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Any help would be appreciated 10 years 2 months ago #27944

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
  • Posts: 313
  • Thank you received: 38
Ok I've had itp for eight years tried it all the last year I've been on ivig but is now only lasting about a week but I got my period on the 8th of this month it lasted up until the 16th it was normal for me super heavy and sucked but last night I stood up n a huge blood clot came out and since them I've probably had about 15 the size of my palm some a little bigger but bleedong very heavy also like im on my period again has anyone ever had this? Thanks for any input I know kinda gross

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Any help would be appreciated 10 years 2 months ago #27990

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2371
Yes, oddly, I had clots when my counts were low. I never understood why. I asked my hemo and he joked and said "frogs". I took that to mean he wasn't concerned.

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Any help would be appreciated 10 years 2 months ago #28005

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
  • Posts: 313
  • Thank you received: 38
I've had it's before but never this bad my dr sent me to er my hemoglobin at 6 and platelets at 3

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Any help would be appreciated 10 years 2 months ago #28010

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2371
Good thing you went. I hope things are better soon!

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Any help would be appreciated 10 years 2 months ago #28012

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
  • Posts: 313
  • Thank you received: 38
Thanks

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Any help would be appreciated 10 years 2 months ago #28022

  • belydncrck01
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  • Posts: 48
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Get better soon. Please update us as soon as you get better!

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Any help would be appreciated 10 years 1 month ago #28839

  • jessmeyer
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  • Posts: 46
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I also experienced clots with my platelets were low. Strange, but true. My period was the WORST right before I was diagnosed with ITP. It was extremely heavy and long lasting. Now, I know that was due to having virtually no platelets, but hindsight is 20/20.

Are you on birth control? That helped me greatly -- even when my platelets were low.

I've also heard of other women on different medicines that actually stop their period, which also seems like it would help with your situation.

I hope it gets better for you! That time of the month is bad enough without all of the complications that low platelets add to it!

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Any help would be appreciated 10 years 1 month ago #28845

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
  • Posts: 313
  • Thank you received: 38
Hi no I'm not on birth control I had a stroke a year ago due to nplate and I'm now in nplate again so drs will not put me on birth control when I bleed like that the gynecologist gives me megesterol and the bleeding stops within two days

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