Kind of interesting...The attached article says that platelets can reproduce in circulation.

www.sciencedaily.com/releases/2010/01/100126133352.htm

As long as we're compiling a wish list for the new forum, I'd like to see the option of listing more than 5 replies before having to turn the page to see more.

If it isn't possible to provide the option, how about letting us see at least 10 replies before having to turn the page?

Yes, you have the right place for this questions.

The time zone (and correct time) issue will be resolved in a few weeks. We'll have to put the date and military time questions on the list to address.

Thanks for mentioning this. Anyone else have input?

Joan

That would be nice.

I've got my time zone checked for my time zone - but that doesn't seem to be right either. A few times I've posted and it has the time posted hours before what it is in my time zone.

I'd prefer "normal" time instead of military time.



Just looked - it is 8am and it shows I posted this at 15:00

I was wondering if, instead of having the time of the posting put up, if we could go back to having the date of the posting.
Example: Posted Jan 29 2010 instead of 10hrs 6 mins ago. I get very confused with that.

Good luck with the knee surgery, Caroline! I wish you a speedy recovery.

Have fun visiting your sister in the Azores! I hope you have a good time.

That's a great count, Erica! Hope they continue to climb.

I got diabetes (tablet controlled) 3 years ago after taking a 5 day course of steroids, so now my haemo wont give me steroids. I am surviving on 6 bottles of ivig every month.

Are there any other diabetics, and what medication do you take.

Ted

I would like to hear from anyone who has taken or is taking NPlate. I had my first dose of it Monday. Any information welcomed.

What is the Coombs test? I don't think that my doctor test me but I'm not sure. Have any of your doctors ever done bone marrow asperations? I haven't had one but I heard that sometimes they do them.

Hope your surgery goes well. I had a full knee reconstruction when I was about 11 years old because my knees dislocate all the time and they are not in the position they should be in and I have been told eventually I will probally need a total knee replacement for both my knees.

I think thats why my doctor lowered it so fast. I would really like to be off the pred but I'm not to happy about the other options.

I agree, it is not something that is gonna be solved overnight, it is a long drawnout process and somedays you will feel like your finally on top of it and then the next day or next week, it all comes crashing down and u feel like your starting all over again. Hang in there and stay strong xox

I don't know if it would be considered normal, but mine dropped from 76 to 47 in a week while still on the same dose of pred. I am currently on 40mg a day when that happened. I'd advise you to not stay on the pred for too long, particulary with the higher doses, the side effects are just not worth it.

That's wonderful news Erica, happy to hear that

My doctor has been excellent with the anemia and since my platelets had dropped in the past he told me that he had always felt I had ITP but my count had never been low enough to treat. I ask him if I should just continue on prednisone for now and he has concerns about the side effects but like you said I feel that the other options ae a bit extreme right now. I'm only 24 and with the anemia my immune system seems to be a little weak already and while they say the risks of serious infection isn't likely I would definately like to keep my spleen! Do you know if its normal to drop so much in a week while still on meds?

I hope so! I'll be semi-bionic!
And I see my profile does have my signature with information.

I keep forgetting to check the new forums here so here I am now finally remembering to. In case you probably don't remember (lol), I had a partial knee replacement of my right knee in Sept. 08. Last fall, my left knee started bothering me so I had a series of Supartz shots which did nothing and by mid-DEcember, my knee was killing me. It went downhill ver quickly. Tuesday, I had a 1 year check in for the partial knee with my orthopedist and we/he looked at my left knee and after discussion, I am having a total knee replacement in that knee, scheduled for April 21. I'm waiting until then because I'll be visiting my sister who lives in the Azores for a week in March and need to get ready after that for the surgery (and time to recuperate from my air travel---I hate flying and this time, for the first time, I'll be getting medication to get through the 4 hour flight (and one home) without being scared--am flying alone, with my sister meeting me at the airport and then my brother and SIL arriving a couple of hours later on a flight from Lisbon).

On an ITP note, I will probably be doing an autologous blood donation prior to my surgery. I see my hemo in March and see what platelet count he wants for me. LAst time he said 70, while ortho said 50, both managable generally for me. Can't remember if I set up my signature after asking about here which shows recent counts!

So now I'll try to remember to check in here more often.

Sorry to hear they are back down to 5, I remember feeling very scared and stressed when mine were at 6. I agree that splenectomy should be the absoulte last option, luckly my doctor has said he won't even really think about considering it at this point. I think the Nplate and or mabthera is what my doctor is considering for me at the moment. I see him again on tuesday next week.

I'll Hope and pray the Nplate works for him

I've added a new section at the top of the forum for questions about the new format. Please post any additional comments and information there. That way the subject can be separate from the ITP discussion.

Thanks.

I've added a new section at the top of the forum for questions about the new format. Please post any additional comments and information there. That way the subject can be separate from the ITP discussion.

Thanks.

I've added a new section at the top of the board for information about the forum so this topic can be separate from the ITP discussion. Please post any new information there.

Thanks.

This is wonderful news. Hope he continues to get better. Debbie