PDSA Named Rare Disease Changemaker by the National Organization for Rare Disorders (NORD)

The Platelet Disorder Support Association has been selected as the recipient of the 2019 NORD Abbey S. Meyers Leadership Award for the organization’s impact in the fight against rare diseases.  “It is truly an honor to be recognized by NORD and the 280 rare disease organizations they represent,” said Caroline Kruse, President and CEO of PDSA. “We are grateful for our partnership with NORD, which has enabled us to advance our mission and make a difference in the lives of ITP patients through our ITP Natural History Study Registry and research program.”

PDSA will be honored at the NORD 2019 Rare Impact Awards, taking place Saturday, June 22 at Space Center Houston. “There are 25-30 million Americans living with rare diseases today, and more than half of them are children,” said Peter L. Saltonstall, President and CEO of NORD. “Thankfully, there are also people, organizations and companies doing extraordinary work to help improve and save their lives. It is our privilege to honor them for their stellar contributions to the community, and our pleasure to do so in a truly out-of-this-world setting.”

This year’s Rare Impact Awards event will be presented as part of the 2019 Living Rare, Living Stronger NORD Patient and Family Forum, which will bring the rare community together with physicians, medical students and health care professionals for a program of learning, sharing and connecting in Houston, TX.

About the 2019 Rare Impact Awards: https://rarediseases.org/nord-announces-honorees-2019-rare-impact-awards/

 

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