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Very low counts and very light periods 4 years 3 months ago #59980

  • Bflorovito
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  • Posts: 10
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Hi everyone! I've had ITP for about 3 months now. My counts right now are at 8. I currently have my period and it is EXTEMELY light. It has been lighter than even before I got ITP. Each month seems to be lighter than the one before.

I thought that ITP was supposed to have heavy periods with low counts. It doesn't make sense to me. Would anyone know the reason behind this? Am I just lucky? Any thoughts would be greatly appreciated!!

EDIT: I am 100% NOT pregnant.

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Very low counts and very light periods 4 years 3 months ago #60137

  • binarychick12
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  • https://kirstensjourney.wordpress.com/
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I think you are just lucky. Take care of youself, 8 is very low. Are you the hospital? Are you getting treatment?
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Very low counts and very light periods 4 years 3 months ago #60142

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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How old are you? Any chance of menopause?
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Very low counts and very light periods 4 years 3 months ago #60160

  • Bflorovito
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I'm 23! So I really hope it's not menopause. However, I just started NPlate two weeks ago after a failed rituxan course. After my first shot, my counts went up to 21. After the second, they went down to 18. My doctor didn't seem too concerned though. I get my counts rechecked along with my third shot on Wednesday. We'll see how it goes!

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Very low counts and very light periods 4 years 3 months ago #60164

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2366
Nope, probably not menopause!

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Very low counts and very light periods 4 years 3 months ago #60166

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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Bflorovito, is your doc starting you out on the normal low Nplate starting dose level of a '1' ? That is, 1 micro-gram per kilo-gram of body weight.

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Very low counts and very light periods 4 years 3 months ago #60299

  • Bflorovito
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Hi! She started me out at 2 mg/kg. However, the highest my counts went with that after 4 weeks was 21. So she increased it to 4 mg/kg. Hopefully this will get it to around 50!

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Very low counts and very light periods 4 years 1 month ago #61050

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
  • Posts: 313
  • Thank you received: 38
I've had my period as low as 3 and sometimes they're light other months if I have a cold and my platelets are low I won't stop bleeding it doesn't happen often but I usually get admitted until they calm the bleeding down with ivig and megesterol

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