Personal Stories

As part of PDSA's ongoing commitment to encourage research, increase awareness and foster hope, we trust in the power of the personal journey. Every day, patients and caregivers encounter frustrations and triumphs in managing ITP and the following is a collection of stories from real people sharing their experiences living with the disorder.

IMPORTANT: Because these stories are submitted by actual patients, some entries may contain incorrect information about ITP. Visit the Disease Information section for accurate information.

Do you have an interesting or unusual story? Submit your story here. (Full names and contact information will not be shared).


Caroline Kramb: The Hidden Strength of a Snowflake

By Cyma Shapiro
Reprinted with permission, Matthews Beacon 2018

When the curtain goes up for the “Nutcracker,” danced by the Matthews Ballet and Dance, at the McDowell Community Center, one dancer in the group will be happy to be alive, well, and again dancing in this year’s production.

Matthews resident, Caroline Kramb, has been dancing with this group since she was four years old. She is now 15 and has taken on such roles as Angel, the lead – Clara, Chinese, Ginger Child, Waltz of the Flowers, Candy Cane, Spanish, Gold Angels, Party Girl and Soldier.

This year, as in previous years, she will exude the joy and passion that dancing invokes in many. “Caroline is a dedicated student with a passion for dance,” said dance studio Program Director Amanda Sheppard. “She loves performing onstage, and is always a joy to watch.” This year, she will dance the part of “Snowflake.”


ITP Warrior - Joe

Informed, assured and in control: the life-changing event that took the mystery out of ITP.

Not too different than most committed students, Joe Winter found college life at North Dakota State University bustling with full-time obligations - classes, assignments, an internship and extra-curricular activities, so fatigue seemed par for the course - until this course of fatigue seemed to intensify over several months to include dozing in class and the need for multiple energy drinks to make it through the day. “I knew something wasn’t right, but I really didn’t feel like anything was wrong because I was 21 and really active and thought I was just going through a funk,” said Joe Winter. At the same time, Joe noticed bruises appearing on his legs, arms and back, but still brushed it aside thinking nothing could possibly be wrong. It wasn’t until experiencing a bout of dizziness while exercising at the Wellness Center on campus that he even began to consider that something may truly be amiss and that it may be time to seek medical advice.


ITP Warrior Louise

A therapeutic approach to healing

On the night of my 40th birthday, I got a call I’ll never forget: my doctor was telling me to get to a hospital because I had “no platelets”. I had no idea what that meant!

I would have googled “platelets” but it was 1990. There was no google and no PDSA. I was on a scary journey without a guide or a map. That journey was to last 16 years.

During that time I tried every medical treatment available — including chemotherapy and splenectomy. None of these worked. Prednisone helped but the side effects were awful. I searched for alternatives in vain.

Then one day at a health food store, a book on Macrobiotics caught my eye. Miraculously, it mentioned ITP! It was just one paragraph, but it convinced me. From that night on I ate only veggies, rice and beans. Prednisone side effects lessened. Within weeks I was completely free of ITP. Things continued this way for several years… until I became anemic.


ITP Warrior - Erica

A shocking diagnosis and last-ditch treatment effort harvests one of life’s greatest blessings.

Like many other people, it was never fully understood how or why I ended up with ITP. I was on the city bus one day with my husband, heading home from work. I felt a sudden jolt of panic, but I couldn't pinpoint why or what was wrong with me. We got off the bus a few stops early to get some fresh air and walk the rest of the way home. Another wave of panic set in and all I could repeat to him was, "Something is wrong, something is wrong." We went to the emergency room and they performed a few tests – EKG, flu test – and they gave me some fluids intravenously to hydrate me. They did not do a complete CBC and so they missed what was happening. In fairness, I had no clues to give them. I had told them that I was having a horrific menstrual cycle that would not stop bleeding. It was the heaviest that I had ever experienced, but I had very abnormal cycles. As I did, they chalked it up to my reproductive medical problems. They gave me pamphlets on heavy menstrual cycles and sent me on my way.


ITP Warrior - Ayla

After 13 years of critical challenges and refractory ITP, an effective therapy liberates and renews hope for this young warrior princess.

