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Eltrombopag & menstruation
- ImPatient
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- Carcamoc10
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- ImPatient
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Good to hear you had a similar experience and you seem to be doing well. I'd be interested in hearing your hematologist's opinion, if you ask and I'll post what mine says too in a couple weeks.
When my body does something differently I'm of course always a bit worried. Last time my blood was taken I was at 143. The few times before it was always above 100, too. I was actually talking to my hematologist about lowering my dose. But I have only been taking 25mg for a short time. I don't want to end up at the ER again or have to take Dexamethasone or something.
I was also worried that maybe it doesn't have anything to do with the med, because I just turned 40 and I actually might still want kids... But it would be a bit strange for my period to go from being totally regular and heavy to almost not being there so drastically, if it was due to age right.
Perhaps the body is working so hard to produce more platelets that it doesn't have enough energy for menstruating? I don't know much about such physical health stuff, but I heard before that if other body functions are needed excessively then ones period might stop for a while.
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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I started my menopause in my late 30s many years before I developed ITP. My periods tailed to a trickle for quite a while before they stopped. My GP sent hormone level tests off as he didn't believe I was starting so young. Maybe yours or your haemo could order some for you. At least you will know one way or the other
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- ImPatient
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- ImPatient
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I did find a few posts in this forum though where Momto3boys also mentions having problems with her period on Promacta. And also bone pain. I wonder if it's the same I have (my spine sometimes feels like it's breaking apart and all my joints keep cracking like I'd imagine the sound for a cartoon skeleton or something, really a lot)... Anyway, I'll comment on her post, maybe she sees it and can say something about it. That makes three of us already. With the menstruation I mean.
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- MelA
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Not sure I would be. Also not sure I would interpret the reply as you did.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- mrsb04
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- Carcamoc10
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- mrsb04
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Over here my consults are by telephone at the moment. I went to GP surgery for blood draw however. I went yesterday, very stringent Covid 19 precautions in place.
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- ImPatient
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Regarding the Corona virus, yes I currently don't use public transport. When I'm in the waiting room there's usually just one or two other people or nobody at all, sanitizers everywhere, masks and so on... it seems pretty safe.
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- MelA
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Why not check with your OB/GYN - chances are it is just the medication, but can't hurt to ask.
I'm staying away from doctor's offices if at all possible - have a phone consult on Wednesday and am happy to do that. I can also have video conferences with any of my doctors, can also email them, can send them photos via email - and this started well before this horrible virus.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- ImPatient
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My last hematologist laughed when I said I wanted painkillers if I had to have a bmb and tried to push me into doubling the dose of NPlate even though I had trouble breathing, chest pain, could barely sit straight and a count over 160, 170 something like that. I'll clarify what happened with the current hema next time, perhaps it was a misunderstanding, like the assistant maybe said I don't have my period- without context- and he understandably wondered what he has to do with it. I am pretty sure it's caused by Eltrombopag, but I'll go to my gynecologist too, just in case.
Here actually schools and shops are starting to open again tomorrow, so I don't know how high the risk of infections still is in my area.
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- ImPatient
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Also my joint cracking isn't as bad anymore. Waiting to see my counts, hopefully I don't have to increase again.
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