The Medical and Genetics Reports survey is another survey available on the ITP Registry website.
Within this survey, you have the option to upload medical or genetic test reports you wish to include in the registry. We encourage anyone who has had genetic testing related to their ITP to complete this survey and upload their genetic test report so we can expand our understanding of inherited platelet disorders and learn which ones are most prevalent. Uploading your genetic test report will also serve as diagnostic confirmation.
You may also upload any non-genetics laboratory reports you feel is important to your ITP diagnosis. Please do not upload your entire medical file, only unique reports related to your diagnosis of ITP or other platelet disorder.
Complete our new surveys today and help us to unlock the mysteries of ITP!
To get started, join the ITP Registry. If you already have an account, we hope you will return to the ITP Registry to provide additional insight via our latest updates and new questionnaires. Your answers to these questions and others in the survey can advance our understanding of the ITP patient journey and contribute to research and therapy development.