My name is Ayla Charness and I have fought ITP for almost 14 years. I was diagnosed at 3-1/2, barely in pre-school, and am now 17 and just starting my Senior year of high school. When I was diagnosed my parents were told the same thing most families of kids with ITP are told, “give it 6-12 months and it should go away”. Of course, as my parents explain it, we should have known we were in for a bumpy road, five days in to the diagnosis. That is when I was admitted to the hospital for an 8-day stay because of bleeding they could not get to stop and low platelets that they could not get to come up at all. And to say it has been a bumpy road may be an understatement. That being said, I am so happy to share my story. I want to share both the good and the bad of my journey so hopefully people can understand that with the right amount of love, support and resiliency, you can succeed in spite of the challenges.


ITP Warrior – Brittany

A seemingly normal day unveils irregular bruising and is the beginning of the journey for this young, active woman.

In September of 2005 I was diagnosed with ITP, immune thrombocytopenia. It was what I thought was a normal day playing a sport that I loved, Volleyball, and I noticed abnormal bruising that would not go away. The bruising lasted for nearly almost a month and I knew something was not right. ITP is an autoimmune disease in which your body makes antibodies against platelets. In autoimmune diseases, the body mounts an immune attack toward one or more seemingly normal organ systems. In ITP, platelets are the target. For anyone who is unsure, a healthy platelet count ranges from 150,000-400,000 platelets per microliter. My lowest platelet count throughout my journey before my splenectomy was 4,000.


ITP Warrior - Ruby

A little girl’s courage fuels the momentum of a BIG movement for ITP

“I’m Ruby and I have ITP, so I don’t do bounce houses.” A profound statement from a 3-year-old little girl from Lincoln, Nebraska well-versed in low platelet safety guidelines. Diagnosed at only 15 months of age, little Ruby has never set foot in the bouncing habitat headlining at most “kid-friendly” parties and events, but a bounce house isn’t exactly “kid-friendly” when your platelet count is below 20.

“Ruby is a rollercoaster,” said her mom, Jill.  Her counts fluctuate from highs to lows – at times dropping rapidly to dangerous levels.  As athletes, Ruby’s parents Matt and Jill recognize the power of positive thinking.  Grateful for the highs and that IVIG brings her counts back up, Jill reflected, “nothing is as dark as the day I sat in the doctor’s office and thought my daughter had cancer.”  Inspired by the actions of a colleague who shared with Matt his personal journey with IVIG treatments to help them better understand Ruby’s journey, the couple developed a deeper respect for raising public awareness, the significance of support and the duty pay it forward.


ITP Warrior - Barbara

A startling diagnosis baffles this grown woman who feels completely fine.

As a fatherless kid I was often teased for having "bad blood" and in my 60's that became true.  Initially, I thought the horde of freckles creeping up my feet and legs was just another old-age thing, but when they appeared where the sun don't shine, I decided to seek a medical opinion. Along with the zillions of freckles (purpura), I had more bruises than normal but being a klutz, I gave them no thought.  Upon hearing the doctors and nurses discuss calling for an ambulance, I said a prayer for that poor soul. Then they came into my room and identified me as having a horrendously long named, life threatening bleeding disorder where my immune system destroyed my platelets faster than they could be made.  Next, they explained that those freckles were pools of blood leaking from my veins...What?!  They actually plotted a safe route to the hospital, ordered me to not go home, not buy a magazine, not stop for lunch, not hit a pothole, not get in an accident, and try not to sneeze!  Yet I felt fine.


ITP Warrior – Mindy

An unusual nosebleed and extreme fatigue on a flight home prompt this ITP Warrior to seek medical care.

My name is Manminder Singh Combow, but everyone calls me Mindy, lucky me, whereas I am a boy. I have been a resident of Houston, Texas for the past 10 years, but was born in Vancouver, British Columbia, Canada. As a young child, my family and I moved to Canada’s east coast to Halifax, Nova Scotia, which I consider my hometown. I am a dual citizen of both Canada (by birth) and the United States (naturalization, Jan 2017) but, as most Canadians are, especially proud to be a Canuck, not to mention, a Maritimer through and through. I enjoy playing/watching hockey, basketball, soccer, and, of course, cheering on the New England Patriots to a big win! I have a Bachelor of Commerce (BComm) degree and a Master of Business Administration (MBA) degree, both from Dalhousie University in Halifax, Nova Scotia. I have worked in the banking and financial services industry for over 20 years. In my previous life in Halifax, I was a Financial Advisor/Planner and grew a book of business of high net worth clients. After completing my MBA, I sold my client portfolio and moved to Toronto, Ontario. I worked in the financial/banking services industry there for 9 years with 2 large international banks in the downtown financial district (Bay Street). I was transferred to the US in 2007 by Scotiabank and recently accepted a new position with BB&T – Capital Markets, as Senior Vice President – Capital Markets - Corporate Banking..


