My dancing friends didn’t understand why I couldn’t go ‘full out’ [at training] since I didn’t ‘look’ sick.”
I was diagnosed with ITP in 2018, when I was 17 years old and in the middle of Year 12 (I’m from Perth, Australia). Suddenly I faced a constant stream of ineffective treatments, including steroids where I couldn’t concentrate at school and IVIG doses that gave me meningitis. I had to skip school for twice-weekly blood tests and family members tried to help by testing me on schoolwork during 6-hour infusions. I was a dancer who trained nearly every day, but this had to be cut back as I would come home with bruises from rolling on the floor or from my pointe shoes. My dancing friends didn’t understand why I couldn’t go “full out” since I didn’t “look” sick.