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13 Oct 2019 15:09
  • acosta02151
  • acosta02151
I am going to email my hematologist, but she feels my platelets are stable. They have been 50-60 For the past year. Thanks for your response.
13 Oct 2019 23:47
  • MelA
  • MelA
acosta I was sent to an immunologist because I also have low Immunoglobulin G - the only immunization he has so far told me not to get is the new shingles vaccine because they don't know about it in people with autoimmune disorders.
Let us know what your hematologist says. Take care!
14 Oct 2019 13:59
  • Christine
  • Christine
We had quite a bit of snow a few weeks ago and it is still hanging around. Also minus temps - we didn't have Fall just went straight into winter.
Happy Thanksgiving to all Canadians out there far and wide :)
Category: Social Chat
14 Oct 2019 14:05
  • Christine
  • Christine
I concur with MelA especially over the shingles shot - I have had the flu shot every year since I was 18yrs (I am now 71) with no problems.
14 Oct 2019 15:43
  • mrsb04
  • mrsb04
In the UK only people who are between 70 & 80 are offered shingles vaccine and is contraindicated if you have a weakened immune system, if you take steroids or had an organ transplant
14 Oct 2019 17:49
  • mrsb04
  • mrsb04
Here in the UK we are having torrential downpours causing severe flooding in various parts of the country. Apparently, according to our met office, rain is made when cold Canadian air meets hot Caribbean air at the gulf stream. Said rain then gets delivered along the stream to us.
Category: Social Chat
14 Oct 2019 17:51
  • CindyL
  • CindyL
Hey, Christine, been thinking about you these past couple of weeks!
No offense, but you guys can keep it! :lol:
Category: Social Chat
14 Oct 2019 23:54
  • MelA
  • MelA
www.hopkinsmedicine.org/health/wellness-and-prevention/detoxing-your-liver-fact-versus-fiction
"Though liver cleanses are packaged to claim that they’re a cure-all for daily liver health and overindulgence, Johns Hopkins hepatologists do not recommend them. “Unfortunately, these products are not regulated by the FDA, and thus are not uniform and have not been adequately tested in clinical trials,” explains Woreta."

I've not heard that detoxing the liver or having an IV of glutathione has helped anyone with ITP increase their counts . Actually I had to look up what glutathione was.
15 Oct 2019 10:44
  • drbean7218
  • drbean7218
My doctor said that maybe the side effect of taking Prednisone, and the shingles caused the platelet crashed to 16 after a week.
15 Oct 2019 10:48
  • drbean7218
  • drbean7218
The platelet count was 68 on 8 Oct 2019.

The combination of my treatment:
a. Cyclosporine A - 250 mg daily (am: 125 mg, pm: 125 mg)
b. Azathioprine - 50 mg
c. Eltrombopag - 25 mg daily
d. Prednisone - 20 mg daily
e. Folic acid - 5 mg daily
f. Famotidine - 20 mg daily
g. Acyclovir - 800 mg daily (am: 400 mg, pm: 400 mg)
15 Oct 2019 15:25
  • MelA
  • MelA
Any chance the Acyclovir could have been the cause of your platelet drop? How long have you been on the antiviral?
Can't recall which antiviral I was put on - but neither it nor shingles seemed to lower my count.
15 Oct 2019 17:03
  • Hal9000
  • Hal9000
Only one more ManifestMe. These 300 plus counts are amazing. From the earlier comment here by CindyL, one has to wonder if a quick count response is indicative of a long lasting subsequent remission.

Hope the pred taper is going well.
15 Oct 2019 17:16
  • Hal9000
  • Hal9000
Oh one other thing I meant to mention Emily.

User 'JJ' took Rituxan AFTER achieving her partial (30-80 count) remission via Nplate. It seems to have now given her a full remission - and perhaps a more stable remission.
pdsa.org/discussion-group/7-treatment-general/30412-nplate-loss-of-response-antibodies-to-nplate.html#67352
15 Oct 2019 17:18
  • karenr
  • karenr
I echo all the supportive statements. I'm even older than you are, and I have lived for 19+ years with ITP. Read about the treatment options on this site. Then you can talk to your doctor more easily.

Karen R
15 Oct 2019 17:40
  • Hal9000
  • Hal9000
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