ITP Warrior – Sara

Living with ITP uncovers an adolescent’s hidden human strength and gratitude.

I was diagnosed with immune thrombocytopenia (ITP) in February 2015.  Throughout this continuing period of medical care, I have received so much support from teachers, family and friends.  I am humbled by the love they show me, and I realize how fortunate I am to be surrounded by such caring people.  Going frequently to the clinical care center at Texas Children’s Hospital and seeing children younger than me diagnosed with cancer and other autoimmune disorders have helped me to appreciate just how fragile life can be.  It has helped me to keep a positive perspective with my own health issues and not let this autoimmune disorder interfere with living my life to the fullest.  I see more clearly the preciousness of life and try to share my positive attitude with my friends and family. I have grown through this personal challenge by being helpful, loving, and kind whenever I can, and try to always have a smile on my face when times get rough.  I trust that whatever comes my way in the future, my faith, family, friends and community will help me to remain strong, positive and loving to meet these challenges.


ITP Warrior - John

A tenacious, young warrior right-sides his world after a shocking diagnosis turned it upside down.

My diagnosis of ITP was very shocking.  It turned my life upside down.  I had to learn about a disease I had never heard of before and change my lifestyle completely.  I had to deal with terrible symptoms from medication.  I could have just given up and taken the easy route, but I decided to use my experience to make a difference in the world.

As a high school student, I was involved in typical activities.  I took AP classes, wrestled, did community service, and played video games.  After my diagnosis, I had to focus on my classes and my health, but I gradually started doing more, and now I am involved with more activities than before my disease started.  It has been extremely tough at times.  I have struggled, but I am slowly becoming a much better person. 


She’s Bold, Strong… and has ITP

An ITP diagnosis inspires a young, competitive gymnast to turn a setback into significance

Any athlete will attest to the main reasons to engage in competition – the desire to win, the opportunity to improve personal performance, and the chance to step up individual efforts for a shot at higher levels of achievement. What happens then, when one’s drive to compete is derailed by the diagnosis of immune thrombocytopenia? For eleven-year-old Katie, of Georgia, it meant employing those components and engaging her grit to beat ITP.


ITP Warrior - John

John's story was recorded during ITP Conference 2017 in Phoenix, AZ. He shares his advice about the importance of becoming an ITP Warrior, taking good care of yourself, and taking advantage of the wealth of information and resources that the ITP community has to offer.


ITP Warrior - Christina

Good morning everyone. My name is Christina. I am in otherwise healthy 26 year old who was diagnosed with ITP in December, 2014. I am currently a 3rd year medical student at Indiana University School of Medicine. It was during my internship two and a half years ago, when I was working as a research assistant at the University of Illinois, that I had my first exposure to hematology through personal experience. While working in the research lab in December, 2014 I had recurrent nosebleeds that lasted over 4 hours. I was admitted to Rush University Chicago hospital with the hemoglobin of 6 and 10,000 platelets. I received a platelet transfusion the same day, which further dropped my platelet counts to 6,000. The hematologist later concluded that the platelet transfusion stimulated my immune system even more, which caused a further decrease in my platelets.


Day by Day - Daughter with ITP

You never know with ITP. I tell our daughter, Mia (17, dx at age 12) that ITP teaches us to live with ambiguity, to weigh the pros and cons and make the best choice we can when it's not always clear what is the best path forward.

Over the past 5+ years, Mia's tried just about every drug there is for ITP (ivig, anti-d, rituxan (4 rounds on 3 occasions), NPlate, promacta and, of course, the dreaded prednisone along the way.) Eventually, all the drugs have stopped working and, when they do, Mia's numbers always fall below 10. We are blessed that she's not a bleeder. Our doctors have never hospitalized her for low platelets (except to treat) so, even when she's in single digits, she does school and life, except for sports and any obvious risks. That said, when her platelets are this low, she's beyond exhausted. She can barely haul herself through her days, sleeps a lot and is understandably sad. We have a 504 in place at school for these times.


“You don’t look sick?” My ITP Story

Over the years, I have developed a very sarcastic shell that I use to for protection. Most of the time, I like to believe that kindness is my superpower, not my weakness. However, Sarcasm is my safety net. I have been diagnosed with ITP (Idiopathic Immune Thrombocytopenic Purpura), Chronic Migraines, Depression, & Anxiety. These do not by any means make me unique or special. I have learned over the years that there will always be someone who can top my list any given day of the week with a blink of an eye. These are however, invisible and incurable diseases that I will carry with me like badges sewn inside my jack lapel, that I can flash any time I need gain entry into the club. People have often said to me when the truth rises to surface, “You don’t look sick.” In the beginning, I would smile and say thanks. Now, I just smile and say with a slight laugh, “Why would I want to look sick?”


My Baby Boy Died from ITP

After discovering unexplained bruises on his body, I took our baby boy went to the pediatrician on Tuesday, August 23, 2016. She said he had ITP and sent us to the ER at our local hospital for blood-work. He had only 8,000 platelets. Then, we were transferred via ambulance and admitted into Yale New Haven Children's Hospital. Later than night, he was down to 1,000 platelets and was given his 1st IVIG infusion.


It's a Brand New Day

Thirteen years ago I was diagnosed with a blood platelet disorder called ITP -- idiopathic thrombocytopenic purpura. I know, right? What? It means that my body is at war with itself. My immune system attacks itself, perfectly good platelets, and destroys them.

I'm a Snoopy fan and found a tee-shirt at the time with the quote, "It's a brand new day- the sun is shining- and I'm alive! I still have that tee-shirt. It was a tough battle but I survived. I won. Almost. Not every battle is meant to be overcome. Sometimes, your enemy becomes your companion and you have to learn to deal. The two of you will be hanging out together for awhile.


17 Year Old Living with ITP

I am  a 17-year-old girl living with ITP.  I was diagnosed with this when I was in sixth grade.  I started to notice bruises all over my legs, but at the time I was taking Tae Kwon Do, so I linked it to that.  I finally ended up going to the doctor when my legs were covered in petechiae.  My pediatrician sent me to a hematologist and they had diagnosed me with ITP a few weeks later.

I didn't really understand what the disease was all about back then, all I knew was that I was upset about quitting the sports I had been playing.


Story of Hope for Parents of Children with ITP

I just wanted to share my story to give hope to others struggling with this awful disorder... especially the parents who have young children struggling. I was diagnosed around my 10 th birthday following many tests and some serious worry that I had leukaemia. My levels were extremely low, under 10, and I was always covered in bruises. This was 25 years ago and there weren't outlets like this to search for support, so my parents did the best they could with the information they got from our small town doctor.


It's a miracle, what can I say...

My dad, age 94, has five years of blood tests showing a steady decline in his blood platelets from a high of 87,000 to a low of 37,000. He was scheduled for a heart scope procedure in late June of 2014, with hopes of having a stent put in, clearing the way for a TVAR "stent/valve" put in to replace the failing valve in his heart. When he arrived for the procedure, they took a blood test and told him they could not proceed because of his low blood platelet count. They basically told him to go home and prepare to die. No suggestions, no help, no nothing...


Zane's Story

Almost three years went by with him being a normal healthy baby boy. Bringing a smile to just about anyone who met him!

Under one roof consisted of 8 people!! Brother Cody, 17; Cousin Ashley, 14, brother Wyatt, 5; sister Nadene, 3; Zane 2 years 11 months; Mimi (Grandma) and Mom and Dad, we had a house full!

Due to chronic ear infections it was finally decided to have tubes put in his ears on 8/25/2009. 12/1/2009, Zane had to have some dental surgery
done, four caps on the top front and two cavities on the bottom.



Neha's Story

Hi, My name is Neha. I am 25 years old, live in a small town named Hamirpur in H.P. India, and I am an ITP patient. I am not sure whether it is by birth or not but I got a major attack in 2010 during my studies. That was a major setback in my life. There was so much blood around me, not even a single opening of my body was left without blood. I was hospitalized and was referred to a big hospital, PGI, best hospital in northern India. There I was diagnosed with ITP. The doctor gave me the option of IVIg injection but I rejected that option due to my exams coming soon. So they put me on various steroids. After 6 or 7 months, I was back to my normal life. I was so glad that now I was free from that disease.


Teen Now In Remission

Hi, my name is Jaymee-Lee and I am a 14-year-old girl from Australia. It all started for me when I noticed quite a few huge bruises on my arms, back and legs and I didn’t know what they were from. I also had a red dot rash on different parts of my body that we thought was a reaction from our washing powder (later we realised it was purpura). My mum decided to take me to the doctor to get a blood test as she had ITP when she was younger but we didn’t think too much of it since ITP isn’t known to be genetic.


