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21 Jan 2010 18:30
  • Kim
  • Kim
It is interesting to see what other doctors do and won't do based on platelet count. I've had a colonoscopy done with counts as low as 20k, even when there was thought that I had GI bleeds due to my ITP.

I had been suffering from anemia, which was thought to be from chronic GI bleeds, a problem due to ITP. My doctor wanted to make sure I had no polyps that could contribute to GI bleeding, we felt the risk of the scope was worth it and the GI doctor would have been able to remove and cauterize a polyp that was causing the problem bleeding.

I was having major problems with anemia, which were requiring iron and blood transfusions. I also was having stomach upset and other GI problems, which I was hoping could be identified and resolved with the scope.
21 Jan 2010 18:35
  • dots
  • dots
No. In the old board, one can write a message that goes at the bottom of each post. Lots of people sign their names and then write their platelet counts, or their names and their kids' names, treatments, dates of dx, or a quote they like.

It's under Basics in the profile section. If you still have an account there, look at your profile and you'll see it at the bottom on the right.
21 Jan 2010 18:47
  • Kim
  • Kim
It's always good to have a doctor you feel comfortable with and one who listens. It sounds like she's thinking and working to help you feel better and away from danger.

I was also told I had "smoldering" lupus when I was diagnosed in 1993. I was diagnosed with ITP in 1983 and lupus symptoms started about 6-8 years later.

Most rheumatologist's would like to see their lupus patients reduce a dose of prednisone as low as possible, preferably zero. It's good the rheumatologist is looking out for you long term consequences of prednisone. Good luck with treatment, and I hope you find something that works for you.
Category: Lupus
21 Jan 2010 18:52
  • CindyL
  • CindyL
I don't know what my count was when I had my colonoscopy. That was a couple of years ago, however.




Have a great day.
21 Jan 2010 18:53
  • CindyL
  • CindyL
I don't know what my count was when I had my colonoscopy. That was a couple of years ago, however.




Have a great day.
21 Jan 2010 18:53
  • CindyL
  • CindyL
I don't know what my count was when I had my colonoscopy. That was a couple of years ago, however.




Have a great day.
21 Jan 2010 18:59
  • CindyL
  • CindyL
I was wondering the same thing!

So, do we come here now to do our posting, or do/can we still post on the other forum?





Have a great day.
21 Jan 2010 19:16
  • youngjoan
  • youngjoan
It looks like there is a signature capability in the new forum, but it hasn't been turned on. I've e-mailed Jeff who is in charge of the new web site and asked him to 'turn on' the signature capability.

I'll let you know what I hear back from him.

I appreciate your mentioning this. It is exactly why we have a transition and not just a switch.
21 Jan 2010 19:18
  • youngjoan
  • youngjoan
You will be able to post to both forums for awhile (week or so). Then the old one will be switched to 'read-only' and you'll only be able to post to the new one. I'll post a message to both of the forums a few days before the actual switch.
21 Jan 2010 19:36
  • tofer
  • tofer
Kim that is always good news to feel like your are being heard. That your doctor has some new ideas and that maybe there would be another way to view what is happening in your life. Good for you Kim I'm glad things went well for you.
Category: Lupus
21 Jan 2010 19:38
  • Caroline109
  • Caroline109
My doctor wanted a count of 50. I had no trouble with that.
21 Jan 2010 19:38
  • tofer
  • tofer
Hi
ohhhhh it's spooky over here.... :evil:
Category: Social Chat
21 Jan 2010 21:27
  • DebbieC
  • DebbieC
Hi
Hopefully it will feel like home someday. I hope that more people come here. Have a good Friday, Debbie
Category: Social Chat
21 Jan 2010 22:08
  • youngjoan
  • youngjoan
Sandi and I have received a lot of questions and suggestions so we are making a list. If you have something you would like to put on the 'to do' list, please let us know.

Joan
21 Jan 2010 22:15
  • youngjoan
  • youngjoan
Some of you have asked about adding signatures to this discussion group. That feature is now available. To create your signature go to 'your profile', click on 'edit/update your profile/forum' and add your signature. You can also change some of the other parameters on how you view the forum.

Joan
Category: Forum Information
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