Yes, he had a cold less than two weeks ago. However he was sick several times during last 4 years and even got COVID last September. None of those drop his count. I think it must be some specific virus set him off. Back 2018, he was on Promacta for about 11 months, from 50mg to 75mg to 25mg then 25mg every other day. Then we just stopped it and his count maintained above 100k+ for almost 4 years. He also formed habit to check for petechaie often, just few days ago he was all good. We will go back to children’s hospital tomorrow to see if prednisone works or not. Fingercross this is just a temporary drop due to virus.

I'm sorry your son relapsed.  Has he been sick recently? Received any vaccinations?  These may cause platelet counts to drop.
How long did your son take Promacta and at what dosage?  I assume he stopped taking it at some point.  ITP affects everyone differently, which makes it difficult to predict how someone will respond to a given treatment.  I'd be interested to hear if the prednisone works this time and what his hematologist recommends for treatment.  

After 4 years of remission (100k+ without any med), my now 16-year-old son woke up this morning with petechiae all over his body. We rushed to ER, and the platelet was down to 5k. It is so frustrating. We all thought this was behind us now. ER doctor consulted his hematologist and put him on 60mg prednisone until our hematologist could see us sometime this week. Prednisone actually never worked last time, hopefully, it could do its wonder this time. I'd like to hear about any experience of relapse. Is it will be more difficult or easier to deal with?  Will the same treatment work again? Last time, Promacta put him into remission. Thanks

th I would post this up in the adult section, general or treatment section - more people read there then here in the children's section.
Sorry your son's count hit the gutter - hopefully he'll be able to see his hematologist soon!!
Although I was never in the normal range after being on prednisone my count did hit the gutter after a tetanus booster, 1 WinRho IV got me back on track.   Not sure if WinRho is used as a treatment any more.

I  hope you all get good news this week!

After 4 years of remission (100k+ without any med), my now 16-year-old son woke up this morning with petechiae all over his body. We rushed to ER, and the platelet was down to 5k. It is so frustrating. We all thought this was behind us now. ER doctor consulted his hematologist and put him on 60mg prednisone until our hematologist could see us sometime this week. Prednisone actually never worked last time, hopefully, it could do its wonder this time. I'd like to hear about any experience of relapse. Is it will be more difficult or easier to deal with?  Will the same treatment work again? Last time, Promacta put him into remission. Thanks

My son's neutropenia also resolved itself after a little over 5 months.

The blood thinner I was on after each knee replacement surgery to prevent clots was baby aspirin - can't recall if my friend was put on baby aspirin after stents were installed.   The baby aspirin increased my platelet count. 

I have to undergo a cardiac catherization including an angioplasty and installation of a stent. As part of the follow up, my Cardiologist is saying I will have to take a blood thinner for 9 or more months until they can be sure the stent is staying in place correctly. 
Has anyone undergone a stent procedure and/or use of blood thinners as a flow up? If so, would you be willing to share your experiences including what adjustments you made to your ITP treatments? I am currently receiving a weekly injection of NPlate at a dosage of 1 mcg/kg.
Thank you in advance for any information you can provide.

Chad I think I'd rather take something like that to ward off the artery calcification instead of taking it after the calcification is already there.  

Why I'm saying this is - a friend has osteoporosis, she was on fosamax for 5 years and was then taken off it, she did not want to take anything else so the endocrinologist told her to take Alive which is plant based calcium and other stuff - well she is now using a walker due to a couple compression fractures one is T12 and I can't remember the other one.  No problems while on fosamax but once off it and on plant based calcium she got the compression fractures.  As soon as she told me she had the T12 compression fracture I knew it was due to osteoporosis and not taking proper med to help and her surgeon told her the same thing.  

Carducci, good morning. Have you done much research on vitamin K2? There are quite a few medical studies out on the effects it has with removing calcium from places it should not be (like arteries) and transporting it places it should (like bone). Start researching Vitamin K2 if you get the chance.

Ditto what Cindy said!!!

Hope it starts raising your counts soon, mrsb!

Fostamatinib dose increased to 150mg twice a day from this morning. 

I agree with Mel. Statins have had no effect on my count either 

A statin has done nothing to my platelet count.
Personally I'd rather have a drop in platelet count than a heart attack!

I wish you well!!

I have been diagnosed with a high level of calcification in my heart arteries. Treatment may include statins. 
I have been receiving N Plate injections weekly for about 3 years and my counts have remained above 100,000 with a few exceptions. 
Has anyone had experience with statins and if so did they have a negative effect on platelet count?
Thank you for responding.

I don't usually have an issue when having to log back in.  This last time was different.  But it seems to be fixed now, so thank you, Jeff. 
I know sometimes when my computer does an update, I have to re-log in and that's to be expected.

It could have been that I was working on the site and clearing the cache, which was logging you out.  But I'm not sure.  Please let me know if this is a consistent problem now, or whether it is just sporadic.  Thanks, Jeff

That sucks, mrsb!  I didn't have that issue.  I was actually just sitting here wondering if there was a problem with my account.  I'm glad it's not just me having issues, but it sucks that we are.

I've had same problem today. Had to log in for each post I read on recent topics 

Hope that continues Cindy!!

Thank you mrsb!!    Our daughter in law is an RN and every now and then I get a couple boxes of candy & a card of "thanks for all you do" and give them to her to take to work for her & her colleagues just to let them know someone appreciates their hard work and dedication.

(and I do not expect, nor want, donuts or chocolates to be shared with patients - when I give them I expect those who worked hard to enjoy them)

Show me a nurse who doesn't appreciate donuts or chocolates, or biscuits or cakes. Sometimes we were so busy that was what kept us going. 

That's a good idea Mrsb04! I'll consider it, if my platelets drop again. I might have found what caused ITP for me- MAYBE. They went up to 165000 a couple weeks after I stopped eating gluten, oat and buckwheat. Let's see if it stays that way. They finally discovered I have transglutaminase 6 antibodies... I really have no idea, I'll check in and tell about it once I can be more sure in a couple months or so. 

Don't know what you did, Jeff, but thank you!  I didn't have to log in today!

Flowers and chocolates and donuts are a token of thanks, in my opinion not a gift.  Eating chocolate or donuts a patient brings isn't unethical to me, it isn't a bribe or a way to get extra attention it is a thank you!  And knowing many nurses I know for sure they really appreciate donuts and being thought of.

When I have taken donuts to the hospital staff on the floor I was on or a friend was on they were then taken to the nurses break room for all the staff to enjoy.  Nothing wrong with donuts and a thank you note!

Personally due to allergies I think I'd skip flowers.

What is going on with the site?   It is consistently telling me my session has expired and it takes me 3 or 4 (or more) tries to get logged in. I'm usually logged in all the time, but since Friday, I have to fight to get in.  This is really getting annoying.

Thank you!  

My hemo is part of a cancer clinic and just my opinion from 12 years there- my doctor doesn't accept gifts and it appears that no one does. He likely feels its unethical for him to accept a gift- hey he doesn't even like being thanked! He deflects it. But just what I've noticed at this particular cancer clinic, is when people bring in flowers, the flowers are set out on the front desk for the patients and everyone to enjoy. Or if its candy, baskets of fruit, it goes onto the back desk infusion room for the patients to eat the candy, fruit and enjoy the flowers. Also I think because of Covid they might not allow open boxes of candy, not sure but I noticed all the candy they have out is individually wrapped.

I think doctors might appreciate patients who write positive reviews on Yelp and online review sites.? That might be a way to express your appreciation or like Mel mentioned, a thank you card. Just my thoughts, sounds like you have excellent medical care.

I've given donuts to the nursing staff at the hospital.

Also when a dermatologist Physicians Assistant finally figured out what my problem was, on the 1st visit no less, and got rid of a derm problem I'd had for many years [and seen all sorts of doctors about] - I sent her a card with a heartfelt note inside, I heard she appreciated that note more than anything!!