ITP Parents Teleconference Local Support Group

ITP Parents Teleconference Local Support Group

The contact information in this section is provided as a service EXCLUSIVELY to patients and families. IT IS NOT TO BE USED FOR COMMERCIAL GAIN IN ANY FORM OR FOR ANY OTHER PURPOSE UNLESS STATED IN WRITING FROM PDSA. Interested parties other than patients and families should contact pdsa@pdsa.org for more information.

 

Facilitator:

Jay Charness
EMAIL: jay@ape-strangerawareness.com

2018 Meeting Dates: March 7, June 5, September 5, November 13

Meeting Details: 7:00 pm EST (6pm Central Time, 5pm Mountain Time and 4pm out West).  The kids will be on the call for the first 30 minutes getting a chance to talk with each other about ITP and life (this is something that kids thoroughly enjoy).  After the Kids Call, a Pediatric Hematologist will join the call to answer general ITP questions for the parents.  Once the doctor leaves the call, it will be time for parent to parent support and discussion.  Please contact Jay Charness to get on the call and join the group (this group is predominately parents of kids with ITP) and to get the call in information!

NEW! Parents of Teens Meeting: Next Meeting TBA.  Please contact Jay Charness to get on the call and join the group (this group is predominately parents of teens with ITP) and to get the call in information!

ITP Ambassador

ITP patient Ayla Charness was chosen as the 2011 Children's Miracle Network Colorado Champion.  This was a great opportunity for Ayla to spread the word about ITP.  In October 2011 she took a trip to Washington D.C. to meet with congressmen to get support for child health care and bring awareness about the research needs for ITP.

2011 Children's Miracle Network Colorado Champion
The video below is one that Children's Miracle Network put together to show at fundraisers and other national events.  It does a great job of telling her story along with bringing awareness to ITP.

Watch Video

A Champion for the Children's Miracle Network and a winner for those with ITP!
Watch Meredith Vieira and Ayla Charness discuss ITP

Watch Video



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