ITP and Pregnancy

I am 31 years old and I live in Salinas, CA.  I found out I had ITP when I was two months pregnant.  I had never had blood work done prior to my pregnancy.  I had to have routine blood work.  My doctor called me immediately after she received my results because my platelets were under 30,000, and they needed to find the cause.  I was sent to have blood work to test me for lupus, hepatitis C, etc., and the results were always negative.  


Awaiting a Miracle

I am a mother with a 20-year-old daughter who has been suffering with chronic ITP since she was two years old. She is such a great kid for us. She is blessed with intelligence in her academics and drawing, and she is a scholarship holder since she was in primary class until university. During her school and university life, she is never allowed to join any sports. Now she is in her freshman year at university. She is a very active girl though she is carrying ITP with her.


Platelet count depletion post PCTA with Stent

Hi.  This story is regarding my father who is currently 64 years old.  He was diagnosed with Coronary Artery Disease with acute anterolateral MI (myocardial infarction) in December 2011.  His platelet count when admitted was 130,000.  While doing percutaneous transluminal coronary angioplasty (PTCA) to the left anterior descending artery (LAD); heparin 5,000 IU was given by IV followed by stent placement.


About Me

Hi everyone. I am a 51-year-old female who was diagnosed with ITP when I was 21. Back then, everyone was afraid to hug or kiss me as they thought it was related to HIV. I didn't know much about the disease either so I researched it. I must say, that over the years I have been extremely lucky my platelets never went below 80,000 even when I was pregnant with both of my boys.


My Story - Newly Diagnosed

My name is Sarah.  I am 25 years old.  It has been about a month since I found out that I have ITP.  I went to the doctor in the beginning of June because my period was extremely heavy and it scared me.  I found a clinic that had a sliding scale and I saw the Ob-Gyn doctor.  I told her about my heavy bleeding and that I had bruises that I didn't remember getting.  She had me get a CBC.  I was a nervous wreck for the next three days.  The clinic called me and told me go to the ER straight away.  


ITP - Platelets less than 1

Hi. My name is Simon. I am a 26-yr-old male dairy farmer from New Zealand, usually fit and healthy.  I have recently been diagnosed with ITP.  It came on suddenly-- one day I started peeing blood and had kidney pains so I booked a doctor’s appointment for the next day. When that came around I also had bruises and blood spots all over my body including my mouth.  The doctor sent me straight to the hospital saying I had low platelets.  It turns out he was right.


ITP - Chronic - Diagnosed in the 1960s

I have had chronic ITP since the 1960s (I am 56 now) and really not had a lot of treatment. My mother and father took me to the doctors weekly from the time I was about 11 until high school in Baltimore, Md. After diagnosis I was stuck in the library during recess and told not to get in any accidents, typical treatment. I was not treated until the 1980s. In the 80s I was living in Dallas, TX and put on prednisone. It worked but I stopped because of side effects, so it was mostly watch and wait. I lived in the UK for many years and never saw a hematologist.


My Son Died Because of ITP

My son was admitted to the hospital on January 26, 2012. He was admitted because he had bruises on his legs, hand, and back. He also had bleeding mucosa in his mouth. The doctor diagnosed him as an ITP patient. They gave him IVIg on January 27th and his platelet count increased from 1,000 to 9,000. But the next day his platelet count decreased to 1,000 again.


Determined ITP Patient Perseveres

There once was a little girl who loved to play with her friends. She also loved to rough-play with her father. That sweet little girl grew quickly and now is a beautiful young lady. One gloomy day, her life changed quickly.

An ITP Story from Naples, Italy

Hello, my name is Alfonso Perillo. I am 40 years old, from Naples, Italy. Please excuse any grammar mistakes—English is my second language! Forgive me for beginning my story negatively, but I’d rather start with the bad and end with the good. My story is a great example of how even after 18 years of good health, the symptoms of ITP can still come back and affect your life.

Mr. Bill's Splenectomy Success

When I was 52 years old, I woke up one night in late October, 2000 with blood in my mouth. Turns out it was a very small place on an upper gum which just would not stop bleeding. It was not profuse...just a trickle which I could not get stopped for almost 2 hours! I tried everything including an ice pack and finally got it stopped. The next day I could not get to the doctor's office. The third day, right before lunch, I noticed blood in my mouth again and two very dark elliptical bruises under my triceps. I thought the bruises were caused by my having to lie on the boat dock to cover my jet ski. Anyway, I left work immediately and went to see my regular family doctor!


