Canadian Teleconference Group
Waterloo-Wellington, Greater Toronto Area
Proud member of CORD
Pump It Up for Platelets - London, ON 2020
2nd ANNUAL EVENT! In honor of our son Luca, an ITP Warrior, who lost his life but will never be forgotten
Saturday, April 25, 2020
285 Wonderland Road, South
The 2nd PDSA Canada ITP Regional Meeting was held on Sunday, April 28, 2019 at Winderemere Manor in London, Ontario. Approximately 50 attendees were present. Dr. Donald Arnold and Dr. Kristina Kastelanac presented and answered questions. A panel of three ITP patients shared their journeys with ITP. It was a great opportunity to learn, connect and share.
Video from the Regional Meeting
Presentations from the 2019 PDSA Canada ITP Regional Meeting, held in April, 2019 in London, Ontario. The videos are included on a USB Flash Drive. There are over 3 hours of informational content from the meeting.
Includes the following Presentations:
- What’s New in ITP Research and How Does That Affect Me?
- Autoimmune Disorders and the Nervous System- A Naturopathic Approach
- Living with ITP - Patients Share Their Stories
2019 Pump It Up For Platelets! London, ON
A walk/run fundraising event in honor of Luca, an ITP Warrior who lost his life but will never be forgotten.
It began as a chilly morning in London, Ontario Canada, but well over 200 people showed up in support of Luca's family! Luca's mom spoke to the crowd about their journey with ITP. Then... after a fun warm-up session, the runners, walkers, scooter riders and dogs were off on a beautiful 5 kilometer course along the river.
This wonderful event raised over $13,000 for ITP research, awareness and PDSA programs and services. THANK YOU!!!
Video from the Event
2017 ITP Regional Meeting - Montreal, QC
- Who Pays for Drugs in Canada?
- Qui Règle Le Coût Des Médicaments?
- PTI chez l’adulte - Questions Fréquemment Posées
- PTI chez l’enfant Questions Fréquemment Posées
- ITP POKE-R CLUB: For Kids with ITP
Peer Voice: Counting on New Approaches to Improve Outcomes in ITP: Translating Updated Recommendations Into Optimal Patient-Centred Care
(available in English and French)
Vanishing Platelets: Issues in Thrombocytopenia
In the following series, Hematologists from McMaster University in Ontario, Canada, explain the multiple variables they confront in patients with chronic ITP and the balancing act of treating not just numbers, but also the patient's unique symptoms and circumstances.
PDSA Canada in the Press
New hope for ITP patients dashed by high drug cost
Without access to eltrombopag, Gellein continues to take other medications and suffer from side-effects of anxiety, depression, weakness, nausea and dizziness. She is admitted to hospital several times each year for emergency treatment, which is common for patients with uncontrolled ITP.
She wants people to know the ripple effect it has caused on those around her, and desperately wants her life back.
"My life could have been so much different with these drugs," said Gellein. "Something needs to change, if not for me, for the hundreds of young people being diagnosed with ITP in Canada every year."
- By Dr. Meera Dalal for CBC News. Photo courtesy of Chrystal Gellein.
McMaster University prof kicks off platelet support group in Canada
"Donald Arnold, associate professor of medicine, is helping jump start the Platelet Disorder Support Association (PDSA) in Canada, a not-for-profit patient advocacy group that has been very active in the U.S. It aims to improve the lives of people with ITP and other platelet disorders through education, advocacy, research and support.
Arnold, a hematologist, is a medical advisor for the PDSA, which is holding its first meeting April 29 in Montreal. This meeting is geared for ITP patients, caregivers and the medical community."
- By McMaster University
The Platelet Disorder Support Association is officially a Canada Not-for-Profit Corporation. This status will allow PDSA to expand our educational and support services.
Thank you to the following companies for supporting our Canadian programs: