Janet that is fantastic!!!  Very happy for you!!
But - you must keep in touch with us  

That is so nice to hear!!
I had the same experience last year after I was hospitalized with a dose of 7 MCG/KG and a single-digit count (due to what was really a very minor cold). They pumped in everything (IVIG, Methyl pred, Platelet bags) + me going crazy with Nplate overshooting before hospitalization to hopelessly avoid that. That allowed me to reduce the dose a little bit after I was released. I believe in the miracle of shocks

I was wondering how long you were on Nplate and what was your dose reduction timeline.

Good morning all,
I am in a hospital curing what it seems is a bronconeumonia. Not sure of doctors here knows ITP patient can take any antibiotics. 

They started yesterday with Ceftriaxone.

Should I be concerned?
Many Thanks bros

Will you be blessed indeed

Is this a form of cefalexin? I took a high dose of this for a UTI without problem (while taking prednisolone and mycophenolate for ITP)

No. It is an antibiotic to treat bacterial infections.

Well UTI is a bacterial infection. A quick look online suggests to me (disclaimer: I don't know much ...) that it's a later generation of the same antibiotic. But maybe someone here is better informed than me. Good luck with it, hope you feel better soon

Thank you  

Hi all,
I am on 50mg Promacta/Revolade and it keeps my counts to 139.
I got this infection bacterial in my lungs provoked or not by covid and the count jumped in 3 days to 300.
Is it something absolutely rare?

I disconntinued. 

Any comment is welcomed:)
Txs

the comment we've already been discussing, lol.

As ITP (or any other autoimmune disease) is possible to emerge/relapse/exacerbate after infection, the reverse is also possible. I recall several cases documented of recovering from ITP after contacting Hong Kong flu. I'm so sorry that you're in hospital and I hope you get out soon, with meaningful post discharge increase in counts

Thank you

Do you have a hematologist?     Since you are concerned have you talked with him/her?

From the Mayo Clinic:
"Ceftriaxone belongs to the class of medicines known as cephalosporin antibiotics. "

Hi Lman
Today 443 and climbing. I never had more than 250 even without ITP.
When the climbing will stop? As soon as the process of infection is cured? I am having big time antibiotics.....
When too high is too high?

Thanks 

I only took Avatrombopag 20mg twice between the previous blood test and last Friday's.
Just got the result, count is 165 so am staying on twice a week and begin gradually tapering off  pred. Weekly FBC tests (CBC I think you call it  across the pond)  to continue for a while with monthly renal and liver function and CRP tests. 

That's a good count for most of us, but I know you aren't comfortable that high.  I hope all other functions are normal and stay that way.  Good luck tapering the pred!

Cindy I had a telephone consult this morning my target is going to be about 80

Hi,
Now it is summer and I sit in a small office and I tend to sweat a lot, I was wondering what kind of deodorant/sprays/perfumes/clonge/antiperspirant are safe to use for those with ITP. As clearly people with autoimmune diseases should stay away from such products, but in my case, it seems needed.
I am not sure if it is better to apply the product on my skin or cloth. I think if it is something I can apply to my cloth that would be better for someone with an autoimmune disease.
Any advice or experience is appreciated since I have to order them soon to counter the summer odor.

How about an aluminium free deodorant?

80 is a good number.  Good luck!

Thanks mrsb.
I ended up buying a deodorant without aluminum and paraben.
Also, I asked my doctor. He said that "Clognes and perfumes are most likely to get an allergic reaction. The other categories are tested to lessen that likelihood."

I have to use this for 3 days a week for summer when I work in the office.

Wow, that is a perfect sign! I hope you can have a dose reduction after the infection fades.

I've been on blood thinners since the beginning of the year for a blood clot in my jugular. The blood thinners actually have helped stabilize my platelets. 

Lman I'm curious as to what you got the info that:
"deodorant/sprays/perfumes/clonge/antiperspirant ... As clearly people with autoimmune diseases should stay away from such products,..."

I'm an ITPer from way back and I have never been told not to use any of those!!

Thanks

I know you aren't too comfy with the 165 mrsb - I sure hope the pred taper goes smoothly and your count can settle about 80k (that is such a nice number), my thoughts are with you!!

Hi MeiA!

My statement is inaccurate as I don't have much science to back it up. I personally try to stay away from such products as I know a lot of chemicals can interfere with or exacerbate autoimmune diseases.

But these are some resources I looked into to buy a deodorant:
www.ncbi.nlm.nih.gov/pmc/articles/PMC1314959/
www.abc4.com/gtu/gtu-sponsor/common-products-to-avoid-for-an-autoimmune-disease/

Also as my doctor mentioned, some of them are known to be problematic.

I hope my answer has been helpful.

This week's count is  92. 

That's a good comfortable number, mrsb.  How's the pred taper going?

Now that's a nice number mrsb!!   Yes, how is the prednisone taper going?

Thank you both. I am taking it very, very slowly with the taper 3mg/3mg/2mg for a fortnight,  so far so good. Then will go to 3mg/2mg for a fortnight. If still ok will do 2mg daily for at least 2 weeks before another drop. 

Consultant rang yesterday and suggested I  up  Ava  to 3 times a week. Her point being if I contact a virus my count will plummet so I need a safety net.  
I  can see her point but declined for 3 reasons. Firstly I feel less tired on 2 a week, secondly count of 92 was on Friday morning when I hadn't had any Ava since Tuesday evening and finally the protocol for treating ITP is to maintain a count ≥50 on the lowest possible dose. 
I did say that if count went down with this Friday's count we could discuss a slight change of dose. 

It sounds like your consultant is reasonable and willing to listen to you.  That's always good.
I'm curious.  Is your consultant a doctor?  Or is he/she what we call a nurse practitioner here?