in The Eye, Ear, Nose and Throat Monthly. See further testimonials on our store pages. WEB SITE NEWS UPDATEWe’ve implemented a new way to update the ITP news section of our web site and make the back versions of the e-newsletters available or those who missed them. Each issue of our e-news will be posted to the news section of our web site: http://www.itppeople.com/itpnews.htm. ITP HERBAL TREATMENT(advertisement) Get Well International is a company with over 40 years of research in its products by medical doctors and master herbalists. Dr. Ba Hoang’s medical thesis was on ITP. His supplements Blood-Well and Restor-Immune for ITP have been used successfully for many years. A healthy balanced body produces normal platelet counts. Many users of this program report less bruising, more energy, and platelet increase within 2-3 weeks. It is very cost effective and has had almost no side effects like the normal drug therapies. Information and testimonials can be found at http://www.getwellinternational.com or leave a message at 1-888-522-4372. For information on advertising in our e-news letter contact us at pdsa@pdsa.org. This e-newsletter is published by the Platelet Disorder Support Association, P.O. Box 61533, Potomac, MD, 20859, phone/fax: 1-87-Platelet or (301) 294-5967, web: http://www.pdsa.org/, e-mail: pdsa@pdsa.org |
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