Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Questions about surgery 5 months 1 week ago #72318

  • joanne6705
  • Offline
  • Posts: 2
  • Thank you received: 0
Having a hysterectomy next month because of heavy bleeding.  I am going the larscopic route and was surprised at how quickly they have you leave the hospital (same day?).  My concern is post op bleeding that starts suddenly and now im 50 minutes from the hospital.  Is there any med I can ask my hema to put it me on to keep my platelets in a high range for recovery?  I took dex for 4 days platelets shot up to 173 which i haven't seen in twenty years.  The following weekly check in i was at 41.  I need 80 to get through this surgery and figure the dex should help with this but what about afterwards?  Just looking for any info anyone has.  Not sure how many dex things you can do in a row, etc.  I am one scared person to do this but I don't have a life otherwise.  Always home in case the vicious bleeding starts.  It takes 7 plus hours to stop it using 4 birth control pills feet up, sick to stomach, not fun.  Cancer doctor says im not likely to get any relief with menopause because my episodes don't seem to follow a cycle.  Regular gyno said no to surgery, and referred me to a cancer gyno doctor after repeated failures of the birth control. The emergency dept said i had to come when i'm about to pass out not sooner, but my gyno said when the heavy bleeding starts I need to go to the emergency room because my platelets flux and she has no way of knowing where I'm at.  Talk about confusing and not knowing what to do while being scared of your own body. THANK YOU for any input/success with this.

Please Log in or Create an account to join the conversation.

Questions about surgery 5 months 1 week ago #72323

  • MelA
  • Offline
  • Posts: 1013
  • Karma: 2
  • Thank you received: 337
joanne I'm so sorry you are having to go through this - of course I'd be concerned too.  Can't you talk to your hematologist about this - about what will be done in order to bring your count up to the 80k required for the surgery and what to do after??  Is your hematologist in touch with your surgeon??   I wouldn't be happy with an ED telling me not to come in unless I'm about to pass out - what if I'm alone, do I drive in when I'm about to pass out?  That just doesn't make sense.  

Good luck to you - keep us posted.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

Questions about surgery 5 months 1 week ago #72324

  • joanne6705
  • Offline
  • Posts: 2
  • Thank you received: 0
Yes, My hema is in touch with the surgeon.  I'm starting prednisone and lots of blood test prior to the date to see how it's going.  The hema will taper during my recovery which sounds good.  I was reaching out because who better to ask than the folks who have my disease and might have some experience with how to successfully deal with surgery.  I'm going to try to stay for the first night.  Not wild about having my body rearranged and then sent home.  My hema tells me blood vessels heal within the first 24 hours so it seems reasonable to keep someone overnight who has a blood disorder.  Thanks for your kind words.  This is a very lonely disease and hard to cope with emotionally at times.  

Please Log in or Create an account to join the conversation.

Questions about surgery 5 months 1 week ago #72326

  • MelA
  • Offline
  • Posts: 1013
  • Karma: 2
  • Thank you received: 337
joanne I'm glad that you called ITP a blood disorder and not "my disease" again - we aren't diseased :) we have a blood disorder.   And to be honest with you any disorder/disease is lonely unless you have someone in the same boat to talk to - it is good to have this group to discuss things with!   I'm also glad your hematologist & surgeon are communicating, that is really good - so many don't have their hematologist in communication with their other specialists.  It sounds like things are going as they should. 

The only surgery I've had since diagnosis in 1989 has been 2 total knee replacements, basal joint surgery on each thumb, a tumor removal, surgery on a tooth root thanks to an instrument breaking off inside it when having a root canal. 

Keep positive and I pray all goes well for you !
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo