Wow! Thank you for this. It's so amazing to connect with another mom in a similar (nearly identical, it sounds like) situation. And congratulations on bringing a new baby I to your family
At 4 months in, we are starting to reach a point where we feel confident enough to forgo some of the blood draws. She hit her head last week so took a short course of steroids and that bumped her up for about days. But right now we're at that scary point where its Friday and last time we checked (tues) she was at 5...we're just going to try to roll with it and be careful. I tried taking your advice to just serve beets here and there but I keep cooking them and then forgetting them haha. And I think ill take a look at the papaya leaf extract. We actually eat papaya pretty frequently.
If anything, this strangely benign/terrifying syndrome keeps me constantly aware of how much I love my daughter and of how greatful I am for her health. I hope that our kids continue to thrive, with or without ITP!
And I'd love to hear about anything that you've learned about itp, or just lend an ear to your experience. I hope you and your family are well,
-eliza