That's a good comfortable number, mrsb.  How's the pred taper going?

This week's count is  92. 

Hi MeiA!

My statement is inaccurate as I don't have much science to back it up. I personally try to stay away from such products as I know a lot of chemicals can interfere with or exacerbate autoimmune diseases.

But these are some resources I looked into to buy a deodorant:
www.ncbi.nlm.nih.gov/pmc/articles/PMC1314959/
www.abc4.com/gtu/gtu-sponsor/common-products-to-avoid-for-an-autoimmune-disease/

Also as my doctor mentioned, some of them are known to be problematic.

I hope my answer has been helpful.

I know you aren't too comfy with the 165 mrsb - I sure hope the pred taper goes smoothly and your count can settle about 80k (that is such a nice number), my thoughts are with you!!

Lman I'm curious as to what you got the info that:
"deodorant/sprays/perfumes/clonge/antiperspirant ... As clearly people with autoimmune diseases should stay away from such products,..."

I'm an ITPer from way back and I have never been told not to use any of those!!

Thanks

I've been on blood thinners since the beginning of the year for a blood clot in my jugular. The blood thinners actually have helped stabilize my platelets. 

Wow, that is a perfect sign! I hope you can have a dose reduction after the infection fades.

Thanks mrsb.
I ended up buying a deodorant without aluminum and paraben.
Also, I asked my doctor. He said that "Clognes and perfumes are most likely to get an allergic reaction. The other categories are tested to lessen that likelihood."

I have to use this for 3 days a week for summer when I work in the office.

80 is a good number.  Good luck!

How about an aluminium free deodorant?

Hi,
Now it is summer and I sit in a small office and I tend to sweat a lot, I was wondering what kind of deodorant/sprays/perfumes/clonge/antiperspirant are safe to use for those with ITP. As clearly people with autoimmune diseases should stay away from such products, but in my case, it seems needed.
I am not sure if it is better to apply the product on my skin or cloth. I think if it is something I can apply to my cloth that would be better for someone with an autoimmune disease.
Any advice or experience is appreciated since I have to order them soon to counter the summer odor.

Cindy I had a telephone consult this morning my target is going to be about 80

That's a good count for most of us, but I know you aren't comfortable that high.  I hope all other functions are normal and stay that way.  Good luck tapering the pred!

I only took Avatrombopag 20mg twice between the previous blood test and last Friday's.
Just got the result, count is 165 so am staying on twice a week and begin gradually tapering off  pred. Weekly FBC tests (CBC I think you call it  across the pond)  to continue for a while with monthly renal and liver function and CRP tests. 

Hi Lman
Today 443 and climbing. I never had more than 250 even without ITP.
When the climbing will stop? As soon as the process of infection is cured? I am having big time antibiotics.....
When too high is too high?

Thanks 

Do you have a hematologist?     Since you are concerned have you talked with him/her?

From the Mayo Clinic:
"Ceftriaxone belongs to the class of medicines known as cephalosporin antibiotics. "

Thank you

the comment we've already been discussing, lol.

As ITP (or any other autoimmune disease) is possible to emerge/relapse/exacerbate after infection, the reverse is also possible. I recall several cases documented of recovering from ITP after contacting Hong Kong flu. I'm so sorry that you're in hospital and I hope you get out soon, with meaningful post discharge increase in counts

Hi all,
I am on 50mg Promacta/Revolade and it keeps my counts to 139.
I got this infection bacterial in my lungs provoked or not by covid and the count jumped in 3 days to 300.
Is it something absolutely rare?

I disconntinued. 

Any comment is welcomed:)
Txs

Thank you  

Well UTI is a bacterial infection. A quick look online suggests to me (disclaimer: I don't know much ...) that it's a later generation of the same antibiotic. But maybe someone here is better informed than me. Good luck with it, hope you feel better soon

No. It is an antibiotic to treat bacterial infections.

Is this a form of cefalexin? I took a high dose of this for a UTI without problem (while taking prednisolone and mycophenolate for ITP)

Will you be blessed indeed

Good morning all,
I am in a hospital curing what it seems is a bronconeumonia. Not sure of doctors here knows ITP patient can take any antibiotics. 

They started yesterday with Ceftriaxone.

Should I be concerned?
Many Thanks bros

That is so nice to hear!!
I had the same experience last year after I was hospitalized with a dose of 7 MCG/KG and a single-digit count (due to what was really a very minor cold). They pumped in everything (IVIG, Methyl pred, Platelet bags) + me going crazy with Nplate overshooting before hospitalization to hopelessly avoid that. That allowed me to reduce the dose a little bit after I was released. I believe in the miracle of shocks

I was wondering how long you were on Nplate and what was your dose reduction timeline.

Janet that is fantastic!!!  Very happy for you!!
But - you must keep in touch with us  

Congratulations Janet!

Great news Janet. Long may it last.

With my count at 233 this morning and my NPlate dose at a mere 10 mcgs (total dose, not mcg per kg), my MD recommended I stop taking it altogether.  So that's what I did!  The hope of being in a true remission has made me giddy.  Even if it's not "remission" per se, just maintaining a stable enough count to not need treating is a big blessing.  

Ever since Feb of this year, the count has been mostly stable despite the gradual lessening of the dose.  If anyone was to make me speculate about what happened, my guess would be the two back-to-back steroid dose-paks I had for an unrelated problem at that time perhaps "shocked" my system somehow.  Before the first pak, I was still careening from 114 to 37 in a week's time with no change in NP dose of 50.  After the second dose-pak, I haven't budged out of the mostly mid-100s, with a couple of 200s in the mix.  

I bet the office nurses will be glad they won't need to mix such an impossibly tiny dose anymore.  I will still need weekly CBCs for a while, but I'm still pretty pumped at this turn of events.  
There aren't too many people in my life who would even understand what all my fuss is about.  I know you do, so thanks for listening.