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26 Jun 2022 00:22
  • MelA
  • MelA
Had both eyes done last year - no problem and the eye surgeon wasn't concerned I had ITP.  I don't recall what my count was or if I even checked it before each eye.
25 Jun 2022 15:38
  • mrsb04
  • mrsb04
JJ
Does Hep B revert back to negative over a period of time?
25 Jun 2022 10:04
  • Luvmycat
  • Luvmycat
My husband needs cataract surgery, prob next year. Has anyone had this done with ITP?   What is an acceptable platelet count for this and did you have to have IVIG or some type of treatment prior to the surgery?

Of course, we will check with the doctors involved but just want to get some real-life experience from anyone who's 'been there.'
23 Jun 2022 22:05
  • delta809
  • delta809
Sorry to hear about the delays MrsB. Hope it works out soon and also for good news with the test result!
23 Jun 2022 22:01
  • delta809
  • delta809
Prednisone is awful stuff. After being on it and also dexamethesone years ago I still have lingering gastro issues to this day.
23 Jun 2022 00:41
  • MelA
  • MelA
Yep - no news is good news!
Your dog loves you mrsb and wants to be with you.    Now if it was me I'd prefer to be on the cool, shady hall floor :)  We are going to have a "cold" spell in a couple days, supposedly - highs in the 70s F, time will tell.  I do prefer the heat!
23 Jun 2022 00:38
  • MelA
  • MelA
Dang it mrsb - I'm sorry the consent signing has been delayed a week!!   I'm with Cindy, this does suck! 
Sure hope your HepB screen is negative!!!
22 Jun 2022 19:33
  • JJ
  • JJ
My IG does cause positive hep B. Hope yours is negative.
22 Jun 2022 09:56
  • CindyL
  • CindyL
I agree, mrsb.  We see our doctor on the 6th of July, and if I haven't heard from the specialist by then, I'll ask my doc if he's got the results.
Our weather can change in a heartbeat! We haven't had many really hot days here.  When my sister and I walk, we're usually in the woods and out of the sun.
22 Jun 2022 09:40
  • CindyL
  • CindyL
Aw, shucks, mrsb!  That sucks!   Hopefully your HepB test will be negative.   Fingers crossed the consent gets signed on the 27th!
22 Jun 2022 04:28
  • mrsb04
  • mrsb04
I have a healthy diet, mainly plant based with the odd bit of dairy and fish twice a week. I rarely eating red meat  and was gutted to discover my Lipid levels were elevated after a routine test at GPs.