Living With ITP - Not Letting ITP Own My Life

My 8th Grade year (2000) I was a Normal Active Tween. I had some Family in town and my Aunt Asked my Mother if she was beating me. My Aunt Stop Counting Bruise's at around 50 or So. My Mother then proceeded to take me to my Normal doctor on that Friday.

Living with ITP for 18 Years

I have been living with ITP for the past 18 years. I was diagnosed at the beginning of my 6th pregnancy and after doing some chasing about it was previously noted in my 5th pregnancy but the particular doctor who delivered our daughter did not notify me about it.

8 Month Old Son with ITP

Last week I noticed small, unraised, red dots on my sons skin that were faint.  The next morning they were much more pronounced so I took my son into his pediatrician that morning.  His doctor called the dots petechiae and he was pretty sure that it was ITP. 

Success Story

Joan Young 2013

Like many of you reading this web site, I have ITP. More precisely, I had ITP because at last count my platelets were holding at 300,000 without any conventional treatment intervention. I work. I dance. I ski. This is what we dream about, having enough platelets and energy to have a life. It is certainly what I dreamed about when I was bald from a dose of vincristine and too fatigued to walk up stairs or had a mouth full of blisters and legs I called ‘red dot specials’.


ITP Ambassador

ITP patient Ayla Charness was chosen as the 2010 Denver Children’s Hospital Ambassador. At her first event in Denver, CO Ayla spoke about her journey with ITP.

The event, held on March 27, was at the ribbon cutting for the American Girl store in Denver, CO where Ayla spoke to the 40-50 member staff of the 8th American Girl store.


(WARNING - This story is rated R due to graphical descriptions. Most people with ITP do not experience symptoms this severe. ed.)

Well my name is Bill and I had a little headache so I decided to go get a few aspirins at clinic. At a military clinic, they look ya over and take a little blood first. I was late for my class and it was taking them a long time to get my pills. Then I heard all these ambulances coming in and people rushing all over the place.


The Purpura Shadow

I have not been more scared in my whole life than that cold day of winter in 1994. It was the time when I was going from Tuscaloosa to Birmingham, in an ambulance with Yadhi on her eight month of pregnancy. That day ITP became a top priority in my research. I was on a sabbatical leave from my university in Mexico were I was involved in Chemical Research, far from any true clinical relevance. I arrived as a visiting scholar to the University of Alabama; to which I am grateful now, for the opportunity to learn a great deal about ITP, Cancer and other inflammatory diseases.


H-Pylori, IvIg and Patience

Never did I imagine at 28 years old – that the word “PLATELET” would become so important to me. My story with ITP began on Tuesday, January 8th, 2002 – a day I will never forget. 

On January 7th, 2002, I noticed some rather large black & blues on my body and I didn't recall bumping into anything.  I also noticed what appeared to be some sort of rash on my lower legs. However, I didn’t worry too much about it -- other than thinking that maybe I needed more Iron or some other kind of vitamin in my diet (I thought maybe I was anemic).


Life Changes - More Platelets

I had ITP. I am now healing. Am I cured, you may ask? Probably – no, make that almost definitely – as long as my body’s healing system remains healthy. Why am I telling my story now? Maybe my experience can help someone else who’s just been diagnosed with the disease – I remember the almost overwhelming helplessness and hopelessness when I first recognized the symptoms. Maybe my story will encourage caution to those who are faced with the myriad choice of treatments – my natural skepticism helped me avoid much un-necessary suffering and expense.


Meditation, Breathing, Diet, & More

I have always been a very healthy person.

I’m one of those people who wildly loves the work I do. Of course, that means that I used to have trouble saying no to the great new opportunities and challenges that came my way…so I didn’t. I did much more than was genuinely healthy.

I say all this because I feel that (even though my western doctors denied a relationship) it all lead up to what happened to me in June (2003).


Nico's Story

Nico was diagnosed with ITP on the 30th of June, 2002.  He was getting increasingly bigger bruises, a few nose bleeds at night and was very irritable.  ITP kept us in a state of constant fear and apprehension for intracranial haemorrhage although that never happened.


Kid's Stories

From diagnosis to treatments to recovery, read personal accounts of these children with ITP. The stories of their experiences are varied and educational.


Short Stories

A variety of short stories that have been submitted to PDSA over the years. Click on the "Read More" button to read them.


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