Having had a long discussion with the GP practice pharmacist the cause of my dyslipidaemia  has been determined as 8 years of Prednisolone so I am now taking statins which are working. Annoyingly the damage is irreversible so I'm stuck on statins for life. 
22 Jun 2022 04:20
  • mrsb04
  • mrsb04
No news is good news Cindy.
We are in the middle of a heatwave over here. I'm spending my time pottering  about in the garden  and trying to persuade the dog he would be happier on the cool, shady hall floor. However he seems to prefer following me around huffing puffing and panting the silly animal. 
22 Jun 2022 04:13
  • mrsb04
  • mrsb04
Consent signing delayed until 27th June. Had a HepB screen on Monday  to make sure IVIg hasn't caused a +ve Core Antibody 
21 Jun 2022 13:36
  • MelA
  • MelA
Jay when thought I had a DVT it was due to an overseas flight [Colorado to San Francisco to Tokyo], my platelet count wasn't even near 100k and I was on prednisone - not sure why because we always walked around the plane and did not just sit.  By the time I got to my hematologist in Tokyo the swelling was down at my knee and it was no longer red & hot so there is a question as to whether it was or wasn't a DVT but it was put in my chart as a DVT.  
21 Jun 2022 03:45
  • delta809
  • delta809
I’ve had counts above my typical that were around 90-110k and was told by hema that I appeared dehydrated based on results of metabolic panel tests that were taken at the same time. Also, RBCs get elevated.
20 Jun 2022 09:36
  • MelA
  • MelA
And you did it right delta809 - good for you!!  
Another thing to watch is the sat fat in food - that's what I watch. 
19 Jun 2022 05:04
  • delta809
  • delta809
Thanks all!
I was able to drop my LDL significantly within a couple of months by returning to a more healthy diet. Also cut out red meat and less animal protein and exercising again. No statins needed says doc.
I did try the pantethine briefly but it made me feel uneasy and jittery.
18 Jun 2022 09:50
  • CindyL
  • CindyL
I was thinking the same thing, Mel.  No news is good news, as they say!
Thanks!  It wasn't looking promising for us to get out this weekend.  Last night it was 60% chance of rain for today and 70% for tomorrow.  This morning when I checked, it's down to 30% for today and up to 80 for tomorrow.  So we are going today!  In fact, I'm sitting here watching the sun come out.
18 Jun 2022 00:27
  • MelA
  • MelA
Probably you would have heard something by now if results weren't good!
Loving your photos - so glad you are able to take those walks!
18 Jun 2022 00:25
  • MelA
  • MelA
No I will not purposely increase my LDL - heart attack would not be something I would strive for, or a stent or 2, or a bypass or 4.
18 Jun 2022 00:19
  • MelA
  • MelA
I was hoping your count would be better too mrsb !!   But on Monday you sign consent so that is great - fingers crosses nothing stops that from happening - and if anyone needs this trial it is you!!   Hang in there and keep us posted!!   
17 Jun 2022 16:26
  • PennyH
  • PennyH
Hi,
has anyone tried the above.  My haematologist has tried all available meds in New Zealand and my count is still under 10.  In desperation she is trialling me in Tamiflu.
interested to know if anyone has tried it.
Thanks
Penny
17 Jun 2022 09:06
  • Eli
  • Eli
Your poor babe. My almost 3 year old daughter is in the early stages. Just started with Promacta as she's had ITP for 6 months. I hope that you can find a good treatment for your daughter, or better yet, that her plateletes recover on their own. 
16 Jun 2022 12:51
  • Suzana1995
  • Suzana1995
      I started with Romiplostim in Decembar 2021. I dont' have reaction  to intravenous immunoglobulin, dexamethasone, methylprednisolone. Since 31May I don't recive Nplate because platelets are 342 000. 
16 Jun 2022 12:24
  • Suzana1995
  • Suzana1995
      I'm new here, first day at forum, and English is not my primary language
      Sorry.
16 Jun 2022 12:17
  • Suzana1995
  • Suzana1995
,  started with NPlate in December 2021, I receive Nplate once a week, since May 31 I have not received any dose, 4 days ago platelets were 342,000, the dose of the drug varies depending on the platelet count, the last dose was 50mcg. I was admitted to the hospital with 1000 platelets and without a reaction to dexamethasone, methylprednisolone, intravenous immunoglobulin
16 Jun 2022 10:19
  • paulferi
  • paulferi
16 Jun 2022 09:56
  • mrsb04
  • mrsb04
paulferi
Can you post  some references for the studies please 
16 Jun 2022 09:21
  • paulferi
  • paulferi
Studies have shown a positive correlation between levels of Non-HDL C (like LDL) and platelet count. In fact, high Non-HDL C produces thrombocytosis (too many platelets) in mice. Right now I'm actually trying to increase my LDL intake to see if it helps my platelet count.

If you want to lower your LDL, you should try Moducare Sterinol, a combination of plant sterols, it is recommended in the supplements section of PDSA as benefiting platelets and also reducing LDL. www.pdsa.org/vitamins-supplements.html
Take care!
15 Jun 2022 09:31
  • CindyL
  • CindyL
Aw, mrsb, so sorry to see this!  I was hoping your count would be better.
Good news on the consent signing, if it actually happens!
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